New here and surgery is Nov 6th :-) !!

Bubbs21 · November 2012

RichardB63 said:
Wind in your face
Praying everything goes well, and that you are riding soon;-). When the weather permits...

Richard
I will be thinking of you tomorrow and sending positive thoughts / energy. Good luck and Godspeed.

Bubbs

Bubbs21 · November 2012

garym said:
To Richard and Bubbs...
You guys are well prepared and you know the drill. As far as the surgery goes, you won't remember a thing other than maybe being rolled into the O.R. Once its over you will wake up in the recovery area where they will start work on pain management, rest, and getting you on your way toward going home. Two things that can't be stressed enough IMO are walking and water. Walk as much and as often as you can and drink plenty of water, both are very beneficial to the recovery process. Soon all of this will be behind you and you can look forward to the next several decades of life's little twists and turns. You are in my thoughts and prayers.

Good luck and Godspeed,

Gary

Thanks Gary and gang
Yes....we are prepared and know the drill, due to the selfless sharing and support of Gary, Fox, Iceman, TW, Alice, Tom/Holly and others.

Thanks to all for the prayers, and everyone here is definitely an angel and deserving of having your own prayers answered.

Gary,
Thanks for the info on the 2W's - water and walking. I am ready to get this over with and move on.....

Have a good week everyone.

Bubbs21 · November 2012

garym said:
To Richard and Bubbs...
You guys are well prepared and you know the drill. As far as the surgery goes, you won't remember a thing other than maybe being rolled into the O.R. Once its over you will wake up in the recovery area where they will start work on pain management, rest, and getting you on your way toward going home. Two things that can't be stressed enough IMO are walking and water. Walk as much and as often as you can and drink plenty of water, both are very beneficial to the recovery process. Soon all of this will be behind you and you can look forward to the next several decades of life's little twists and turns. You are in my thoughts and prayers.

Good luck and Godspeed,

Gary

Thanks Gary and gang
Yes....we are prepared and know the drill, due to the selfless sharing and support of Gary, Fox, Iceman, TW, Alice, Tom/Holly and others.

Thanks to all for the prayers, and everyone here is definitely an angel and deserving of having your own prayers answered.

Gary,
Thanks for the info on the 2W's - water and walking. I am ready to get this over with and move on.....

Have a good week everyone.

RichardB63 · November 2012

Raine22 said:
Big day tomorrow!
Just to wish you luck and to let you know you will be in my prayers!!! You will be home recovering before you know it!

My Dr. is not Dr. Wood, but Dr. Wood is the chairperson of the clinical study I am in.

Have plenty of hard pillows to hold against your belly when you need to cough, bend - it helps tremendously to hold them close to you.

Good luck, Lorraine

The nurse told me that's who she would use;-)
Thanks for all of the good advice, this board is a Godsend.... A friend just told me about the pillow after you Lorraine. Water and walking also great advice...
Thanks everyone for all of the support and wisdom, my prayer's will definetly be with each and every one..

Thanks Richard

RichardB63 · November 2012

Bubbs21 said:
Thanks Gary and gang
Yes....we are prepared and know the drill, due to the selfless sharing and support of Gary, Fox, Iceman, TW, Alice, Tom/Holly and others.

Thanks to all for the prayers, and everyone here is definitely an angel and deserving of having your own prayers answered.

Gary,
Thanks for the info on the 2W's - water and walking. I am ready to get this over with and move on.....

Have a good week everyone.

Good luck and my prayers are with you
Prayers to you Bubbs.... we will be talking on here soon :-)

Richard the pillow also

foxhd · November 2012

RichardB63 said:
The nurse told me that's who she would use;-)
Thanks for all of the good advice, this board is a Godsend.... A friend just told me about the pillow after you Lorraine. Water and walking also great advice...
Thanks everyone for all of the support and wisdom, my prayer's will definetly be with each and every one..

Thanks Richard

Do Good!
Good luck you guys! Your success is our success. I hope you tolerate this treatment so well that you wonder what the big deal is. Boldly go where you've never been before. Remember the side effects are temporary.

RichardB63 · November 2012

foxhd said:
Do Good!
Good luck you guys! Your success is our success. I hope you tolerate this treatment so well that you wonder what the big deal is. Boldly go where you've never been before. Remember the side effects are temporary.

Thanks again!
This thread and others are very helpful, I printed the questions from the other thread for post op question. I believe they will be a big help.

Richard

Bubbs21 · November 2012

RichardB63 said:
Thanks again!
This thread and others are very helpful, I printed the questions from the other thread for post op question. I believe they will be a big help.

Richard

Well the deed is done. Got a
Well the deed is done. Got a room with a beautiful view and room service for a few days. Feeling good and fortunate.

Thanks to all for your support and advice that enabled yesterday to go by without any anxiety.

Cheers for now. I got some resting to do.

Bubbs

Moraboy · November 2012

Bubbs21 said:
Well the deed is done. Got a
Well the deed is done. Got a room with a beautiful view and room service for a few days. Feeling good and fortunate.

Thanks to all for your support and advice that enabled yesterday to go by without any anxiety.

Cheers for now. I got some resting to do.

