CT Scan Tomorrow

alice124

Texas_wedge said:

Not alone
I know you're a tough guy Mike and I'm delighted to hear your great results. RFA was the right choice, it seems. (By the way, I think you got your nephrectomy year wrong!). Incidentally, I wasn't suggesting that I'm tough but rather that it looks as though maybe I've been lucky.

Now let's hope to hear of a good outcome from Jackie's scan.

TW, Mike, Gary, & anyone
TW, Mike, Gary, & anyone reading,

You're right. We are lucky. We all are lucky every day we open our eyes and breathe. Everyone who is here is here for a reason. For some unknown reason, the man upstairs has determined it's not your turn. So it's your job to determine why you're still here and make sure you answer that gift with a full life and a "not taken for granted" life.

Just feeling numb and sad. I just returned from the funeral home of a a friend and former neighbor, someone I should have kept up with but didn't. Now it's too late. He was healthy and had no warning his life was about to be over. Someone walked into his store and robbed him and then killed him.

alice124

alice124 said:

TW, Mike, Gary, & anyone
TW, Mike, Gary, & anyone reading,

You're right. We are lucky. We all are lucky every day we open our eyes and breathe. Everyone who is here is here for a reason. For some unknown reason, the man upstairs has determined it's not your turn. So it's your job to determine why you're still here and make sure you answer that gift with a full life and a "not taken for granted" life.

Just feeling numb and sad. I just returned from the funeral home of a a friend and former neighbor, someone I should have kept up with but didn't. Now it's too late. He was healthy and had no warning his life was about to be over. Someone walked into his store and robbed him and then killed him.

Jackie
Jackie - Sorry for the downer. Sure hope to hear an upbeat report from you very soon. I, for one, am looking forward to a mood changer!

Fox-If you're reading, we're waiting positive info from you too!

foxhd

alice124 said:

Jackie
Jackie - Sorry for the downer. Sure hope to hear an upbeat report from you very soon. I, for one, am looking forward to a mood changer!

Fox-If you're reading, we're waiting positive info from you too!

positive info
Alice, since you asked...... First of all., My heart goes out to everyone on this board. What a sad place to have to make friends. However, the understanding, compassion, and ability to identify with each others life changing process is proof that no one is alone in this battle. Whether renal cell cancer or any other health issue the reality of ones mortality hits home. And hits hard. Some of us have experienced death and dieing as a career. Others have not experienced it at all. For those ,We offer as much support as we can. This journey takes many turns. Most of us have to take the ride and not know where it will lead us. Remaining positive and optimistic is the only active influence we can control. This mind set is not only good for ones well being but maybe more for their loved ones. There is not a single parent who wouldn't give their own life for their child so he or she could grow grow up. The same concept applies. Our families depend on our strength. We are all family here. That's why we post.
The unfortunate history of renal cell cancer is that it has been unbeatable. But now, great progress is being made. If there was no hope, this board would have a different focus. There has been much in the medical journals, newspapers, internet and tv news during this past month regarding the huge strides in defeating this cancer. It is promising.
I for one was not expected to beat this disease. Metastatic disease multi organ involvement left me with a poor prognosis. But science offered an option. Unproven, but promising. A clinical trial. Few agree to being a research rat. Most only want approved therapies. Some of us felt we had little to lose.So we signed on. We now know there have been a few deaths due to respiratory complications. Probably an issue of dose management and having an immune system concentrating on eraticating the tumors..I myself, have had some respiratory issues. But I have also been on the highest dose of MDX-1106 for months. Dosage will be perfected with time.
As a result of this trial, I have experienced exceptional recovery. My oncologist spent some time with me this week. We reviewed my progress and scans. From having 18+ tumors that were identifiable, I am now battling only about 4. The others are GONE! This doesn't mean that I have won the battle. It does mean that I will probably not expire from kidney cancer. Another disease may be around the corner, but we'll deal with that when the time comes. The point is that there is hope for all. Opportunities to participate in ground breaking medicine are available to many. Investigate available clinical trials. They are posted on the internet. Challenge your physician to assist you. There is hope. Don't be afraid of this disease. And don't ignore it. Ones life has already been changed. Stand up and face it head on. Be strong for yourself and for your loved ones. Perhaps ones recovery will be dependent on having fought hard and then being the right candidate when the next big thing comes along.Be your own advocate. Or as many here are, be an advocate for the one you love. God bless you all. FLY. Fox loves you.

