Pete did you get scan results??

smokeyjoe
smokeyjoe Member Posts: 1,425 Member
in Colorectal Cancer #1
Just wondering I thought you had onc. appt to go over your scans.
«1

Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #2
    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete
  • jjaj133
    jjaj133 Member Posts: 867 Member
    #3
    pete43lost_at_sea said:

    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete

    Pete, that is wonderful
    Pete, that is wonderful news/i am so happy for you. What a roller coaster ride. Enjoy!
    Hugs,
    Judy
  • tommycat
    tommycat Member Posts: 790 Member
    #4
    pete43lost_at_sea said:

    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete

    congrats on the clean
    congrats on the clean scan---whew.
    I'll toast you with some wheatgrass :)
    Tommycat
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #5
    jjaj133 said:

    Pete, that is wonderful
    Pete, that is wonderful news/i am so happy for you. What a roller coaster ride. Enjoy!
    Hugs,
    Judy

    thanks judy
    life is a roller coaster alright. hopefully a nice long ride.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #6
    tommycat said:

    congrats on the clean
    congrats on the clean scan---whew.
    I'll toast you with some wheatgrass :)
    Tommycat

    thanks tommy
    i'm up late, off to sleep now. i will toast you in the morning.

    have a read of this link if you got time.

    http://petertrayhurn.blogspot.com.au/2012/07/my-zinc-difficiency-and-persistant.html

    i really think my zinc and thrush issues might be the cause of my inflamation. the above article is pretty detailed but seemed reasonable.

    hugs,
    pete
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #7
    pete43lost_at_sea said:

    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete

    Wow! Congrats Pete! You

    Wow! Congrats Pete! You just made my day. :-)

    Cyn
  • toyfox
    toyfox Member Posts: 158 Member
    #8
    Great news
    Great news....so happy for you Pete
    Linda
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #9
    LivinginNH said:

    Wow! Congrats Pete! You

    Wow! Congrats Pete! You just made my day. :-)

    Cyn

    thanks cynthia
    its nice help make you smile, its a beautiful planet, its nice to have friends all over it.
    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #10
    toyfox said:

    Great news
    Great news....so happy for you Pete
    Linda

    thanks linda
    each test is like roulette, where i keep all the winnings on the table.
    i am glad you are happy, i am overjoyed.

    hugs,
    pete
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #11
    pete43lost_at_sea said:

    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete

    Dear Pete
    Wonderful news and so very happy for you.

    Hugs,

    Marie who loves kitties
  • janie1
    janie1 Member Posts: 753 Member
    #12
    pete43lost_at_sea said:

    thanks linda
    each test is like roulette, where i keep all the winnings on the table.
    i am glad you are happy, i am overjoyed.

    hugs,
    pete

    Outstanding Pete! We can
    Outstanding Pete! We can breathe now. Enjoy!!!!!
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #13
    Lovekitties said:

    Dear Pete
    Wonderful news and so very happy for you.

    Hugs,

    Marie who loves kitties

    thanks marie
    i am happy , and am grateful, but in my heart the power these tests have over me is something i am trying to reduce.

    oneday my run of good scan results may end, its ironic that i have had bad cea results.

    trying to get my head around what is the best way of dealing with this uncertainty.

    love and acceptance is the best way i guess. off to meditate and rest now, i have a chest infection and my weight training today was cancelled.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #14
    janie1 said:

    Outstanding Pete! We can
    Outstanding Pete! We can breathe now. Enjoy!!!!!

    thanks janie and everyone
    we can all breathe a relaxing and joyful breathe, not that i have a good scan result, but just that we are all here, sharing our lives and the crazy adventures that only fellow crc travellers could hope to understand.

    like my battle with fecal incontinence. well i have added meat back to the diet for a week.
    i had 3 great nights in a row, no accidents. what i changed last night was i skipped the enema. i have been doing probiotic and or wheatrass enemas, just before sleep. of course the theory for me was to clean me out to give me a good nights sleep.

    our digestive systems are amazingly complex, to think the food we eat has no bearing on our health, on how we cope with this disease, well that attitude is from the dark ages of the early 21st century. just ignore me, going on about food again. who else can i talk to about waking up with nappies. even my six year old has grown out of his, and now here is dad with man nappies. i do look good in my nappy, they are designer.

    it is outstanding the result and maybe life has something more for me to achieve beyond a chemo port and a box. i have faith in the healing power of nature, if you read the stuff on my blog about zinc and thrush, you will see that this result gives me another few months to push chelation hardcore. seeing onc monday 10.30, it will be interesting to see what she says.

    if these tests came back positive, then i will reconfirm her strategy, i will also ask her to investigate the false positive nature of cea. of course i will ask her thoughts on the best thing i can do to stay alive with conventional and non conventional off the record stuff. i will start putting her on the spot.

    has anyone here had this type of cea rise without mets showing up before ?

    hugs,
    pete
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #15
    pete43lost_at_sea said:

    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete

    Pete
    I love your good news and I love your attitude and willingness to share. Onward my friend!


    Aloha,
    Kathleen
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #16
    Kathleen808 said:

    Pete
    I love your good news and I love your attitude and willingness to share. Onward my friend!


