The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Histology and progress

steved
steved CSN Member Posts: 834 Member
in Colorectal Cancer #1
Thought I'd pst a brief update now it is three weeks since my hind quarter amputatation and pelvic clearance for my recurrence of rectal cancer. Histology has come back showing they got clear margins which is great as would have been all for nothing without that. Will start scanning in three months and will be probably offered another round of chemo though cant face that thought at present.

Progress otherwise slow but steady. Colostomy slowed and functioning better and urostomy healing well. The big flap of thigh muscle they used to fill g is healing though has opened in one area so will be a slow process. Still have the sensation of my amputated leg being there but not a lot of what they call phantom pain in that limb so far which is good. Mobility improving and can now do some distance slowly on crutches. Functioning still poor- cant wash or shower properly yet and not worked on how to do tasks one legged but sure that will come.

Team starting discharge planning but need to get some things done at home- wet room, stair lift, ramp- and feel can be a bit more independent before I head there. Considering they said I would be in for 4-40 weeks though I am overall pleased with progress. Has been a huge exercise for the hospital that has included loads of surgeons including the chap flown out from Denmark, there is a debriefing happening next week to look at what has been learnt etc and they have asked me to meet with involved managers for their learning so there is an interesting wider process happening that I hope benefits others down the track.

Anyway that is me for now. Lunch then physio then sleep is my afternoon. Hope all are doing their best to stay well- am watching posts even if not contributing much at present.

Thanks for all the support, hope and prayers,

Steve
Like Care

Comments

  • Lovekitties
    Lovekitties CSN Member Posts: 3,364 Member
    #2
    Dear Steve
    Thank you very much for using some of your precious energy to stop by and give us an update.

    It is wonderful to hear that your progress is good and you are looking a heading home in the near future.

    Your decisions and experience are invaluable to the medical world of cancer. It is an honor to "know" someone like you.

    Take care and continue the good progress.

    Hugs and love to you and the family,

    Marie who loves kitties
    Like Care
  • Jaylo969
    Jaylo969 CSN Member Posts: 824 Member
    #3
    Lovekitties said:

    Dear Steve
    Thank you very much for using some of your precious energy to stop by and give us an update.

    It is wonderful to hear that your progress is good and you are looking a heading home in the near future.

    Your decisions and experience are invaluable to the medical world of cancer. It is an honor to "know" someone like you.

    Take care and continue the good progress.

    Hugs and love to you and the family,

    Marie who loves kitties

    great news
    Thank you for checking in Steve. We are all thinking of you and hoping that recovery continues to be good

    Hugs to you and your sweet family.

    -Pat
    Like Care
  • smokeyjoe
    smokeyjoe CSN Member Posts: 1,425 Member
    #4
    Jaylo969 said:

    great news
    Thank you for checking in Steve. We are all thinking of you and hoping that recovery continues to be good

    Hugs to you and your sweet family.

    -Pat

    CContinued well wishes for
    CContinued well wishes for your recovery Steve. Great to see you posting.
    Like Care
  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #5
    Simply Great News!
    You've sure exceeded expectations, Steve - way to go. While it sounds like there will be much to accomplish, it sounds like you've already accomplished a great deal. It will be an exciting time working with the medical folks documenting your story for the annals of modern medicine.

    You've raised the bar to unprecendented heights - and we thank you for that.

    "Get Well Soon."

    -Craig
    Like Care
  • YoVita
    YoVita CSN Member Posts: 590 Member
    #6
    Thanks for the update
    It's good to hear from you. Thank you for taking the energy to update our group. Glad to hear you're progressing. Must be rewarding to know you're helping others to come with your cutting edge procedures. My best to you in your continuing recovery.
    Like Care
  • Doc_Hawk
    Doc_Hawk CSN Member Posts: 685
    #7
    From the source
    Steve, it's so good to hear from you directly. It sounds like your recovery is going amazingly well. Keep up the good work and attitude!
    Like Care
  • janderson1964
    janderson1964 CSN Member Posts: 2,215 Member
    #8
    Thank you gor the update
    Thank you gor the update Steve. You are in my thoughts and prayers each and every day.
    Like Care
  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    #9
    I am totally amazed that they are already talking discharge!
    What a testament to your strength and fortitude. You've got a big fan base here in the States (and elsewhere in the world...don't mean to be all American-centric), and we're all rooting for you! Many hugs~Ann Alexandria
    Like Care
  • janie1
    janie1 CSN Member Posts: 753 Member
    #10
    janderson1964 said:

    Thank you gor the update
    Thank you gor the update Steve. You are in my thoughts and prayers each and every day.