sunlover_56

foxhd said:

positive info
Alice, since you asked...... First of all., My heart goes out to everyone on this board. What a sad place to have to make friends. However, the understanding, compassion, and ability to identify with each others life changing process is proof that no one is alone in this battle. Whether renal cell cancer or any other health issue the reality of ones mortality hits home. And hits hard. Some of us have experienced death and dieing as a career. Others have not experienced it at all. For those ,We offer as much support as we can. This journey takes many turns. Most of us have to take the ride and not know where it will lead us. Remaining positive and optimistic is the only active influence we can control. This mind set is not only good for ones well being but maybe more for their loved ones. There is not a single parent who wouldn't give their own life for their child so he or she could grow grow up. The same concept applies. Our families depend on our strength. We are all family here. That's why we post.
The unfortunate history of renal cell cancer is that it has been unbeatable. But now, great progress is being made. If there was no hope, this board would have a different focus. There has been much in the medical journals, newspapers, internet and tv news during this past month regarding the huge strides in defeating this cancer. It is promising.
I for one was not expected to beat this disease. Metastatic disease multi organ involvement left me with a poor prognosis. But science offered an option. Unproven, but promising. A clinical trial. Few agree to being a research rat. Most only want approved therapies. Some of us felt we had little to lose.So we signed on. We now know there have been a few deaths due to respiratory complications. Probably an issue of dose management and having an immune system concentrating on eraticating the tumors..I myself, have had some respiratory issues. But I have also been on the highest dose of MDX-1106 for months. Dosage will be perfected with time.
As a result of this trial, I have experienced exceptional recovery. My oncologist spent some time with me this week. We reviewed my progress and scans. From having 18+ tumors that were identifiable, I am now battling only about 4. The others are GONE! This doesn't mean that I have won the battle. It does mean that I will probably not expire from kidney cancer. Another disease may be around the corner, but we'll deal with that when the time comes. The point is that there is hope for all. Opportunities to participate in ground breaking medicine are available to many. Investigate available clinical trials. They are posted on the internet. Challenge your physician to assist you. There is hope. Don't be afraid of this disease. And don't ignore it. Ones life has already been changed. Stand up and face it head on. Be strong for yourself and for your loved ones. Perhaps ones recovery will be dependent on having fought hard and then being the right candidate when the next big thing comes along.Be your own advocate. Or as many here are, be an advocate for the one you love. God bless you all. FLY. Fox loves you.

Fox
What an awesome and inspiring speech. I would like to stand up and aplaud. I think I will!! Thank you for all the support you give to all of us here. I only wish I was as articulate as you and Tex and Alice and all the rest. I dont always respond on here but I visit every day and read all the new posts. They help keep me grounded. Thank you everyone

littledarlin

foxhd said:

positive info
Alice, since you asked...... First of all., My heart goes out to everyone on this board. What a sad place to have to make friends. However, the understanding, compassion, and ability to identify with each others life changing process is proof that no one is alone in this battle. Whether renal cell cancer or any other health issue the reality of ones mortality hits home. And hits hard. Some of us have experienced death and dieing as a career. Others have not experienced it at all. For those ,We offer as much support as we can. This journey takes many turns. Most of us have to take the ride and not know where it will lead us. Remaining positive and optimistic is the only active influence we can control. This mind set is not only good for ones well being but maybe more for their loved ones. There is not a single parent who wouldn't give their own life for their child so he or she could grow grow up. The same concept applies. Our families depend on our strength. We are all family here. That's why we post.
The unfortunate history of renal cell cancer is that it has been unbeatable. But now, great progress is being made. If there was no hope, this board would have a different focus. There has been much in the medical journals, newspapers, internet and tv news during this past month regarding the huge strides in defeating this cancer. It is promising.
I for one was not expected to beat this disease. Metastatic disease multi organ involvement left me with a poor prognosis. But science offered an option. Unproven, but promising. A clinical trial. Few agree to being a research rat. Most only want approved therapies. Some of us felt we had little to lose.So we signed on. We now know there have been a few deaths due to respiratory complications. Probably an issue of dose management and having an immune system concentrating on eraticating the tumors..I myself, have had some respiratory issues. But I have also been on the highest dose of MDX-1106 for months. Dosage will be perfected with time.
As a result of this trial, I have experienced exceptional recovery. My oncologist spent some time with me this week. We reviewed my progress and scans. From having 18+ tumors that were identifiable, I am now battling only about 4. The others are GONE! This doesn't mean that I have won the battle. It does mean that I will probably not expire from kidney cancer. Another disease may be around the corner, but we'll deal with that when the time comes. The point is that there is hope for all. Opportunities to participate in ground breaking medicine are available to many. Investigate available clinical trials. They are posted on the internet. Challenge your physician to assist you. There is hope. Don't be afraid of this disease. And don't ignore it. Ones life has already been changed. Stand up and face it head on. Be strong for yourself and for your loved ones. Perhaps ones recovery will be dependent on having fought hard and then being the right candidate when the next big thing comes along.Be your own advocate. Or as many here are, be an advocate for the one you love. God bless you all. FLY. Fox loves you.

Thanks Fox..
Your works of hope, compassion and courage are so very inspiring..They help so many of us here no matter what situation or health issue we are facing..There is always hope..no matter how hard we are hit..

Thinking of you and all of us tonight..

God Bless us all...

littledarlin

littledarlin

Sending prayers your way
Jackie I just wanted to let you know I am praying and pulling for you..
Hoping you are doing ok? Please update when you're ready or when you can..

God Bless...
littledarlin

Texas_wedge

sunlover_56 said:

Fox
What an awesome and inspiring speech. I would like to stand up and aplaud. I think I will!! Thank you for all the support you give to all of us here. I only wish I was as articulate as you and Tex and Alice and all the rest. I dont always respond on here but I visit every day and read all the new posts. They help keep me grounded. Thank you everyone

Fox
Judy, you took the words out of my mouth! I'd just read Fox's message on the "Robotic Assisted..." thread and thought what a typical combination of rock-hard common-sense and originality of expression it represented. I decided not to post a comment to that effect because it wouldn't have added anything to what we have all already seen, namely the great depth of understanding and judgment he's accrued in his years of professional dealings with fellow human beings.

Then I read the post here and felt I had to acknowledge it but you beat me to the punch and I couldn't have put it better than you have done. Fox's posting above would make a fitting prologue to his book which, if he writes it, would probably enter the canon of uplifting works in this medical domain of lowering clouds shot through with his special kind of sunshine.

Limelife50

foxhd said:

positive info
Alice, since you asked...... First of all., My heart goes out to everyone on this board. What a sad place to have to make friends. However, the understanding, compassion, and ability to identify with each others life changing process is proof that no one is alone in this battle. Whether renal cell cancer or any other health issue the reality of ones mortality hits home. And hits hard. Some of us have experienced death and dieing as a career. Others have not experienced it at all. For those ,We offer as much support as we can. This journey takes many turns. Most of us have to take the ride and not know where it will lead us. Remaining positive and optimistic is the only active influence we can control. This mind set is not only good for ones well being but maybe more for their loved ones. There is not a single parent who wouldn't give their own life for their child so he or she could grow grow up. The same concept applies. Our families depend on our strength. We are all family here. That's why we post.
The unfortunate history of renal cell cancer is that it has been unbeatable. But now, great progress is being made. If there was no hope, this board would have a different focus. There has been much in the medical journals, newspapers, internet and tv news during this past month regarding the huge strides in defeating this cancer. It is promising.
I for one was not expected to beat this disease. Metastatic disease multi organ involvement left me with a poor prognosis. But science offered an option. Unproven, but promising. A clinical trial. Few agree to being a research rat. Most only want approved therapies. Some of us felt we had little to lose.So we signed on. We now know there have been a few deaths due to respiratory complications. Probably an issue of dose management and having an immune system concentrating on eraticating the tumors..I myself, have had some respiratory issues. But I have also been on the highest dose of MDX-1106 for months. Dosage will be perfected with time.
As a result of this trial, I have experienced exceptional recovery. My oncologist spent some time with me this week. We reviewed my progress and scans. From having 18+ tumors that were identifiable, I am now battling only about 4. The others are GONE! This doesn't mean that I have won the battle. It does mean that I will probably not expire from kidney cancer. Another disease may be around the corner, but we'll deal with that when the time comes. The point is that there is hope for all. Opportunities to participate in ground breaking medicine are available to many. Investigate available clinical trials. They are posted on the internet. Challenge your physician to assist you. There is hope. Don't be afraid of this disease. And don't ignore it. Ones life has already been changed. Stand up and face it head on. Be strong for yourself and for your loved ones. Perhaps ones recovery will be dependent on having fought hard and then being the right candidate when the next big thing comes along.Be your own advocate. Or as many here are, be an advocate for the one you love. God bless you all. FLY. Fox loves you.

Great news Fox
Before i was hopefull for you Fox now i am starting to really believe in you finally there are drug therapies that might not cure us compltely or then again maybe they will cure us ,i am starting to believe cancer patients might atleast be able to manage our diseases the same way people with AIDS do and be able to live many years with our disease.I agree this is a sad place but is also a place of HOPE and SUPPORT,i dont mind being critisized here when my comments are a little off ,Tex comes to mind when i think about that last comment also i dont mind getting advice from the people here,as far as people who support me friends etc.i am thankfull for thier support but as for those same people who do not have cancer or have someone they love who has cancer,for them to give me advice i would rather suck on a sour lemon,but i always smile and say thanyou.

Limelife50

sunlover_56 said:

Fox
What an awesome and inspiring speech. I would like to stand up and aplaud. I think I will!! Thank you for all the support you give to all of us here. I only wish I was as articulate as you and Tex and Alice and all the rest. I dont always respond on here but I visit every day and read all the new posts. They help keep me grounded. Thank you everyone

Please Sunlover post away
Dont hold back everyone here could care less how articulate you are,heck look at some of my posts and so far everyone has put up with me ,so please type away to your hearts content.

alice124

foxhd said:

positive info
Alice, since you asked...... First of all., My heart goes out to everyone on this board. What a sad place to have to make friends. However, the understanding, compassion, and ability to identify with each others life changing process is proof that no one is alone in this battle. Whether renal cell cancer or any other health issue the reality of ones mortality hits home. And hits hard. Some of us have experienced death and dieing as a career. Others have not experienced it at all. For those ,We offer as much support as we can. This journey takes many turns. Most of us have to take the ride and not know where it will lead us. Remaining positive and optimistic is the only active influence we can control. This mind set is not only good for ones well being but maybe more for their loved ones. There is not a single parent who wouldn't give their own life for their child so he or she could grow grow up. The same concept applies. Our families depend on our strength. We are all family here. That's why we post.
The unfortunate history of renal cell cancer is that it has been unbeatable. But now, great progress is being made. If there was no hope, this board would have a different focus. There has been much in the medical journals, newspapers, internet and tv news during this past month regarding the huge strides in defeating this cancer. It is promising.
I for one was not expected to beat this disease. Metastatic disease multi organ involvement left me with a poor prognosis. But science offered an option. Unproven, but promising. A clinical trial. Few agree to being a research rat. Most only want approved therapies. Some of us felt we had little to lose.So we signed on. We now know there have been a few deaths due to respiratory complications. Probably an issue of dose management and having an immune system concentrating on eraticating the tumors..I myself, have had some respiratory issues. But I have also been on the highest dose of MDX-1106 for months. Dosage will be perfected with time.
As a result of this trial, I have experienced exceptional recovery. My oncologist spent some time with me this week. We reviewed my progress and scans. From having 18+ tumors that were identifiable, I am now battling only about 4. The others are GONE! This doesn't mean that I have won the battle. It does mean that I will probably not expire from kidney cancer. Another disease may be around the corner, but we'll deal with that when the time comes. The point is that there is hope for all. Opportunities to participate in ground breaking medicine are available to many. Investigate available clinical trials. They are posted on the internet. Challenge your physician to assist you. There is hope. Don't be afraid of this disease. And don't ignore it. Ones life has already been changed. Stand up and face it head on. Be strong for yourself and for your loved ones. Perhaps ones recovery will be dependent on having fought hard and then being the right candidate when the next big thing comes along.Be your own advocate. Or as many here are, be an advocate for the one you love. God bless you all. FLY. Fox loves you.