    Aloha,
    Kathleen

    thanks kathleen
    8 months of rising cea and no mets, i might make into the cancer guiness book of records.
    i am happy, not so much from the result, but from new perspective on life that test results don't matter.

    given the number of tests i hope to have in the future, allowing my peace of mind to be determined by results well, its kind of putting my life on hostage to a few troublesome cells.

    so i am in a great mood because life is great, i am eating a nice vegan dinner, the kids are watching a movie, the wife is working and all is well downunder. at least in this house.

    now the big smile i have is due to the test result. checkout my blog about mri primovist if you are interested in the state of the art mri contrast scanning to find little mets.

    hugs,
    pete
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #17
    pete43lost_at_sea said:

    thanks janie and everyone
    we can all breathe a relaxing and joyful breathe, not that i have a good scan result, but just that we are all here, sharing our lives and the crazy adventures that only fellow crc travellers could hope to understand.

    like my battle with fecal incontinence. well i have added meat back to the diet for a week.
    i had 3 great nights in a row, no accidents. what i changed last night was i skipped the enema. i have been doing probiotic and or wheatrass enemas, just before sleep. of course the theory for me was to clean me out to give me a good nights sleep.

    our digestive systems are amazingly complex, to think the food we eat has no bearing on our health, on how we cope with this disease, well that attitude is from the dark ages of the early 21st century. just ignore me, going on about food again. who else can i talk to about waking up with nappies. even my six year old has grown out of his, and now here is dad with man nappies. i do look good in my nappy, they are designer.

    it is outstanding the result and maybe life has something more for me to achieve beyond a chemo port and a box. i have faith in the healing power of nature, if you read the stuff on my blog about zinc and thrush, you will see that this result gives me another few months to push chelation hardcore. seeing onc monday 10.30, it will be interesting to see what she says.

    if these tests came back positive, then i will reconfirm her strategy, i will also ask her to investigate the false positive nature of cea. of course i will ask her thoughts on the best thing i can do to stay alive with conventional and non conventional off the record stuff. i will start putting her on the spot.

    has anyone here had this type of cea rise without mets showing up before ?

    hugs,
    pete

    primo
    Pete, appreciate hearing about Primovist, the liver enhancement contrast, for high resolution scanning of the liver. I wasn't clear about this MRI (or other image) for latest ears-to-knees coverage (or head to toes). Also was this a 1-1.5 tesla magnet or other field strength?
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #18
    tanstaafl said:

    primo
    Pete, appreciate hearing about Primovist, the liver enhancement contrast, for high resolution scanning of the liver. I wasn't clear about this MRI (or other image) for latest ears-to-knees coverage (or head to toes). Also was this a 1-1.5 tesla magnet or other field strength?

    thanks tans
    i will ask them, its really new, like something out of star trek.
    but the nurses were old, alas.

    old but sweet, just like me.

    it took them 30 minutes to print all the films, at least i have a baseline of what my liver looks like clean, so if in the future i have any nasties to deal with well i have a baseline.

    that was worth the $350, whats important is the expertese of the mri radiologist and their experience with primovist, this was forced into my thick head by my prefered ct scanning guru, who said he would not reviewed the mri primovist scans because they are really specialised.

    what this means for me in the scheme of things, we shall see, whats your bet , is it a met ?

    hugs,
    pete
  • danker
    danker Member Posts: 1,276 Member
    #19
    pete43lost_at_sea said:

    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete

    clean scan
    Happy for you. may all go well
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #20
    danker said:

    clean scan
    Happy for you. may all go well

    thanks danker
    all is well down under, today is a beautiful day.thanks.
    hugs,
    pete
  • joemetz
    joemetz Member Posts: 493
    #21
    pete43lost_at_sea said:

    thanks for asking smokey, here goes another big one
    so well my poor brain has been playing lots of tricks on me today.

    I made a call to the hospital, confirmed yesterdays mri was reported around lunch time. i knew my surgeon did not have it, as they had not called. so i had it faxed to them. within an hour i got the best call from my surgeon/integrative onc.

    CLEAR, and this is the most detailed test they can do.

    the best news yet! clear again baby, i just cannot believe it, my onc had me cashing in my alternative chips, booked in the port, the liver surgeon, the exploratory liver ultrasound, and then either chemo till i drop or a resection. thats the standard onc line, of course its lets just play this test by test.

    if anyones really interested read the gcmaf post for yesterdays scan. while trying to play it cool i made a few calls to extract the results out of the hospital system. they must have done a few hundred slices of my liver, they could not find anything with the primovist.

    here is a big post about my thoughts on primovist and some tips and tricks getting your reports fast.
    http://petertrayhurn.blogspot.com.au/2012/07/ken-sesel-senior-radiologist.html
    if your into liver mets or trying to find them it seems its the way to go.

    hugs,
    pete

    UdaMan!!!
    Pete

    thanks so much for sharing this great news.
    I am sooooo happy to read this and so happy for your and your family.

    i read a lot of your posts, yet i do not comment on everything like i should... but your great news right here continues to be inspiration to us all.

    keep sharing and sharing.

    My pray for continued good news to you and all who are fighting this stuff

    my best

    Joe

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