Moving along at a snail's pace!

missrenee
missrenee Member Posts: 2,136 Member
Well, I'm 4 weeks post-op mastectomy and had 3 doctors' appointments this past week. Surgeon said it's going slowly because of the previous rads. The skin around the incision is dark red and very, very tight. I have swelling under the arm on the trunk--probably post-op and lymphedema combo. I had my Faslodex/Zometa treatment last week, so the combo of that with the post-op, brought on a great deal of fatigue. Oncologist is thrilled that we are able to continue the treatment I had been on. Apparently, when my case was presented to the tumor board at the hospital, all the oncologists/surgeons present (over 20) unanimously voted to continue that treatment and not go to chemo because my breast recurrence was so tiny and the bone mets (last time we looked in June on PET) were in remission. That is a blessing. The ONLY reason that tiny tumor was found is because I insisted on breast MRIs (dense breast tissue).

Can't get fitted for a prosthesis for several weeks or put anything tight on that area since the surgeon doesn't want to constrict the blood flow. So, I get to walk around totally lopsided. I'm getting good at layering and long, flowing scarves!

I hope to start PT soon for improvement of range of motion and lymphedema treatment. In the meantime, I'm doing exercises at home to try to stretch out the skin and muscles.

Please, girls with dense breast tissue--insist on MRIs especially if your insurance will cover them.

Thanks to all of you asking about me.

Hugs, Renee

Comments

  • New Flower
    New Flower Member Posts: 4,294
    Thank you for sharing
    Renee,
    Thank you for sharing. I was wondering and thinking about you.
    Congratulations with good pathology report!
    I disscuss your case with my oncologist . While it is a very unique she agree continue with Mamo and MRI.
    I hope you will heal soon and completely recover from mastectomy
    Sending positive thoughts to your way
    Hugs
  • MAJW
    MAJW Member Posts: 2,510 Member

    Thank you for sharing
    Renee,
    Thank you for sharing. I was wondering and thinking about you.
    Congratulations with good pathology report!
    I disscuss your case with my oncologist . While it is a very unique she agree continue with Mamo and MRI.
    I hope you will heal soon and completely recover from mastectomy
    Sending positive thoughts to your way
    Hugs

    Sweet Renee...
    One day at a time.....that's the best we can ask of ourselves, most of the time.....or minute by minute at times...my motto is, what ever it takes to get through the day or night......... You're making strides every day....give yourself time, rest and recoup!

    Wishing you sunshine...
    Big hugs, Nancy
  • debsweb18
    debsweb18 Member Posts: 191 Member
    CORAL
    I looked up CORAL's website and it shows the Phoenix address. However, I just received a statement that has the Scottsdale address. Maybe she moved.? I hope I don't need PT anymore, because I really liked her! Let me know who you end up seeing.

    BTW-I thought you hid your lopsidedness very well!

    When you're ready, if you need someone to go shopping with you, I'll be glad to go!

    Deb
  • debsweb18
    debsweb18 Member Posts: 191 Member
    double post
    Double post
  • MsGebby
    MsGebby Member Posts: 659
    Soooo good
    to hear from you. Looks like things are better....NO???

    Take it slow. Don't push too fast.

    Gawd...I am just so happy to see your post. YAY!

    Keep up informed.

    xoxo
    Mary
  • epark
    epark Member Posts: 339
    MsGebby said:

    Soooo good
    to hear from you. Looks like things are better....NO???

    Take it slow. Don't push too fast.

    Gawd...I am just so happy to see your post. YAY!

    Keep up informed.

    xoxo
    Mary

    Renee.... So glad to hear you had a good pathology report..i will keep youin thoughts and prayers


    Eva