Deported
Have a good evening and I hope that everyone is well,
Paul
Comments
-
Lucky
My onco told me a few weeks ago when I asked about de-porting, she wants me to keep it another year..while I don't mind it and it doesn't bother me, it's just the dang fact I have to remember to go every 6 weeks to have it flushed.
Congrats on the de-portation.
Linda0 -
I Feel Ya....osmotar said:Lucky
My onco told me a few weeks ago when I asked about de-porting, she wants me to keep it another year..while I don't mind it and it doesn't bother me, it's just the dang fact I have to remember to go every 6 weeks to have it flushed.
Congrats on the de-portation.
Linda
Both of you....
JG0 -
put it in the prize box at the elementary school .class.CivilMatt said:used PORT for sale
Hi Paul,
Nice job, now somebody that needs it can use it.
Best,
Matt
you can only relate to taht if you have kids or great kids in school that age ..:):):)
Better yet, slip it in when nobody is looking....boo hahahhahaha.
Tim0 -
Deported too - on an emergency basis
I too have been freed from the port, though not for the best of reasons.
Just after rads finished I noticed that the right side of my neck was very swollen and the large muscle that runs on the side of the neck was very sore. My rad onc did not seem concerned and said that it bore watching. Fast forward 5 weeks with no improvement so my wife said "isn't there something we can do?"
RO ordered an ultrasound and they discovered that the catheter from the port had caused a serious blood clot in my right jugular!
Panic seemed to set in amongst the health care staff. I was told that this was life threatening (what a rush) and put on an injected anti coagulant. I have never had a problem with shots, blood draws, IV's etc, but it is decidedly creepy to stick yourself with a needle.
They did an emergency removal of the port the following Monday and with the anti coagulants it took a while for the bruising to go down, but subside it did.
So, the good news, no port, and the clot is shrinking, the bad news, check your port and central venous catheters, any odd swelling or pain may be a clot. It is allegedly rare as a complication, but if you have it, insist on getting an answer!
Still, it is nice to have one less bump on my chest, now if I can just convince them to take out the PEG I'll finally be able to sleep on my stomach again!
Peter0 -
Deported too - on an emergency basis
I too have been freed from the port, though not for the best of reasons.
Just after rads finished I noticed that the right side of my neck was very swollen and the large muscle that runs on the side of the neck was very sore. My rad onc did not seem concerned and said that it bore watching. Fast forward 5 weeks with no improvement so my wife said "isn't there something we can do?"
RO ordered an ultrasound and they discovered that the catheter from the port had caused a serious blood clot in my right jugular!
Panic seemed to set in amongst the health care staff. I was told that this was life threatening (what a rush) and put on an injected anti coagulant. I have never had a problem with shots, blood draws, IV's etc, but it is decidedly creepy to stick yourself with a needle.
They did an emergency removal of the port the following Monday and with the anti coagulants it took a while for the bruising to go down, but subside it did.
So, the good news, no port, and the clot is shrinking, the bad news, check your port and central venous catheters, any odd swelling or pain may be a clot. It is allegedly rare as a complication, but if you have it, insist on getting an answer!
Still, it is nice to have one less bump on my chest, now if I can just convince them to take out the PEG I'll finally be able to sleep on my stomach again!
Peter0 -
?CivilMatt said:used PORT for sale
Hi Paul,
Nice job, now somebody that needs it can use it.
Best,
Matt
Matt,
Do they really use "rebuilt" ports?0 -
You're o.k. now?yensid683 said:Deported too - on an emergency basis
I too have been freed from the port, though not for the best of reasons.
Just after rads finished I noticed that the right side of my neck was very swollen and the large muscle that runs on the side of the neck was very sore. My rad onc did not seem concerned and said that it bore watching. Fast forward 5 weeks with no improvement so my wife said "isn't there something we can do?"
RO ordered an ultrasound and they discovered that the catheter from the port had caused a serious blood clot in my right jugular!
Panic seemed to set in amongst the health care staff. I was told that this was life threatening (what a rush) and put on an injected anti coagulant. I have never had a problem with shots, blood draws, IV's etc, but it is decidedly creepy to stick yourself with a needle.
They did an emergency removal of the port the following Monday and with the anti coagulants it took a while for the bruising to go down, but subside it did.
So, the good news, no port, and the clot is shrinking, the bad news, check your port and central venous catheters, any odd swelling or pain may be a clot. It is allegedly rare as a complication, but if you have it, insist on getting an answer!
Still, it is nice to have one less bump on my chest, now if I can just convince them to take out the PEG I'll finally be able to sleep on my stomach again!
Peter
Peter,
Yeah, the surgeon who took mine out said that she likes to take them out as soon as possible for that very reason (to avoid possible serious complications such as those you experienced, etc.). Sorry that you had to go through all of that. You o.k. now?
Take care,
Paul0 -
Tim,Tim6003 said:put it in the prize box at the elementary school .class.
you can only relate to taht if you have kids or great kids in school that age ..:):):)
Better yet, slip it in when nobody is looking....boo hahahhahaha.
Tim
That's just so wrong on
Tim,
That's just so wrong on so many different levels! EWWWWWWWWWWWWWW! !0 -
-
A qualified 'yes'Paintslinger said:You're o.k. now?
Peter,
Yeah, the surgeon who took mine out said that she likes to take them out as soon as possible for that very reason (to avoid possible serious complications such as those you experienced, etc.). Sorry that you had to go through all of that. You o.k. now?
Take care,
Paul
I thought so until my last visit with the oncologist that had it put in. I was surprised to hear her say that this was still a life threatening issue, even after several weeks of anti coagulant therapy and improvement in the symptoms.
Swelling is down, less pain, and feeling the side of the neck, there is only a small bump. It was equally depressing to hear that this might be a life long thing too.
I was amazed to find that NO WHERE was there any mention of a clot risk in any of the literature that came with my port, nor was there any mention on the manufacturer's web site.
I was able to find several studies about port clot risk and it averages about 4 to 5 percent of all patients studied. More surprising was the analysis of intra jugular thrombosis. Of all causes, central venous catheterization accounts for over 40 percent of all clots, the largest single causitive agent. Seems to me that with all the cautions and side effect announcements for medications, that this should have had at least some mention of the risk.
So, yes, I'm okay, I have to take my med and be careful not to do something to break off a piece of the existing clot and cause a pulmonary embolism, but so far, so good.0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards