PINKKARI -- How are you doing dear Sister in PINK ??? We are thinking about you, and praying.

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VickiSam
VickiSam Member Posts: 9,079 Member
Please update us when you can ..

Gentle hugs dear one.


Vicki Sam

Comments

  • Jean 0609
    Jean 0609 Member Posts: 2,462
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    Facebook
    Kari did post on Facebook on Saturday that her youngest son was graduating that day. She was kind of emotional.
  • Kylez
    Kylez Member Posts: 3,761 Member
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    Jean 0609 said:

    Facebook
    Kari did post on Facebook on Saturday that her youngest son was graduating that day. She was kind of emotional.

    Thanks Jean for letting us
    Thanks Jean for letting us know about Kari. I bet she is living her life to the fullest. She always seemed like that kind of pink sister.


    Hugs, Kylez
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    Kylez said:

    Thanks Jean for letting us
    Thanks Jean for letting us know about Kari. I bet she is living her life to the fullest. She always seemed like that kind of pink sister.


    Hugs, Kylez

    Yes,
    Thank you for the update.


    Vicki Sam
  • pinkkari09
    pinkkari09 Member Posts: 877
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    I'm here, so sorry "AGAIN"
    I'm here, so sorry "AGAIN" for neglecting my Kindred Spirits". As you know my youngest graduated high school, I'm sad and happy all at once, he has turned into a fine young man:). I've been spending a lot of my summer in my garden, although it's getting more and more difficult, I push myself, as I don't want to (please forgive me for saying it like this) lay down and die. I had yet another bad pet scan last week, again the chemo isn't working, so now were trying Navelbine, and that is the last one this girl is doing. This is 9 kinds of chemo and only the first couple really worked and even then the cancer returned in a few months. I don't want to say I'm giving up, because I'm not a quitter, however; I am planning on stopping chemo after this kind, put all my care in the hands of my palliative care doc, keep my pain under control and try to do a few more things. I'm so sorry for not posting more often, I dont get online often as I have so many things I need to take care of offline, as I'm sure everyone understands that. I'll do my best to keep everyone updated better:) now while my Internet is working good, I want to try and catch up on some of you. Big Cyber Hugs and Miles of Love ~ Kari
  • RE
    RE Member Posts: 4,591 Member
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    I'm here, so sorry "AGAIN"
    I'm here, so sorry "AGAIN" for neglecting my Kindred Spirits". As you know my youngest graduated high school, I'm sad and happy all at once, he has turned into a fine young man:). I've been spending a lot of my summer in my garden, although it's getting more and more difficult, I push myself, as I don't want to (please forgive me for saying it like this) lay down and die. I had yet another bad pet scan last week, again the chemo isn't working, so now were trying Navelbine, and that is the last one this girl is doing. This is 9 kinds of chemo and only the first couple really worked and even then the cancer returned in a few months. I don't want to say I'm giving up, because I'm not a quitter, however; I am planning on stopping chemo after this kind, put all my care in the hands of my palliative care doc, keep my pain under control and try to do a few more things. I'm so sorry for not posting more often, I dont get online often as I have so many things I need to take care of offline, as I'm sure everyone understands that. I'll do my best to keep everyone updated better:) now while my Internet is working good, I want to try and catch up on some of you. Big Cyber Hugs and Miles of Love ~ Kari

    GIGANTIC GENTLE HUGS!!
    Kari so sorry to hear your most recent pet scan was not good news! I understand the wanting to push yourself to do things, good for you keep it up! I will most certainly be lifting you in prayer in hopes that the new chemo works well for you! Know that you are loved!

    RE
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
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    I'm here, so sorry "AGAIN"
    I'm here, so sorry "AGAIN" for neglecting my Kindred Spirits". As you know my youngest graduated high school, I'm sad and happy all at once, he has turned into a fine young man:). I've been spending a lot of my summer in my garden, although it's getting more and more difficult, I push myself, as I don't want to (please forgive me for saying it like this) lay down and die. I had yet another bad pet scan last week, again the chemo isn't working, so now were trying Navelbine, and that is the last one this girl is doing. This is 9 kinds of chemo and only the first couple really worked and even then the cancer returned in a few months. I don't want to say I'm giving up, because I'm not a quitter, however; I am planning on stopping chemo after this kind, put all my care in the hands of my palliative care doc, keep my pain under control and try to do a few more things. I'm so sorry for not posting more often, I dont get online often as I have so many things I need to take care of offline, as I'm sure everyone understands that. I'll do my best to keep everyone updated better:) now while my Internet is working good, I want to try and catch up on some of you. Big Cyber Hugs and Miles of Love ~ Kari

    Sending prayers and cyber
    Sending prayers and cyber hugs to you Kari.


    Hugs, Jan
  • Megan M
    Megan M Member Posts: 3,000
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    Sending prayers and cyber
    Sending prayers and cyber hugs to you Kari.


    Hugs, Jan

    Sorry about the latest scan
    Sorry about the latest scan Kari. Congrats to your son on his graduation! I will be praying for you as always.


    Big hugs, Megan
  • missrenee
    missrenee Member Posts: 2,136 Member
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    Megan M said:

    Sorry about the latest scan
    Sorry about the latest scan Kari. Congrats to your son on his graduation! I will be praying for you as always.


    Big hugs, Megan

    So good to hear from you, Kari
    You are a true inspiration to me--recently upgraded (or do I say, downgraded :( to Stage 4 with bone mets). I admire your fight and your spirit and hope I can be half as brave. I'm so glad to hear you are enjoying your garden. Congratulations on your son's graduation.

    All we can do is hang in there together for as long as we can. But, when enough is enough, no apologies are ever necessary. I'm praying for your continued strength and wellness--and that the Navelbine is the miracle you deserve.

