Spine mets & brain mets - how much time is left?
Comments
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Hi
I am so sorry about your
Hi
I am so sorry about your sister. This is such a vicious, ugly beast! In the years I have been on this board, it is rare to see brain mets. Unfortunately those who have had the spread, that the remaining time is short and very little if anything can be done. That being said, I am not a doctor, nor the lord almighty and do not have the ability to know how much time your sister has left. The cancer has spread to her brain, they are sending her home on hospice. They are telling you through just this, that they have done everything they can do and now is the time for rest and peace. If she were my sister, I would be on a plane tomorrow. It just seems like now is the time.
Again, I am sorry. I am sure others will chime in here, we tend to be more active during the day.
Hugs from Minnesota,
Patty0 -
Patty
I don't want to repeat what Pattee said but, I if it were my sister.i would be on that airplane to spend some quality time with her. I am so sorry for what this cancer has done to your sister. Our thoughts are with you.
Winter Marie0 -
sorry yo hear
Like the others have already said I would try to go see your sister as soon as possible. I pray that there will be more that can be done and maybe while your out seeing your sister you can make an appointment to see her Dr and get some answers. Jeff0 -
Brain mets
We are hearing of more of this as people live longer with stage 4 disease and new treatments are eing developed. However,it is incredibly serious and disabling. It is vital in this journey to also know when to focus on aggressive treatment and when to accept that that is no longer the right approach. We all constantly balance the benefits of treatments against the potential side effects and downs sides and it sounds like in this situation the decision has been made that aggressive treatment is not appropriate and that focusing on care and quality of life in the time left is now the focus. It is an incredibly hard shift to make for the patient and for carers but also vital to accept when it is right.
No one can say how long is left- docs can estimate based on their experience but it is little more and than an educated guess. For you and her the focus now though is optimising quality in the remaining time and that should be what is foremost in your mind. There will be a lot of emotions of fear, anger, sadness and even guilt running around especially as carers who live so far away often feel excluded and in soem cases feel quite useless and impotent in these situations. Put all those feelings aside for now as they won't help your sisite. Think about how you can aid her comfort and quality of life and can make some good memories of this time for you and your family.
My thoughts are with you,
steve0 -
Sorry for your sister
I have to echo others, that now is the time to go see your sister. If you are thinking that if you go too early you will not be able to go again if she passes. Better to use your time and resources to be able to spend time with her now.
Unfortunately, treatment of brain mets whether with radiation or cyberknife does not seem to be able to contain the spread there. Even if encapsulated, it may be in a location which is not treatable.
Don't assume that "they have just written her off". There comes a time for all of us when the ability to help extend our life is beyond anyones control.
How much information the family or friends are able to get depends on how your sister filled out the HIPPA form. If she is deemed mental competent, her doctors would go with her wishes on how to proceed.
Yes, attempts at currative care does stop when entering hospice care. It does not however stop her from receiving care by physicians for pain or other issues.
Prayers for your sister and her loved ones as she deals with this stage of her fight.
Marie who loves kitties0 -
ThanksLovekitties said:Sorry for your sister
I have to echo others, that now is the time to go see your sister. If you are thinking that if you go too early you will not be able to go again if she passes. Better to use your time and resources to be able to spend time with her now.
Unfortunately, treatment of brain mets whether with radiation or cyberknife does not seem to be able to contain the spread there. Even if encapsulated, it may be in a location which is not treatable.
Don't assume that "they have just written her off". There comes a time for all of us when the ability to help extend our life is beyond anyones control.
How much information the family or friends are able to get depends on how your sister filled out the HIPPA form. If she is deemed mental competent, her doctors would go with her wishes on how to proceed.
Yes, attempts at currative care does stop when entering hospice care. It does not however stop her from receiving care by physicians for pain or other issues.
Prayers for your sister and her loved ones as she deals with this stage of her fight.
Marie who loves kitties
Thank you all so much for your responses. It was such a shock last night to get the news. I didn't get much sleep last night, but I think I'm processing better this morning. I think heading out now is the best thing to do, too.
Thanks again for your support, your thoughts and your prayers. Wishing you all the best also on your journey with this horrible beast.
BBLady0 -
fly over and give her a hug
so sorry to hear about your sister.
who knows how long ?,
a few have beaten brain mets, but they are exceptional cases, i would prepare for her passing. like steve said, make the most of the time you have left.
hugs,
Pete0 -
fly over and give her a hug
more hugs.
hugs,
Pete0
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