Invasive Lobular Carcinoma

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  • pinkkari09
    pinkkari09 Member Posts: 877
    #22
    Sorry double post :-(
    :-(
  • trsmith0104
    trsmith0104 Member Posts: 35
    #23
    pinkkari09 said:

    Sorry double post :-(
    :-(

    I'm feeling better after
    I'm feeling better after surgery. I still am the proud owner of a drain and am hoping this will go away soon. My pathology report came back. My lymph nodes were clean, my margins were clean, and my tumor was 3.5cm. This means I am a stage 2. I meet with the Oncologist and Radiologist tomorrow to find out the damages. As each day passes, I am feeling stronger (the surgery really takes it out of you). My arm is now permanently numb underneath, I was told this would be a possibility to occur. I know that time heals all wounds, so surprisingly I look forward to time passing by to get this all over with as quickly as possible.
  • Clementine_P
    Clementine_P Member Posts: 518 Member
    #24
    trsmith0104 said:

    I'm feeling better after
    I'm feeling better after surgery. I still am the proud owner of a drain and am hoping this will go away soon. My pathology report came back. My lymph nodes were clean, my margins were clean, and my tumor was 3.5cm. This means I am a stage 2. I meet with the Oncologist and Radiologist tomorrow to find out the damages. As each day passes, I am feeling stronger (the surgery really takes it out of you). My arm is now permanently numb underneath, I was told this would be a possibility to occur. I know that time heals all wounds, so surprisingly I look forward to time passing by to get this all over with as quickly as possible.

    Glad to hear
    That you are doing well after surgery. Good luck with the oncologist and radiologist.

    Best,
    Clementine
  • Carolw
    Carolw Member Posts: 6
    #25
    trsmith0104 said:

    I'm feeling better after
    I'm feeling better after surgery. I still am the proud owner of a drain and am hoping this will go away soon. My pathology report came back. My lymph nodes were clean, my margins were clean, and my tumor was 3.5cm. This means I am a stage 2. I meet with the Oncologist and Radiologist tomorrow to find out the damages. As each day passes, I am feeling stronger (the surgery really takes it out of you). My arm is now permanently numb underneath, I was told this would be a possibility to occur. I know that time heals all wounds, so surprisingly I look forward to time passing by to get this all over with as quickly as possible.

    It sounds like your results
    It sounds like your results are going to be positive. I also had invasive lobular cancer and also had a lumpectomy. The radiation is not bad at all. The first two weeks, you do not even notice anything. The last two weeks it does get uncomfortable, but not painful and the staff is great about giving you various ointments to alleviate any discomfort. It doesn't sound like you will be getting chemo and that is a good thing. The radiation is for 33 treatments and then it is over. I also have to take arimidex because my cancer was estrogen fed. I am not finding that too difficult either. DOn't read all the blogs on it as most people who post are those with problems and there are thousands who take it and don't have bad side effects. good luck. God bless.
  • trsmith0104
    trsmith0104 Member Posts: 35
    #26
    Carolw said:

    It sounds like your results
    It sounds like your results are going to be positive. I also had invasive lobular cancer and also had a lumpectomy. The radiation is not bad at all. The first two weeks, you do not even notice anything. The last two weeks it does get uncomfortable, but not painful and the staff is great about giving you various ointments to alleviate any discomfort. It doesn't sound like you will be getting chemo and that is a good thing. The radiation is for 33 treatments and then it is over. I also have to take arimidex because my cancer was estrogen fed. I am not finding that too difficult either. DOn't read all the blogs on it as most people who post are those with problems and there are thousands who take it and don't have bad side effects. good luck. God bless.

    Dissecting my Pathology report
    That was exactly my problem. Reading all the blogs. I guess my cancer is IIA, "moderately differentiated". I keep saying in my mind, I know the sucker is going to come back.... Even though my lymph nodes were clean. Scares the hell out of me. Then I read about all the side effects everyone experiences from the Tamoxifen or from the other meds that are out there (I'm oblivious). I just know that I had clean margins, clean nodes, and my grade is IIA and other than that I'm dumber than a box of rocks when it comes to cancer. I am waiting for the Oncotype test to come back. This will tell my oncologist whether or not I need chemo. Pray that I don't. I have read that it wrecks your body....
  • jnl
    jnl Member Posts: 3,869 Member
    #27
    trsmith0104 said:

    Dissecting my Pathology report
    That was exactly my problem. Reading all the blogs. I guess my cancer is IIA, "moderately differentiated". I keep saying in my mind, I know the sucker is going to come back.... Even though my lymph nodes were clean. Scares the hell out of me. Then I read about all the side effects everyone experiences from the Tamoxifen or from the other meds that are out there (I'm oblivious). I just know that I had clean margins, clean nodes, and my grade is IIA and other than that I'm dumber than a box of rocks when it comes to cancer. I am waiting for the Oncotype test to come back. This will tell my oncologist whether or not I need chemo. Pray that I don't. I have read that it wrecks your body....

    Clean margins and clean
    Clean margins and clean nodes is the best news! I will be hoping and praying that your Oncotype test will show that you will not need chemo. When are you suppose to get the results?


    Hugs, Leeza
  • trsmith0104
    trsmith0104 Member Posts: 35
    #28
    jnl said:

    Clean margins and clean
    Clean margins and clean nodes is the best news! I will be hoping and praying that your Oncotype test will show that you will not need chemo. When are you suppose to get the results?


    Hugs, Leeza

    September 12th is my
    September 12th is my Oncotype results. A long time to wait but hopefully it is worth it and I receive good news :)
  • Alexis F
    Alexis F Member Posts: 3,598
    #29
    trsmith0104 said:

    September 12th is my
    September 12th is my Oncotype results. A long time to wait but hopefully it is worth it and I receive good news :)

    Hoping and praying that on
    Hoping and praying that on the 12th, you will hear NO chemo!


    Hugs, Lex
  • Jannybird
    Jannybird Member Posts: 1
    #30
    Hi Tonia-
    I was diagnosed at
    Hi Tonia-

    I was diagnosed at 42 with Stage 3 ILC. Oncologist/Surgeon recommended Chemo/Surgery (bi-lateral mastectomy)/Radiation (in that order). You are going to get through this. My best advice for you is to ALWAYS have someone go with you to all of your Dr appointments for an extra set of ears. The Drs throw so much info at you at it can be very overwhelming. I would find myself completely tuning everything out because it was just too much to handle. Luckily, my husband was with me for every appointment (2 years later, he still never misses one). Have the person that goes with you take notes. My oncologist actually took notes while she would talk to me and give me a copy of the notes which was helpful too.

    Peace-
    Jannybird

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