Looking for anyone that may live by me...

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I was told I should ask if anyone on here may live by or in Phoenix, Az and has gone through or going through SCC on the tongue or neck disection. I am looking for some support from some people :) Thanks!
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  • Tim6003
    Tim6003 Member Posts: 1,514 Member
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    Sorry Nita ...
    I live in McCall, Idaho ......have you also checked out the oralcancerfoundation.org website? I think they have local chapters in many places and Pheonix is a big place :)

    Best,

    Tim
  • osmotar
    osmotar Member Posts: 1,006
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    Hi NN,

    I live in Buckeye, I had SCC of the right tonsil and 1 lymph node, diagnosed last June, finished treatment Dec 30th.

    Linda
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Jahnsart
    Jahnsart lives in Phoenix, I believe...but I haven't seen them post for awhile now.

    I have met a few people from here, GreenD, Hondo, Illuzions, j3rey.

    A while back I made a map, and had people that wanted to be added to it in Google... I made it specifically for the reason you requested. To find others close by and to offer support when requested;

    Where in the World Are You

    Occasionally, I'll repost the link and ask for any updayes, or to add newbies.

    Best,
    John
  • osmotar
    osmotar Member Posts: 1,006
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    Skiffin16 said:

    Jahnsart
    Jahnsart lives in Phoenix, I believe...but I haven't seen them post for awhile now.

    I have met a few people from here, GreenD, Hondo, Illuzions, j3rey.

    A while back I made a map, and had people that wanted to be added to it in Google... I made it specifically for the reason you requested. To find others close by and to offer support when requested;

    Where in the World Are You

    Occasionally, I'll repost the link and ask for any updayes, or to add newbies.

    Best,
    John

    PHX
    I haven't seen Jahnsart in forever either.
  • NitaNita
    NitaNita Member Posts: 56
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    osmotar said:

    PHX
    I haven't seen Jahnsart in forever either.

    thats..
    Thats a good idea..osmotar we should talk sometime since we dont live to far from each other. I live in Peoria off of 111ave/Northern. I think it would be nice to have a support group with people that have gone through similiar situations.Even if its dinner sometime just to chat. Thanks for getting back to me.. By the way I love your pic!!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Here's a better link,
    Here's a better link, centered on the USA...

    Where in the World Are You

    Not sure if you meant my photo, with my lovely wife Shelley, or Linda's sporting the Cancer Didn't Beat Me message...

    If mine and Shelley, thanks, it's similar to yours actually, LOL.

    JG
  • osmotar
    osmotar Member Posts: 1,006
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    NitaNita said:

    thats..
    Thats a good idea..osmotar we should talk sometime since we dont live to far from each other. I live in Peoria off of 111ave/Northern. I think it would be nice to have a support group with people that have gone through similiar situations.Even if its dinner sometime just to chat. Thanks for getting back to me.. By the way I love your pic!!

    Sounds
    Sounds like a plan. As for the pic of my car , I came out of my last treatment and my niece had tagged every window , people waved and honked at us all the way from Thunderbird Rd to where I live in Buckeye.
  • osmotar
    osmotar Member Posts: 1,006
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    Info
    I'll send you my contact info tomorrow if you would like to chat sometime.

    Linda
  • meaganb
    meaganb Member Posts: 244 Member
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    Skiffin16 said:

    Here's a better link,
    Here's a better link, centered on the USA...

    Where in the World Are You

    Not sure if you meant my photo, with my lovely wife Shelley, or Linda's sporting the Cancer Didn't Beat Me message...

    If mine and Shelley, thanks, it's similar to yours actually, LOL.

    JG

    Would you mind adding me to
    Would you mind adding me to the map? I'm in Columbia SC.
  • Ingrid K
    Ingrid K Member Posts: 813
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    osmotar said:

    Info
    I'll send you my contact info tomorrow if you would like to chat sometime.

    Linda

    contact Nita Nita
    hi Linda, that would be great if you could talk to Nita also... she and I are scheduled to chat sometime later this p.m., and it would be great if you would talk to her also. I so remember where I was when first diagnosed, but you and I already know that she will make it through this great just like we did. She just needs some cheerleaders, and there are many on this forum.
  • phrannie51
    phrannie51 Member Posts: 4,716
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    Ingrid K said:

    contact Nita Nita
    hi Linda, that would be great if you could talk to Nita also... she and I are scheduled to chat sometime later this p.m., and it would be great if you would talk to her also. I so remember where I was when first diagnosed, but you and I already know that she will make it through this great just like we did. She just needs some cheerleaders, and there are many on this forum.