positive info
FOX,

Outstanding commentary and wisdom. Thank you as always. You continue to be our sunshine sprinkled with a few rainbows.

How is the melanoma situation? Stitches out? And are you still on the antibiotics? Is the MDX dose going to be lower when you begin your next round or have already started? Sorry to be so inquisitive, but it's what happens when you become a ROCK STAR!

With your report we're two for three in great reports (yours and Tex). Jackie, we're hoping your report provides sweeps.

alice124

Limelife50 said:

Great news Fox
Before i was hopefull for you Fox now i am starting to really believe in you finally there are drug therapies that might not cure us compltely or then again maybe they will cure us ,i am starting to believe cancer patients might atleast be able to manage our diseases the same way people with AIDS do and be able to live many years with our disease.I agree this is a sad place but is also a place of HOPE and SUPPORT,i dont mind being critisized here when my comments are a little off ,Tex comes to mind when i think about that last comment also i dont mind getting advice from the people here,as far as people who support me friends etc.i am thankfull for thier support but as for those same people who do not have cancer or have someone they love who has cancer,for them to give me advice i would rather suck on a sour lemon,but i always smile and say thanyou.

comment
Mike - If I've said anything to offend you, I apologize. The last thing in the world I want to do as a member of this board is to alienate anyone. But I am one of the ones "who do not have cancer."

Even though I don't have cancer, my husband does have it and I feel his pain and frustration. I'd like to think that allows me to empathize with others in this situation, but perhaps your is a valid point I should consider before hitting my keyboard. I promise to stay more attuned to your viewpoint.

Limelife50

alice124 said:

comment
Mike - If I've said anything to offend you, I apologize. The last thing in the world I want to do as a member of this board is to alienate anyone. But I am one of the ones "who do not have cancer."

Even though I don't have cancer, my husband does have it and I feel his pain and frustration. I'd like to think that allows me to empathize with others in this situation, but perhaps your is a valid point I should consider before hitting my keyboard. I promise to stay more attuned to your viewpoint.

Dammit messed up again
As usual i screwed up again,sorry Alice i need to go over my posts before i post them,what i meant was people dxed with cancer or their caregivers i am so sorry if i hurt your feelings,maybe you can give me a free pass this time and i promise to review my posts more carefully before i hit post comment,again Alice i am so sorry

alice124

Limelife50 said:

Dammit messed up again
As usual i screwed up again,sorry Alice i need to go over my posts before i post them,what i meant was people dxed with cancer or their caregivers i am so sorry if i hurt your feelings,maybe you can give me a free pass this time and i promise to review my posts more carefully before i hit post comment,again Alice i am so sorry

communication
No biggie Mike. Free pass granted!!!

I respect your opinion and just wanted to be sure I hadn't posted something inappropriate. Now I can stop searching and rereading my old posts trying to recognize my mistake(s). Appreciate your getting back to me.

foxhd

littledarlin said:

Sending prayers your way
Jackie I just wanted to let you know I am praying and pulling for you..
Hoping you are doing ok? Please update when you're ready or when you can..

God Bless...
littledarlin

to Jackie
.......I think we have unintentionately hi- jacked your thread. Forgive us . Please update your status. I'll move the current discussion.