The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Gastrectomy + Whipple after colectomy

coyotemist
coyotemist CSN Member Posts: 7
I know it's a long shot...but has anyone out there had to have a gastrectomy and a Whipple following a colectomy? My husband already deals with the short gut issues from the colectomy (with J-pouch and ileoanal reanastamosis). We worry about the long term consequences of removing so much from the gut.

He is 38 with FAP. They have found low grade dysplasia on his gastric polyps (he has hundreds), and an additional adenoma on his "ampullary area" after endoscopic ampullectomy.

He's had multiple admissions for dehydration and kidney injuries with a "simple" GI virus.

We are looking for long term results, or just someone else who has had to deal with this.

Thanks!