FINALLY HAVE A DIAGNOSIS AND PLAN

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  • hwt
    hwt Member Posts: 2,328 Member
    #22
    osmotar said:

    Similar
    I had what you refer to the "man purse", your a bit more polite than what I called the 5fu beast that I had to wear from my monday all day treatment to friday, I could'nt wait for 2pm on fridays to have the beast removed. It wasn't the chemo it was the inconvience in having to sleep , drive, etc with that thing on.

    Sounds like they have a plan of attack for you,best of the best of my mojo coming your way.

    Linda

    Plan
    Mike,
    So happy to hear that you have a plan and options. I have been away from the site but saw your post that you are in Eureka. Are you using St John's? I am in Creve Coeur, had my surgery at big Barnes, tx at Barnes West and currently neck massage therapy at Mo Bapt. otherwise spending my time at St Lukes with my Mother(87) they found an ulcer and biopsy was malignant. Maybe found incidental to what brought her to St Lukes. At age 87, I think we would have been better off not knowing. When the ONC mentioned radiation as an option if worsened, I burst into tears. I would not dream of putting my Mother through that. She's 87 and frail, subject just still too raw for me even though I know rad of stomach different from H&N. Thoughts & prayers are with you. My cousin did a trial at St Johns 8 years ago after he was told to get his affairs in order due to mets melanoma...8 years later still NED!
    Candi
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #23
    hwt said:

    Plan
    Mike,
    So happy to hear that you have a plan and options. I have been away from the site but saw your post that you are in Eureka. Are you using St John's? I am in Creve Coeur, had my surgery at big Barnes, tx at Barnes West and currently neck massage therapy at Mo Bapt. otherwise spending my time at St Lukes with my Mother(87) they found an ulcer and biopsy was malignant. Maybe found incidental to what brought her to St Lukes. At age 87, I think we would have been better off not knowing. When the ONC mentioned radiation as an option if worsened, I burst into tears. I would not dream of putting my Mother through that. She's 87 and frail, subject just still too raw for me even though I know rad of stomach different from H&N. Thoughts & prayers are with you. My cousin did a trial at St Johns 8 years ago after he was told to get his affairs in order due to mets melanoma...8 years later still NED!
    Candi

    TREATMENT
    I am have been and continue to have all of my treatment at Siteman Cancer Center / Barnes Hospital. My wife works at St. Louis Children's Hospital and our medical insurance is through BJC. We love the folks at Siteman, and so far so good with my treatment outcomes.

    Mike
  • hwt
    hwt Member Posts: 2,328 Member
    #24
    luv4lacrosse said:

    TREATMENT
    I am have been and continue to have all of my treatment at Siteman Cancer Center / Barnes Hospital. My wife works at St. Louis Children's Hospital and our medical insurance is through BJC. We love the folks at Siteman, and so far so good with my treatment outcomes.

    Mike

    Siteman
    You are in good hands. They are ranked top 10 in the country. My docs downtown Barnes are Nussenbaum and Diaz.
  • hawk711
    hawk711 Member Posts: 566
    #25
    Mike
    I have a friend who did a clinical trial 7 years ago and he's going strong right now. He told me clinical trials have to be done before processes are approved for actual treatment. I am glad you have a plan and can get going on the cure.
    all the best to you
    Steve
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #26
    FEEL LIKE I AM FINALLY GETTING STARTED
    I had my port placed today and now it finally feels like I am getting started. To make my day even better, my wife and I ran into Greg, (Greg 53) and his wife today. Nothing like getting good mojo face to face.

    Good to see you my friend!!

    Chemo starts on the 24th, so if you have any good luck, mojo, a lucky keychain or something else laying around the house, rub it 3 times and send me some good luck.

    Mike
  • KareGiver
    KareGiver Member Posts: 301 Member
    #27
    luv4lacrosse said:

    FEEL LIKE I AM FINALLY GETTING STARTED
    I had my port placed today and now it finally feels like I am getting started. To make my day even better, my wife and I ran into Greg, (Greg 53) and his wife today. Nothing like getting good mojo face to face.

    Good to see you my friend!!

    Chemo starts on the 24th, so if you have any good luck, mojo, a lucky keychain or something else laying around the house, rub it 3 times and send me some good luck.

    Mike

    Who knew
    that a port would become one of your best friends...when you get those CTs every other treatment, they'll use it too. Thinking of you (and now AdventureBob among others)!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #28
    luv4lacrosse said:

    FEEL LIKE I AM FINALLY GETTING STARTED
    I had my port placed today and now it finally feels like I am getting started. To make my day even better, my wife and I ran into Greg, (Greg 53) and his wife today. Nothing like getting good mojo face to face.

    Good to see you my friend!!

    Chemo starts on the 24th, so if you have any good luck, mojo, a lucky keychain or something else laying around the house, rub it 3 times and send me some good luck.

    Mike

    24th...
    There you go..."good luck" already....

    My birthday is February 24th.....

    Best,
    John
  • Pam M
    Pam M Member Posts: 2,196
    #29
    luv4lacrosse said:

    FEEL LIKE I AM FINALLY GETTING STARTED
    I had my port placed today and now it finally feels like I am getting started. To make my day even better, my wife and I ran into Greg, (Greg 53) and his wife today. Nothing like getting good mojo face to face.

    Good to see you my friend!!

    Chemo starts on the 24th, so if you have any good luck, mojo, a lucky keychain or something else laying around the house, rub it 3 times and send me some good luck.

    Mike

    Rainy Days and Mondays (Old Carpenters Song)
    DON'T get me down - I love rainy days. And I'm glad you crank the fight up a notch starting Monday. I have a hate/love relationship with chemo, but I know the "good" feeling of getting the treatments underway. You know what's next - drink, drink, drink, pack a snack, laptop and reading material, dress warmly, and get ready to jump in with both feet.
  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #30
    Pam M said:

    Rainy Days and Mondays (Old Carpenters Song)
    DON'T get me down - I love rainy days. And I'm glad you crank the fight up a notch starting Monday. I have a hate/love relationship with chemo, but I know the "good" feeling of getting the treatments underway. You know what's next - drink, drink, drink, pack a snack, laptop and reading material, dress warmly, and get ready to jump in with both feet.

    Sending positive thoughts
    I hate that you are having to go through this again, but glad you are getting started and have a plan of attack. I am so impressed with the fighter in you. Kick some cancer bootie.
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #31
    Mike
    Mike, all the mojo I have is coming your way. Keep fighting this thing and stay strong. I'll be keeping you in mind on the 24th. Cheers

    Jimbo
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #32
    luv4lacrosse said:

    FEEL LIKE I AM FINALLY GETTING STARTED
    I had my port placed today and now it finally feels like I am getting started. To make my day even better, my wife and I ran into Greg, (Greg 53) and his wife today. Nothing like getting good mojo face to face.

    Good to see you my friend!!

    Chemo starts on the 24th, so if you have any good luck, mojo, a lucky keychain or something else laying around the house, rub it 3 times and send me some good luck.

    Mike

    More MOJO coming your way.
    Holding good thoughts for you, Mike, today and every day. Especially Monday! Fight on.

    Deb

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