Pete did you get scan results??
Comments
-
thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete0 -
Pete, that is wonderfulpete43lost_at_sea said:thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete
Pete, that is wonderful news/i am so happy for you. What a roller coaster ride. Enjoy!
Hugs,
Judy0 -
congrats on the cleanpete43lost_at_sea said:thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete
congrats on the clean scan---whew.
I'll toast you with some wheatgrass
Tommycat0 -
thanks judyjjaj133 said:Pete, that is wonderful
Pete, that is wonderful news/i am so happy for you. What a roller coaster ride. Enjoy!
Hugs,
Judy
life is a roller coaster alright. hopefully a nice long ride.
hugs,
pete0 -
thanks tommytommycat said:congrats on the clean
congrats on the clean scan---whew.
I'll toast you with some wheatgrass
Tommycat
i'm up late, off to sleep now. i will toast you in the morning.
have a read of this link if you got time.
http://petertrayhurn.blogspot.com.au/2012/07/my-zinc-difficiency-and-persistant.html
i really think my zinc and thrush issues might be the cause of my inflamation. the above article is pretty detailed but seemed reasonable.
hugs,
pete0 -
Wow! Congrats Pete! Youpete43lost_at_sea said:thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete
Wow! Congrats Pete! You just made my day. :-)
Cyn0 -
thanks cynthiaLivinginNH said:Wow! Congrats Pete! You
Wow! Congrats Pete! You just made my day. :-)
Cyn
its nice help make you smile, its a beautiful planet, its nice to have friends all over it.
hugs,
pete0 -
thanks lindatoyfox said:Great news
Great news....so happy for you Pete
Linda
each test is like roulette, where i keep all the winnings on the table.
i am glad you are happy, i am overjoyed.
hugs,
pete0 -
Dear Petepete43lost_at_sea said:thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete
Wonderful news and so very happy for you.
Hugs,
Marie who loves kitties0 -
Outstanding Pete! We canpete43lost_at_sea said:thanks linda
each test is like roulette, where i keep all the winnings on the table.
i am glad you are happy, i am overjoyed.
hugs,
pete
Outstanding Pete! We can breathe now. Enjoy!!!!!0 -
thanks marieLovekitties said:Dear Pete
Wonderful news and so very happy for you.
Hugs,
Marie who loves kitties
i am happy , and am grateful, but in my heart the power these tests have over me is something i am trying to reduce.
oneday my run of good scan results may end, its ironic that i have had bad cea results.
trying to get my head around what is the best way of dealing with this uncertainty.
love and acceptance is the best way i guess. off to meditate and rest now, i have a chest infection and my weight training today was cancelled.
hugs,
pete0 -
thanks janie and everyonejanie1 said:Outstanding Pete! We can
Outstanding Pete! We can breathe now. Enjoy!!!!!
we can all breathe a relaxing and joyful breathe, not that i have a good scan result, but just that we are all here, sharing our lives and the crazy adventures that only fellow crc travellers could hope to understand.
like my battle with fecal incontinence. well i have added meat back to the diet for a week.
i had 3 great nights in a row, no accidents. what i changed last night was i skipped the enema. i have been doing probiotic and or wheatrass enemas, just before sleep. of course the theory for me was to clean me out to give me a good nights sleep.
our digestive systems are amazingly complex, to think the food we eat has no bearing on our health, on how we cope with this disease, well that attitude is from the dark ages of the early 21st century. just ignore me, going on about food again. who else can i talk to about waking up with nappies. even my six year old has grown out of his, and now here is dad with man nappies. i do look good in my nappy, they are designer.
it is outstanding the result and maybe life has something more for me to achieve beyond a chemo port and a box. i have faith in the healing power of nature, if you read the stuff on my blog about zinc and thrush, you will see that this result gives me another few months to push chelation hardcore. seeing onc monday 10.30, it will be interesting to see what she says.
if these tests came back positive, then i will reconfirm her strategy, i will also ask her to investigate the false positive nature of cea. of course i will ask her thoughts on the best thing i can do to stay alive with conventional and non conventional off the record stuff. i will start putting her on the spot.
has anyone here had this type of cea rise without mets showing up before ?
hugs,
pete0 -
Petepete43lost_at_sea said:thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete
I love your good news and I love your attitude and willingness to share. Onward my friend!