    I'm so glad Linda lives near you, Nita....
    Ingrid is a GREAT cheerleader, also....and so helpful. I too, know that you are going to make it thru this, and it will be the "bump in the road of life" that so many talk about here. Nothing but a bad memory in a short time from now.

    p
  • Ingrid K
    Ingrid K Member Posts: 813
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    I'm so glad Linda lives near you, Nita....
    Ingrid is a GREAT cheerleader, also....and so helpful. I too, know that you are going to make it thru this, and it will be the "bump in the road of life" that so many talk about here. Nothing but a bad memory in a short time from now.

    p

    thanks, p51
    awww, thanks Phrannie. You are such a great contributor to this forum. You have totally embraced the journey you are on and have already helped so many others with your great attitude and inviting them all to ride "the bus" with you.
  • ooo
    ooo Member Posts: 105
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    Ingrid K said:

    thanks, p51
    awww, thanks Phrannie. You are such a great contributor to this forum. You have totally embraced the journey you are on and have already helped so many others with your great attitude and inviting them all to ride "the bus" with you.

    Sorry, I couldn't resist
    Every time I think of our bus I google image "otto bus".

    Go Phran!
  • phrannie51
    phrannie51 Member Posts: 4,716
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    ooo said:

    Sorry, I couldn't resist
    Every time I think of our bus I google image "otto bus".

    Go Phran!

    LOL Dre....
    Had to google "otto bus" to see....cracked me up!! It won't be long before this bus is pretty much emptied out!

    p
  • osmotar
    osmotar Member Posts: 1,006
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    ooo said:

    Sorry, I couldn't resist
    Every time I think of our bus I google image "otto bus".

    Go Phran!

    lol
    Love what u did with the mask, mine sits in my bedroom.
  • ratface
    ratface Member Posts: 1,337 Member
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    osmotar said:

    lol
    Love what u did with the mask, mine sits in my bedroom.

    1st tuesday of the month (coming up)
    Your local "Support For People With head and neck Cancer" chapter meets this coming Tuesday at the St. Josephs Hospital and medical center Ctr., 530-730pm, mary schneider, director. 602-406-3882. mary.schneider@chw.edu

    They are a great source of support and groups generally have several recent or current treatment patients. Good place to go and spend some time drinking water and trying to eat oreos. The chicago chapter has ben a great source of support for me.
  • phrannie51
    phrannie51 Member Posts: 4,716
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    ratface said:

    1st tuesday of the month (coming up)
    Your local "Support For People With head and neck Cancer" chapter meets this coming Tuesday at the St. Josephs Hospital and medical center Ctr., 530-730pm, mary schneider, director. 602-406-3882. mary.schneider@chw.edu

    They are a great source of support and groups generally have several recent or current treatment patients. Good place to go and spend some time drinking water and trying to eat oreos. The chicago chapter has ben a great source of support for me.

    Good Job, RF!!!.....
    I don't know how you found that, but what a great resource!!

    p
  • NitaNita
    NitaNita Member Posts: 56
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    Good Job, RF!!!.....
    I don't know how you found that, but what a great resource!!

    p

    RF..
    Thank you! I don't know how you found that either. The only one I could find was in 3 weeks and was pretty far from me..awesome!
  • ratface
    ratface Member Posts: 1,337 Member
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    NitaNita said:

    RF..
    Thank you! I don't know how you found that either. The only one I could find was in 3 weeks and was pretty far from me..awesome!

    SPOHNC
    "SUPPORT FOR PEOPLE WITH ORAL AND HEAD AND NECK CANCER" is an organization with chapters all across America usually located in hospital cancer centers. Almost all chapters meet once a month and have open meetings to patients and caregivers. They publish a monthly periodical which almost always chronicles a latest development in the treatment of our type of cancer or some outstanding practitioner or new technique in the field. It's a great resource to stay on top of the treatment protocols. In addition, the last three pages or so, list all the chapters and meetings by state, along with contact information and meeting times. The cost for yearly subscription is minimal, $25 and worth it many times over. I've been a member almost from diagnosis. Anyone so inclined, they are easy to find: www.spohnc.org or 1-800-377-0928.
  • patricke
    patricke Member Posts: 570
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    GON THRU IT
    Hi Nita, I live in S FL, so not so close to Phoenix, although light years ago I lived in Tucson for awhile: I love the Southwest. But I digress. I had BOT Stage 4, and did experience the ever popular disection of the neck, along with a few visits with the Rad Techs (two of my all time favorite experiences), but that was 11 1/2 years ago so it is now a distant, yet still distinct memory. I'm just sayin, Hang In There Nita, it's not a walk in the park, but You Can Do It, and in time you will, once more, walk in the park with a distant memory of the experience. Best Wishes....*

    PATRICK