    Yay!
    Steve, the days may seem long, but in adding up all those days.....the progress from where you "were" just seems remarkable.
    Praying each and every day for you and your family.
    Like Care
  • Calluna
    Calluna CSN Member Posts: 7
    #11
    Clear margins!
    That's fantastic! I'm so happy for you - and it sounds like you're recovering at a great rate of knots, which is amazing. I almost never post here but your story really does seem to drag me out of the woodwork - maybe it's the Antipodean connection :)

    I just wanted to add, as someone who works in health care (albeit the mental health side of things), that I am so pleased to hear that they're closing the loop and making a real effort to learn a lot from this. I hope your actions are paving the way to offering real hope to others. What an absolutel phenomenal legacy!
    Like Care
  • Cathleen Mary
    Cathleen Mary CSN Member Posts: 827 Member
    #12
    Calluna said:

    Clear margins!
    That's fantastic! I'm so happy for you - and it sounds like you're recovering at a great rate of knots, which is amazing. I almost never post here but your story really does seem to drag me out of the woodwork - maybe it's the Antipodean connection :)

    I just wanted to add, as someone who works in health care (albeit the mental health side of things), that I am so pleased to hear that they're closing the loop and making a real effort to learn a lot from this. I hope your actions are paving the way to offering real hope to others. What an absolutel phenomenal legacy!

    Steve

    Thanks so much for posting. All of our spirits are lifted by your good news. I can only imagine that this part of your recovery requires much patience..unfortunately, I don't have any to give you :) but will certainly hope that you have an abundance. Your attitude is amazing. You reside in our hearts as you move toward wellness...be gentle with yourself.
    Hugs,
    Cathleen Mary
    Like Care
  • Momof2plusteentwins
    Momof2plusteentwins CSN Member Posts: 509 Member
    #13
    Steve
    So glad you are doing so well. Your positive attitude and family will take you far.
    Sandy :)
    Like Care
  • SharonVegas
    SharonVegas CSN Member Posts: 189
    #14
    Steve,
    Thanks so much for
    Steve,
    Thanks so much for sharing. Great to read your progress notes. Sending healing prayers your way!
    Ron
    Like Care
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #15
    SharonVegas said:

    Steve,
    Thanks so much for
    Steve,
    Thanks so much for sharing. Great to read your progress notes. Sending healing prayers your way!
    Ron

    Inspirational !
    Sending prayers and hugs my friend!
    Like Care
  • steveandnat
    steveandnat CSN Member Posts: 886
    #16
    You are the best
    Thanks for the update. You are doing great and give me so much encouragement to keep fighting every day. I praying your recovery continues as smoothly as possible. Jeff
    Like Care
  • k44454445
    k44454445 CSN Member Posts: 494
    #17
    wonderful
    news! just want you to know i think you are a very strong man & that i pray every nite for you!
    hugs
    judy
    Like Care
  • Patteee
    Patteee CSN Member Posts: 945
    #18
    Steve- so glad things are
    Steve- so glad things are going well! Clear margins is a huge, huge deal!!!!!!!!!!! yeahhhhhhhhhh take it a day, or step at a time. Lots to do before you get to the point of doing what you want! You will get there!
    Like Care
  • Vickilg
    Vickilg CSN Member Posts: 281 Member
    #19
    Patteee said:

    Steve- so glad things are
    Steve- so glad things are going well! Clear margins is a huge, huge deal!!!!!!!!!!! yeahhhhhhhhhh take it a day, or step at a time. Lots to do before you get to the point of doing what you want! You will get there!

    Steve - Way To Go
    Hi, Steve! You sound like you are in a good place. May God bless you and your family. Sounds like you are one strong person!

    Vicki
    Like Care

Discussion Boards