Bone marrow transplant caregiver
I would live some common stories or experiences to know I am not crazy!
Comments
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I totally get you
Shannon,
I got married in May and in July found out my new husband has Stage IV BOT cancer. He is in treatments, but things are not going according to the rule book. He has been hospitalized multiple times and has high calcium levels. He eats from a PEG tube and I have trouble getting him to turn it on to take his meds and food. He sleeps all the time and I have to worry about everything involved in his treatment, my job (which I took a medical leave from, but they still are putting pressure on me) and life in general. I have always been seen as the strong one, but now I feel so weak and helpless. I want to scream out why me? I know it's not his fault, but this is not how I wanted to spend our first holiday together. That and the fact that I might not have a second set of holidays with him terrifies me.0 -
My hub had an autologous
My hub had an autologous bone marrow transplant. These are easier than the donor ones. It knocked him out for a while and it took more than a year for his counts to come to WNL, within normal limits. His hair fell out and his tastebuds were gone for months. I still have to give him his meds, his diagnosis was PCNSL. But his BMT has kept him cancer-free since 7/7/10!!!!
Let me know how you are doing. It is a rough road but so worth it!0 -
we will have to have a BMTleprechaun2 said:My hub had an autologous
My hub had an autologous bone marrow transplant. These are easier than the donor ones. It knocked him out for a while and it took more than a year for his counts to come to WNL, within normal limits. His hair fell out and his tastebuds were gone for months. I still have to give him his meds, his diagnosis was PCNSL. But his BMT has kept him cancer-free since 7/7/10!!!!
Let me know how you are doing. It is a rough road but so worth it!
My husband was diagnosed with primary plasma cell leukemia on 11/26. He has been in the hospital since that day. We got word today that he will most likely have to go to a long term treatment facility because he needs so much care. The doctors are saying with treatment he may live several months. That is not comforting.0 -
So sorry that you both areVivianLee5689 said:we will have to have a BMT
My husband was diagnosed with primary plasma cell leukemia on 11/26. He has been in the hospital since that day. We got word today that he will most likely have to go to a long term treatment facility because he needs so much care. The doctors are saying with treatment he may live several months. That is not comforting.
So sorry that you both are in such pain. You are in my prayers.0
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