A New Journey Has Begun

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Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #22
    Hi Rob
    I am a bit late, but welcome to the board.

    By the way, don't forget to email me your mailing name and address if you are still interested in participating in the card list. Either use the email function on this site or send to csncardmail@yahoo.com.

    May your future be bright and long,

    Marie who loves kitties
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #23
    Diagnosis
    You are one of the most fortunate to only have found it at stage 1 so at that stage most oncologists wouldn't recommend treatment. Just keep up with the regular visits with doctors and their recommended tests and good luck in the future.

    Kim
  • Rob65
    Rob65 Member Posts: 16
    #24
    danker said:

    Rob
    I had stage 2 rectal cancer. Resection with iliostomy. After reversal, developed a fistula which healed it self. Colonospcopy after 1 yr
    showed NED. Been NED ever since(17 more months) Good luck to you. Other than for various tests, You are probably cancerfree forever!!!

    Thank You
    Hi Danker,

    Thank you very much for your words of encouragement. It is great news that you have been NED for such a long time. It certainly makes me feel optimistic about things and I hope that I am cancer free forever.

    Sincerely,
    Rob
  • Rob65
    Rob65 Member Posts: 16
    #25
    joemetz said:

    hello
    Greeting Rob!

    welcome to the CSN board. Sorry of your cancer news, but I am so happy to hear that you caught this at stage 1. that is great news.

    stay on top of this and be sure to never miss those check ups, blood work or anything else.

    did they do a CEA blood test on you?
    What was that level.

    Prayers your way from Toledo, Ohio!

    Joe

    Thank You
    Hi Joe,

    Thank you for your prayers and kind welcome. The support that I have received here has been wonderful. Yes, I am very fortunate to have caught this at Stage 1. I will make sure to put in place a rigorous surveillance treatment plan and keep an eye on things. I know that I had blood work conducted and different times (just prior to surgery and after). I am not sure about a CEA blood test but would like to assume that it was part of the blood work test(s). I will follow up with this.

    Many thanks,
    Rob
  • Rob65
    Rob65 Member Posts: 16
    #26
    tachilders said:

    At MINIMUM, I would get a
    At MINIMUM, I would get a second opinion, and maybe a third or fourth. You need to be your own health advocate, and not rely on just one doctor's opinion, based on my experience. I am stage 4, so I have a very different situation than you, but still recommend that you make sure you are 100% comfortable with the doctors' advice.

    Tedd

    Thank You
    Hi Tedd,

    Thank you very much for the advice. I will certainly ask alot of questions and seek other opinions. If there is one thing that I have learned through all of this is not to procrastinate and to be more proactive when it comes to my health.

    Cheers,
    Rob
  • Rob65
    Rob65 Member Posts: 16
    #27
    Annabelle41415 said:

    Diagnosis
    You are one of the most fortunate to only have found it at stage 1 so at that stage most oncologists wouldn't recommend treatment. Just keep up with the regular visits with doctors and their recommended tests and good luck in the future.

    Kim

    Thank You
    HI Kim,

    Thank you very much for your advice and well wishes. I am very fortunate to have caught this at Stage 1 indeed. I will put in place a rigorous surveillance treatment plan and keep an eye on things over the coming years. If there is one thing that I have learned from this is not to procrastinate when it comes to my health.

    Regards,
    Rob
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #28
    welcome rob
    sorry you found us, but now you are here, you can at least here some amazing stories from some very caring and experienced survivors and carers. i am from sydney but am in germany getting some personalised non standard treatments involving a mix of conventional, alternative and biological medicine.

    as i cannot give advice, but what i would do if i was in a similar position is have an rgcc molecular test and then if the level of ctc's were not very low i would fly over to germany and have some treatments aimed at boosting the immune system and having a dendretic cell vaccine made. to my knowledge and research this is the state of the art preventitive but of course unproven and not accepted or recommended by mainstream oncology at this point. why even in australia they still don't recommend exercise and diet of recurrence risk prevention tools. but you can do far more than these actions and of course tcm is worth a look.

    the risk approx 15-30% i think most of us run post surgery is peritoneal seeding, that happened in my case i suspect, so about a year post surgery i had a rise in the blood test. stage 4 is not fun. to be honest with what i have learned about how persistent recurrent disease is i would be over here having my immune system trained.

    the greatest disabler of our immune system is stress, so i firstly would relax and do some research in the areas that seem right for you.

    welcome to the csn family. pm me if you got specific queries.

    hugs,
    pete

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