The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Cea's

Hooley
Hooley CSN Member Posts: 156
in Colorectal Cancer #1
Had fortnightly bloods yest. My ceas have been very erratic. When first dx ceas normal. Once started chemo rose to 5. 6. Then 4.8.10. One month ago , after changing from xeloda to irrinotecan rose to 50!! Yesterday went down to 25. Who,knows maybe from having my infrared sauna each day helped get rid off crapy toxins. (course I don't have during chemo). Worst part is the insomnia Still God is good and without my faith I'd feel very alone.
Like Care

Comments

  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,896 Member
    #2
    sorry to hear about cea
    It could be crc die off.
    I wanted to say wel come aboard, I am getting my
    Far infared sauna in a few days.

    Take it easy.

    Hugs,
    Pete
    Like Care
  • k44454445
    k44454445 CSN Member Posts: 494
    #3
    cea
    i hate to hear that you are on a roller coaster ride! hope it is not serious. i have heard of others taking wild rides too. mine even when i was dx stage 3 sigmoid cancer in dec 2010 was 1.6. after i completed chemo july 2011 my cea stayed around 1.3---1.6. then june 2012 it was 10. went for ct & peritoneal biopsy & it was confirmed i have metastatic colon cancer to 2 places in the abd. liver, peritoneal & rt ovary. possible left hip. go figure. how could i have all that cancer & just in feb 2012 the cea was 1.6. take care & keep us posted. hugs
    judy
    Like Care
  • Hooley
    Hooley CSN Member Posts: 156
    #4
    pete43lost_at_sea said:

    sorry to hear about cea
    It could be crc die off.
    I wanted to say wel come aboard, I am getting my
    Far infared sauna in a few days.

    Take it easy.

    Hugs,
    Pete

    Sauna
    Yep I figured nothing to lose. I know Mayo clinic very positive about them. Good luck with yours. Gotta try everything to get rid of these buggers. I'm sure you'll enjoy. God bless
    Like Care
  • Hooley
    Hooley CSN Member Posts: 156
    #5
    k44454445 said:

    cea
    i hate to hear that you are on a roller coaster ride! hope it is not serious. i have heard of others taking wild rides too. mine even when i was dx stage 3 sigmoid cancer in dec 2010 was 1.6. after i completed chemo july 2011 my cea stayed around 1.3---1.6. then june 2012 it was 10. went for ct & peritoneal biopsy & it was confirmed i have metastatic colon cancer to 2 places in the abd. liver, peritoneal & rt ovary. possible left hip. go figure. how could i have all that cancer & just in feb 2012 the cea was 1.6. take care & keep us posted. hugs
    judy

    Hang in there
    I was dx 2010 also. Keep positive. When ur not on chemo do you try change your diet?
    Like Care
  • abackhou
    abackhou CSN Member Posts: 77 Member
    #6
    Getting higher
    Hi, I hope your CEA continues to go downwards. My CEA results were (over 40 months): 9,11,14,17,23,29,54,119,now 249 because of progressive disease. OR could it be my body is getting rid of CRC dead cells!!!! I love to think so. Enjoy your new sauna.

    Best wishes to you…

    Andrew
    Like Care
  • Vickilg
    Vickilg CSN Member Posts: 281 Member
    #7
    ZZZZquil
    Check with your doctor but mine approved the new ZZZZquil made by the makes of Nyquil for sleep.
    Like Care
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #8
    From 50 to 25 ? That's a huge drop !
    It is the 50% and that's a lot I think Irinotecan is working my friend! First test was too early to see the results ( I never have test until 2nd infusion).
    I think things are turning to positive this time!.
    Hugs and good luck!
    Like Care
  • here4lfe
    here4lfe CSN Member Posts: 306 Member
    #9
    Dropping is good
    Let's pray it drops back to normal.

    Best
    Like Care

Discussion Boards