Aloha,
Kathleen0 -
thanks kathleenKathleen808 said:Pete
I love your good news and I love your attitude and willingness to share. Onward my friend!
Aloha,
Kathleen
8 months of rising cea and no mets, i might make into the cancer guiness book of records.
i am happy, not so much from the result, but from new perspective on life that test results don't matter.
given the number of tests i hope to have in the future, allowing my peace of mind to be determined by results well, its kind of putting my life on hostage to a few troublesome cells.
so i am in a great mood because life is great, i am eating a nice vegan dinner, the kids are watching a movie, the wife is working and all is well downunder. at least in this house.
now the big smile i have is due to the test result. checkout my blog about mri primovist if you are interested in the state of the art mri contrast scanning to find little mets.
hugs,
pete0 -
primopete43lost_at_sea said:thanks janie and everyone
we can all breathe a relaxing and joyful breathe, not that i have a good scan result, but just that we are all here, sharing our lives and the crazy adventures that only fellow crc travellers could hope to understand.
like my battle with fecal incontinence. well i have added meat back to the diet for a week.
i had 3 great nights in a row, no accidents. what i changed last night was i skipped the enema. i have been doing probiotic and or wheatrass enemas, just before sleep. of course the theory for me was to clean me out to give me a good nights sleep.
our digestive systems are amazingly complex, to think the food we eat has no bearing on our health, on how we cope with this disease, well that attitude is from the dark ages of the early 21st century. just ignore me, going on about food again. who else can i talk to about waking up with nappies. even my six year old has grown out of his, and now here is dad with man nappies. i do look good in my nappy, they are designer.
it is outstanding the result and maybe life has something more for me to achieve beyond a chemo port and a box. i have faith in the healing power of nature, if you read the stuff on my blog about zinc and thrush, you will see that this result gives me another few months to push chelation hardcore. seeing onc monday 10.30, it will be interesting to see what she says.
if these tests came back positive, then i will reconfirm her strategy, i will also ask her to investigate the false positive nature of cea. of course i will ask her thoughts on the best thing i can do to stay alive with conventional and non conventional off the record stuff. i will start putting her on the spot.
has anyone here had this type of cea rise without mets showing up before ?
hugs,
pete
Pete, appreciate hearing about Primovist, the liver enhancement contrast, for high resolution scanning of the liver. I wasn't clear about this MRI (or other image) for latest ears-to-knees coverage (or head to toes). Also was this a 1-1.5 tesla magnet or other field strength?0 -
thanks tanstanstaafl said:primo
Pete, appreciate hearing about Primovist, the liver enhancement contrast, for high resolution scanning of the liver. I wasn't clear about this MRI (or other image) for latest ears-to-knees coverage (or head to toes). Also was this a 1-1.5 tesla magnet or other field strength?
i will ask them, its really new, like something out of star trek.
but the nurses were old, alas.
old but sweet, just like me.
it took them 30 minutes to print all the films, at least i have a baseline of what my liver looks like clean, so if in the future i have any nasties to deal with well i have a baseline.
that was worth the $350, whats important is the expertese of the mri radiologist and their experience with primovist, this was forced into my thick head by my prefered ct scanning guru, who said he would not reviewed the mri primovist scans because they are really specialised.
what this means for me in the scheme of things, we shall see, whats your bet , is it a met ?
hugs,
pete0 -
clean scanpete43lost_at_sea said:thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete
Happy for you. may all go well0 -
thanks dankerdanker said:clean scan
Happy for you. may all go well
all is well down under, today is a beautiful day.thanks.
hugs,
pete0 -
UdaMan!!!pete43lost_at_sea said:thanks for asking smokey, here goes another big one
so well my poor brain has been playing lots of tricks on me today.
I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.
CLEAR, and this is the most detailed test they can do.
the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.
if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.
here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
if your into liver mets or trying to find them it seems its the way to go.
hugs,
pete
Pete
thanks so much for sharing this great news.
I am sooooo happy to read this and so happy for your and your family.
i read a lot of your posts, yet i do not comment on everything like i should... but your great news right here continues to be inspiration to us all.
keep sharing and sharing.
My pray for continued good news to you and all who are fighting this stuff
my best
Joe0
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