more delays

VivianLee5689
VivianLee5689 Member Posts: 546
in Head and Neck Cancer #1
I took David for chemo today and they are postponing again until the 29th. His bloodwork was not good and his PICC is continuing to bleed. They are giving him IV fluids/minerals and shots of B12 and vitamin K. They want IV fluids 7 days a week at home and keep an eye on the PICC. They said they may need to change his radiation since he won't get all three chemos. She said they will use chemo again if he has a recurrence. I am so stressed and sad today.

Comments

  • hwt
    hwt Member Posts: 2,328 Member
    #2
    Sorry
    I know it seems never ending. It's ok and understandable to be sad today. That leaves tomorrow for a better day. Hopefully, David can concentrate on building strength and putting on some weight during the next 2 weeks. Allow yourself the down day then pick yourself up, brush yourself off and trudge on. Don't be afraid to ask friends or relatives if you need back-up and a few hours to yourself.
  • carolinagirl67
    carolinagirl67 Member Posts: 153
    #3
    :(
    I am so sorry. I know how frustrating and difficult this is for you. There are no words to make you feel better but just know there are people out here that are thinking about you.
  • phrannie51
    phrannie51 Member Posts: 4,716
    #4
    Oh honey....I feel so bad for you guys....
    ...one thing after another would stress anybody out, when all they want is to get the show on the road. However, a couple of weeks to give him healing time in order to receive the chemo will go by fast. It is amazing how much healing can take place in a week, and he's got two to gather strength.

    I agree that if you can...ask for help, and get yourself away to regroup for a couple hours...refresh your spirits, and your mind. Then as hwt says, trudge on...it truly IS truding, there is no real "walking" thru this time. Waiting is the hardest part.

    p
  • luvofmylif
    luvofmylif Member Posts: 344
    #5
    phrannie51 said:

    Oh honey....I feel so bad for you guys....
    ...one thing after another would stress anybody out, when all they want is to get the show on the road. However, a couple of weeks to give him healing time in order to receive the chemo will go by fast. It is amazing how much healing can take place in a week, and he's got two to gather strength.

    I agree that if you can...ask for help, and get yourself away to regroup for a couple hours...refresh your spirits, and your mind. Then as hwt says, trudge on...it truly IS truding, there is no real "walking" thru this time. Waiting is the hardest part.

    p

    I know how hard this is...my
    I know how hard this is...my husband hasn't had it as rough as yours and I agonize everyday over seeing him suffer. We just have to do this for the one you love. The way I see it they would do it for us. Hang in there and keep take care of yourself too.
    Each day try to allow yourself some little thing for you...shop, hot bath, reading. And, Phrannie is right...waiting is the hardest. It is very stressful.
  • cureitall66
    cureitall66 Member Posts: 913
    #6
    Getting started.....
    I know how badly you want this thing to get started, but you need his numbers up so he can handle the chemo. They don't want to get it started and then have to stop if they can help it. So let them get him his fluids and vitamins and get recharged. Be sure to recharge yourself too while he's resting.

    They will watch that PIC line. We started with it at week 4, by week 5 he had an infection starting at the base, so it came out. They never put one back in. He's back to getting picked and prodded again... we're managing.

    It will get started soon enough...let him get the boost he needs right now.
  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #7
    cureitall66 said:

    Getting started.....
    I know how badly you want this thing to get started, but you need his numbers up so he can handle the chemo. They don't want to get it started and then have to stop if they can help it. So let them get him his fluids and vitamins and get recharged. Be sure to recharge yourself too while he's resting.

    They will watch that PIC line. We started with it at week 4, by week 5 he had an infection starting at the base, so it came out. They never put one back in. He's back to getting picked and prodded again... we're managing.

    It will get started soon enough...let him get the boost he needs right now.

    hoping not to offend
    I don't want to offend anyone, but my heart sank today when they said he wouldn't get the three chemos. After getting hypercalcemia and knowing it will reoccur, I really needed for my peace of mind the full enchilada. Today was the first time they discussed recurrence and we haven't even finished treatment. If you could have seen the chemo ONC face today. She said he is in worse shape then when he came in the 15th. They want him to do at home mineral fluids 7 days a week now. I really need him yo get better. I am not handling thus well at all. So much for being his rock. I feel like a big bag of blah.
  • phrannie51
    phrannie51 Member Posts: 4,716
    #8
    VivianLee5689 said:

    hoping not to offend
    I don't want to offend anyone, but my heart sank today when they said he wouldn't get the three chemos. After getting hypercalcemia and knowing it will reoccur, I really needed for my peace of mind the full enchilada. Today was the first time they discussed recurrence and we haven't even finished treatment. If you could have seen the chemo ONC face today. She said he is in worse shape then when he came in the 15th. They want him to do at home mineral fluids 7 days a week now. I really need him yo get better. I am not handling thus well at all. So much for being his rock. I feel like a big bag of blah.

    No one is going to get offended....
    You're going to have days where everything just seems hopeless...but that's only for the moment...this day...Dr.'s can't predict anything....and with two weeks of fluids, vitimins, and rest...David could surprise hell out of them, with not only good enough blood work for chemo...but continuing good blood work to get him thru the whole 3 doses...

    p
  • Grandmax4
    Grandmax4 Member Posts: 723
    #9
    VivianLee5689 said:

    hoping not to offend
    I don't want to offend anyone, but my heart sank today when they said he wouldn't get the three chemos. After getting hypercalcemia and knowing it will reoccur, I really needed for my peace of mind the full enchilada. Today was the first time they discussed recurrence and we haven't even finished treatment. If you could have seen the chemo ONC face today. She said he is in worse shape then when he came in the 15th. They want him to do at home mineral fluids 7 days a week now. I really need him yo get better. I am not handling thus well at all. So much for being his rock. I feel like a big bag of blah.

    I, and everyone else
    think you are handling all the setbacks quite well, I would be a blubbering idiot by now. Praying for you and David , it does seem youve had more than your share of problems

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