Bubbs

New to the club!
I'm a 49 year old male that was diagnosed on Aug. 15th, two days before classes were to begin at the university that I teach at. I must say it was a shock. Like many of the story I hear, mine RCC was discovered by a fluke. I had a cough and went to my GP, he did a chest xray, saw something he didn't like ordered a CT for the next day. Hey what did they find a 15cm x15cm mass where my right kidney used to be, oh the lung had a 3.5cm mass too. My lucky day. After a consult with a local urologist it was biopsy time both for the kidney mass and the lung mass, both came back positive for clear cell RCC stage 4. The next day it was to the oncologist that agreed we needed to do something and start it fast. She contacted MD Anderson and away we went to Houston for a consult and 2nd opinion. A full CT scan there reveled mets in my liver and lymp nodes as well. They agreed that the first thing they had to do was to try and slow down the lung mass and try to stop more mets from developing. The kidney will just have to wait a few more months before it can come out.

So now I'm on Votrient 800mg a day. I'm doing OK on it, very few side effects, except lose of taste, white and thinning hair and a face that has grown twice the size as it was before. I'm back teaching a few classes a week at the University, the fatigue and lack of breath is the worst. A scan is scheduled for the 19th of Nov. and a Onc. appointment on the Wednesday before Thanksgiving, lets hope those masses have shrunk.

I've enjoyed reading about each of you, it really helps to know others stories and how life can continue with RCC.

Steve

Texas_wedge · November 2012

Moraboy said:
New to the club!
I'm a 49 year old male that was diagnosed on Aug. 15th, two days before classes were to begin at the university that I teach at. I must say it was a shock. Like many of the story I hear, mine RCC was discovered by a fluke. I had a cough and went to my GP, he did a chest xray, saw something he didn't like ordered a CT for the next day. Hey what did they find a 15cm x15cm mass where my right kidney used to be, oh the lung had a 3.5cm mass too. My lucky day. After a consult with a local urologist it was biopsy time both for the kidney mass and the lung mass, both came back positive for clear cell RCC stage 4. The next day it was to the oncologist that agreed we needed to do something and start it fast. She contacted MD Anderson and away we went to Houston for a consult and 2nd opinion. A full CT scan there reveled mets in my liver and lymp nodes as well. They agreed that the first thing they had to do was to try and slow down the lung mass and try to stop more mets from developing. The kidney will just have to wait a few more months before it can come out.

So now I'm on Votrient 800mg a day. I'm doing OK on it, very few side effects, except lose of taste, white and thinning hair and a face that has grown twice the size as it was before. I'm back teaching a few classes a week at the University, the fatigue and lack of breath is the worst. A scan is scheduled for the 19th of Nov. and a Onc. appointment on the Wednesday before Thanksgiving, lets hope those masses have shrunk.

I've enjoyed reading about each of you, it really helps to know others stories and how life can continue with RCC.

Steve

Actionman
Steve, is "Moraboy" a wry piece of academic humour? (sorry, humor, for you guys?). It sounds to me as if you acted about as fast as one could and then got a plan into place double-quick too. Well done for all of that, especially since you seem to have suddenly acquired much more to think about than most people ever have to deal with!

Could you maybe fill out your profile just a bit more? What Fuhrman grade is your clear cell RCC; any signs of necrosis or sarcomatoid change? What do you teach? Any familial cancer history? Married, children?

I'll be wanting to compare notes with you soon - I reviewed my situation on the 'phone with my onc this afternoon and we decided I'll start on Votrient tomorrow. Like you, I had a swift change of fortune. After haematuria following a golf game last year I assumed I might have cancer somewhere in my urinary tract; had a number of unkind all-clears from initial investigations before a CT revealed stage 4 grade 4. Had a nephrectomy last Dec., immediate recurrence, another op, declared N(V)ED then another immediate recurrence + additional mets, hoped for a third op but was told it's too late now and went from 'cured' to totally incurable in a matter of a few weeks.

Still, bridges are there to be crossed when we come to them, aren't they? I'm off for a session of rowing before dinner but will doubtless talk to you again before long.

RichardB63 · November 2012

Texas_wedge said:
Actionman
Steve, is "Moraboy" a wry piece of academic humour? (sorry, humor, for you guys?). It sounds to me as if you acted about as fast as one could and then got a plan into place double-quick too. Well done for all of that, especially since you seem to have suddenly acquired much more to think about than most people ever have to deal with!

Could you maybe fill out your profile just a bit more? What Fuhrman grade is your clear cell RCC; any signs of necrosis or sarcomatoid change? What do you teach? Any familial cancer history? Married, children?

I'll be wanting to compare notes with you soon - I reviewed my situation on the 'phone with my onc this afternoon and we decided I'll start on Votrient tomorrow. Like you, I had a swift change of fortune. After haematuria following a golf game last year I assumed I might have cancer somewhere in my urinary tract; had a number of unkind all-clears from initial investigations before a CT revealed stage 4 grade 4. Had a nephrectomy last Dec., immediate recurrence, another op, declared N(V)ED then another immediate recurrence + additional mets, hoped for a third op but was told it's too late now and went from 'cured' to totally incurable in a matter of a few weeks.

Still, bridges are there to be crossed when we come to them, aren't they? I'm off for a session of rowing before dinner but will doubtless talk to you again before long.