Noninvasive Micropapillary Serous Carcinoma

aussie_84

Hi, I was just diagnosed with this cancer in June. I'm only 27, and I was wondering if anyone else had it. I've been told it's extremely rare. I have no family history, and making this even rarer, I only had it in my left ovary with spread to my peritoneum. I did not do chemo and am in complete remission (for the moment) after surgery. Hoping to get pregnant before recurrence and having a radical hysterectomy thereafter. I'm praying for everyone dealing with this awful cancer. Thanks.

wooh_girl

Me too...
It's kind of nice to find someone in the same boat, though I'm sorry you are. I was also 27 when I was diagnosed in June 2010 with stage IIIB non-invasive micropapillary serous carcinoma, and recently turned 30. The primary site was my left ovary, so I had a surgery with my left ovary and fallopian tube removed, along with my omentum and part of my right ovary, where they found a second primary tumor that did not appear on my scan. My peritoneal washings were positive and there were additional mets along my liver and small bowel, but thankfully, none were invasive.

I didn't do chemo either - because the cells do not divide rapidly, chemo is not known to be effective for this type of tumor. There was discussion about chemo vs completion hysterectomy vs watchful waiting. Right now, I am just being followed by both my surgeon and medical oncologist with CT scans, CA125s, and exams. In the last several months, we have found tumor cells in my routine Pap, as well as the repeat Pap, so I'm not quite sure where I'm headed next.

I hope you're able to get pregnant soon and that you continue to do well. I froze my eggs as a precaution a couple months after my surgery, though I'm still hopeful that I won't need them.

aussie_84

wooh_girl said:

Me too...
It's kind of nice to find someone in the same boat, though I'm sorry you are. I was also 27 when I was diagnosed in June 2010 with stage IIIB non-invasive micropapillary serous carcinoma, and recently turned 30. The primary site was my left ovary, so I had a surgery with my left ovary and fallopian tube removed, along with my omentum and part of my right ovary, where they found a second primary tumor that did not appear on my scan. My peritoneal washings were positive and there were additional mets along my liver and small bowel, but thankfully, none were invasive.

I didn't do chemo either - because the cells do not divide rapidly, chemo is not known to be effective for this type of tumor. There was discussion about chemo vs completion hysterectomy vs watchful waiting. Right now, I am just being followed by both my surgeon and medical oncologist with CT scans, CA125s, and exams. In the last several months, we have found tumor cells in my routine Pap, as well as the repeat Pap, so I'm not quite sure where I'm headed next.

I hope you're able to get pregnant soon and that you continue to do well. I froze my eggs as a precaution a couple months after my surgery, though I'm still hopeful that I won't need them.

How are you?

Hey---so sorry I'm just now getting your reply.  I'm sorry you are in the same boat as me, but I'm glad at least we have another person to talk to about it.  My doctor said that only 6 or 7 people nationwide are diagnosed with this specific type every year.  We are doing the "watchful waiting" approach as well, but it is definitely nerve racking.  Where are you located?  I know some doctors don't recommend the "watchful waiting" that we are doing, but my doctor agreed that chemo doesn't affect our type of cancer, and I got a second opinion from Dr. Gershenson at MDAnderson who said the same (relief).  My doctor at UNC-CH recommended chemo, but we opted not to do so. 

How is everything going now?  Sorry to hear about the cells in your pap--I hope everything goes well.  Please keep me updated, and I will do the same with you.