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I love NED!!!

Pattie13
Pattie13 CSN Member Posts: 47
in Anal Cancer #1
Hi All, I haven't posted in a while, but wanted to let you all know, I had my exam under anesthesia on Aug 3rd and he took a couple biopsies. The doctor called me last Tuesday morning and said the biopsies he took on Aug 3rd showed no evidence of disease (NED)... So I am CANCER FREE!!!!!! Yippee.... hard to imagine with a tumor as big as my fist that it is all gone now.... I am sooooooooo relived.
Still trying to find my new normal as there are a couple of foods I have found that I can not eat without causing cramping and diarrhea and he did tell me my hair (that I lost 'down there' with the radiation) may never grow back. Also still trying to regain some of my upper leg muscles. But all in all I think I am doing well. I did loose 30 lbs through the process and have not put any of it back on (would not advice this way to loose weight, but I did need to loose some and need to loose a few more lbs., but will work on that slowly). Will see the Dr again in 3 mths, but won't have another thorough exam for 6 months.
And YES!!!!! I do like chocolate again, after not liking it at going through the chemo and having it wreck havoc with my taste buds.
Hugs to you all.
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Comments

  • z
    z CSN Member Posts: 1,414 Member
    #2
    Patti
    Great news!. I know that it took a good year before my legs regained their strength. One day at a time it gets better. My hair down there grew back, although I wish it wouldn't have. I didn't like any sweets while on chemo, just made me sick. I lost about 20 lbs but have since gained it all back plus some. Thank you for sharing your great news! It gives everyone hope. Lori
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  • z
    z CSN Member Posts: 1,414 Member
    #3
    Patti
    Great news!. I know that it took a good year before my legs regained their strength. One day at a time it gets better. My hair down there grew back, although I wish it wouldn't have. I didn't like any sweets while on chemo, just made me sick. I lost about 20 lbs but have since gained it all back plus some. Thank you for sharing your great news! It gives everyone hope. Lori
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  • z
    z CSN Member Posts: 1,414 Member
    #4
    Pattie
    Great news!. I know that it took a good year before my legs regained their strength. One day at a time it gets better. My hair down there grew back, although I wish it wouldn't have. I didn't like any sweets while on chemo, just made me sick. I lost about 20 lbs but have since gained it all back plus some. Thank you for sharing your great news! It gives everyone hope. Lori
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  • AZANNIE
    AZANNIE CSN Member Posts: 445 Member
    #5
    Pattie
    Congrats on your awesome news! NED is a great friend to have!!! Mine down yonder is very sparse...nothing like getting an expensive Brazilian - lol! And yeah for liking chocolate again! May NED continue to be your friend!!!

    Ann
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  • MyHopen413
    MyHopen413 CSN Member Posts: 38
    #6
    What wonderful news! Only
    What wonderful news! Only part of my hair grew back, which is OK. I lost weight too which I needed to somewhat. It took a couple of months before my appetite came back. I am so happy for you. It took over three months before my hemoglobin came back up and my energy really started coming back.
    Congratulations!
    Diane
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  • rds711
    rds711 CSN Member Posts: 113
    #7
    AWESOME!
    Pattie, what wonderful news! I am so happy for you. I am with you on the chocolate hehe. Do something wonderful for yourself to celebrate

    Randy
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  • mp327
    mp327 CSN Member Posts: 4,440 Member
    #8
    Yay Pattie!
    This is wonderful news and I am so happy for you! I'm glad your recovery is going well. Don't give up on the foods you can not yet eat, as things are still healing. If you can, begin a walking program to strengthen your legs, along with some good stretching to keep your hips as mobile as possible. I hope you like dark chocolate--it has many health benefits, so enjoy! Take care.
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