MY FIRST POST ON THIS BOARD

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  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #22
    jimwins said:

    Aches and pains
    Hi Sue,

    I know one (maybe two) of the nurses I had during treatment had been on rituxan.
    I'm sure one was arthritis and the other, an auto-immune disorder I think.

    I'm sorry you're having aches and pains - hopefully it will subside once
    you reach the rituxan finish line! We'll have to have a celebration!

    Hugs,

    Jim

    Ritux for Pain

    Sue,

    I should have mentioned that Rituxan is used only for rheumatoid arthritis, not osteo.

    I am 56, but orthopedicly I suppose I am 100: Eighteen fractures, a compression fracture at T-9 in my back, two collapsed disks, severe arthritis in the spine from the lumbar to the neck, ossification (abnormal bone growth) in the left hip -- I could go on.

    I know your pain, and hope it lightens.

    max
  • Go_go_Gi_gi
    Go_go_Gi_gi Member Posts: 84
    #23
    jimwins said:

    SULEIKA JAOUAD
    Hello everyone. I found these links related to Suleika's story
    in case you're interested:

    5 Days of Chemo


    More and 5 minute video celebrating 100 days since her transplant

    Series of Videos from NY Times

    Hi Nancy welcome

    Welcome to our family forum---this is a great family of support and encouragement, prayers and information----emotional support, and more--even recipes for foods of comfort!!

    I too am on maintenance Rituxan, every 8 weeks, after chemo last year. I too have the aches noted more shortly after treatment---Though, I'll take it if it keeps the NHL at bay!! Next dose Wednesday. Biggest issue seems to be getting the IV started!!!

    Hope your treatments go well--- hugs and prayers and felicitations,

    susan
  • NANCYL1
    NANCYL1 Member Posts: 289
    #24
    Go_go_Gi_gi said:

    Hi Nancy welcome

    Welcome to our family forum---this is a great family of support and encouragement, prayers and information----emotional support, and more--even recipes for foods of comfort!!

    I too am on maintenance Rituxan, every 8 weeks, after chemo last year. I too have the aches noted more shortly after treatment---Though, I'll take it if it keeps the NHL at bay!! Next dose Wednesday. Biggest issue seems to be getting the IV started!!!

    Hope your treatments go well--- hugs and prayers and felicitations,

    susan

    HI SUSAN FROM NANCY

    Susan:

    Thank you for your Welcome! It is great to find people who understand.

    I have B Cell Lymphoma which apparently can be controlled, but not cured. My Rituxan maintenance is every six months for the next 1 1/2 years. Had the first infusions in the Spring; a set of four. I have heard that Rituxan is very new. The lymphoma was discovered in the Spring of this year. No Chemo. Just Rituxan.

    My aches disappeared during the infusions, but came back.

    Hope your treatment goes well, too.

    Nancy
  • Go_go_Gi_gi
    Go_go_Gi_gi Member Posts: 84
    #25
    NANCYL1 said:

    HI SUSAN FROM NANCY

    Susan:

    Thank you for your Welcome! It is great to find people who understand.

    I have B Cell Lymphoma which apparently can be controlled, but not cured. My Rituxan maintenance is every six months for the next 1 1/2 years. Had the first infusions in the Spring; a set of four. I have heard that Rituxan is very new. The lymphoma was discovered in the Spring of this year. No Chemo. Just Rituxan.

    My aches disappeared during the infusions, but came back.

    Hope your treatment goes well, too.

    Nancy

    Treatment went well
    Rituxan infusion last Wed. went well--no problems. Steroid kept me up night after, Thanks for the positive thoughts and encouragement.

    Next follow-up Pet/CT and Oncology visit--1st week Oct. Lookin' for good reports!!! PTL

    Most days I feel normal ---whatever that is?!

    Hugs & Prayer for all--- Susan
  • NANCYL1
    NANCYL1 Member Posts: 289
    #26
    Go_go_Gi_gi said:

    Treatment went well
    Rituxan infusion last Wed. went well--no problems. Steroid kept me up night after, Thanks for the positive thoughts and encouragement.

    Next follow-up Pet/CT and Oncology visit--1st week Oct. Lookin' for good reports!!! PTL

    Most days I feel normal ---whatever that is?!

    Hugs & Prayer for all--- Susan

    NANCY AGAIN
    Hi again Susan:

    Good that Rituxan Wed. went well for you.

    My first infusion last May was without steriods, because I had been "hopped" up in the past from steroids with a CT-Scan. Had bad reaction from Rituxin without steroids. Now: always steroids! Sometimes am talking a mile a minute and feel as if I had a "three martini lunch" after steroids. Have a prescription for Lorazepam.

    Saw Onc. doctor last Friday. Blood test results had improved. Feel somewhat better in the past couple of weeks. You feel "normal" most days? Sounds Good.

    Good luck on your visit with the doctor and Pet/CT-Scans.

    Long-winded,

    Nancy

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