    Love and hugs, Renee
  • Noel
    Noel Member Posts: 3,095 Member
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    missrenee said:

    So good to hear from you, Kari
    You are a true inspiration to me--recently upgraded (or do I say, downgraded :( to Stage 4 with bone mets). I admire your fight and your spirit and hope I can be half as brave. I'm so glad to hear you are enjoying your garden. Congratulations on your son's graduation.

    All we can do is hang in there together for as long as we can. But, when enough is enough, no apologies are ever necessary. I'm praying for your continued strength and wellness--and that the Navelbine is the miracle you deserve.

    Love and hugs, Renee

    You inspire me also Kari as
    You inspire me also Kari as you have the best, most positive attitude of anyone. You enjoy your garden and your children. That is what is important.

    Praying for a miracle for you,

    Noel
  • MAJW
    MAJW Member Posts: 2,510 Member
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    Noel said:

    You inspire me also Kari as
    You inspire me also Kari as you have the best, most positive attitude of anyone. You enjoy your garden and your children. That is what is important.

    Praying for a miracle for you,

    Noel

    Good...
    To hear from you, yet I hate that your last scan wasn't what we'd hoped for....I admire your spirit, for whatever that means...I, too, am stage IV...So I quite understand....it sucks, big time! I hate this freaken disease! And I understand when you say enough! I will reach that point at some time...for now, it's back on chemo every 2 weeks, had 10 radiation treatments 9 weeks ago, to my brain....oh what fun that was! My third go round of radiation... Never experienced such fatigue! just now getting some energy back from that....then it's taking the hit with chemo! Never ending....

    Kari, Has your oncologist ever mentioned Avastin? Mine was able, through the manufacturer, to get me on it, after the FDA pulled it in Jan.for stage IV bc.....they replace what I'm given to my cancer center at no cost to us...my insurance company denied it as we knew they would due to FDA pulling it.....He said the FDA is now " taking another look" at it for stage IV bc......It's still being used for other types of cancer...It may be worth asking him if he can get you on it in addition to what you're taking now.....my oncologist has gotten quite a few on it.....The side effects from it are very minimal...I'm taking that along with Carboplatin...

    I wish you the very best...and sending prayers up for you...keep us posted when you can...you know we care deeply....
    Big hugs, Nancy
  • camul
    camul Member Posts: 2,537
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    I'm here, so sorry "AGAIN"
    I'm here, so sorry "AGAIN" for neglecting my Kindred Spirits". As you know my youngest graduated high school, I'm sad and happy all at once, he has turned into a fine young man:). I've been spending a lot of my summer in my garden, although it's getting more and more difficult, I push myself, as I don't want to (please forgive me for saying it like this) lay down and die. I had yet another bad pet scan last week, again the chemo isn't working, so now were trying Navelbine, and that is the last one this girl is doing. This is 9 kinds of chemo and only the first couple really worked and even then the cancer returned in a few months. I don't want to say I'm giving up, because I'm not a quitter, however; I am planning on stopping chemo after this kind, put all my care in the hands of my palliative care doc, keep my pain under control and try to do a few more things. I'm so sorry for not posting more often, I dont get online often as I have so many things I need to take care of offline, as I'm sure everyone understands that. I'll do my best to keep everyone updated better:) now while my Internet is working good, I want to try and catch up on some of you. Big Cyber Hugs and Miles of Love ~ Kari

    Kari
    It is good to hear from you. I do understand when someone says enough is enough. I am always hoping something new will come up, but sometimes hope is not enough when in spite of the treatment, the cancer keeps on growing. I will pray that the palliative care will keep you comfortable and allow you to enjoy your life without being sick and exhausted all the time.

    Congratulations on your sons graduation. That is a big milestone. Glad you are enjoying your garden

    Love, hugs and prayers will continue coming your way.
    Carol
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
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    camul said:

    Kari
    It is good to hear from you. I do understand when someone says enough is enough. I am always hoping something new will come up, but sometimes hope is not enough when in spite of the treatment, the cancer keeps on growing. I will pray that the palliative care will keep you comfortable and allow you to enjoy your life without being sick and exhausted all the time.

    Congratulations on your sons graduation. That is a big milestone. Glad you are enjoying your garden

    Love, hugs and prayers will continue coming your way.
    Carol

    Hi Kari
    So good to hear from you. Continue to live large. Sending hugs and prayers to you.

    Suzanne
  • DebbyM
    DebbyM Member Posts: 3,289 Member
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    MAJW said:

    Good...
    To hear from you, yet I hate that your last scan wasn't what we'd hoped for....I admire your spirit, for whatever that means...I, too, am stage IV...So I quite understand....it sucks, big time! I hate this freaken disease! And I understand when you say enough! I will reach that point at some time...for now, it's back on chemo every 2 weeks, had 10 radiation treatments 9 weeks ago, to my brain....oh what fun that was! My third go round of radiation... Never experienced such fatigue! just now getting some energy back from that....then it's taking the hit with chemo! Never ending....

    Kari, Has your oncologist ever mentioned Avastin? Mine was able, through the manufacturer, to get me on it, after the FDA pulled it in Jan.for stage IV bc.....they replace what I'm given to my cancer center at no cost to us...my insurance company denied it as we knew they would due to FDA pulling it.....He said the FDA is now " taking another look" at it for stage IV bc......It's still being used for other types of cancer...It may be worth asking him if he can get you on it in addition to what you're taking now.....my oncologist has gotten quite a few on it.....The side effects from it are very minimal...I'm taking that along with Carboplatin...

    I wish you the very best...and sending prayers up for you...keep us posted when you can...you know we care deeply....
    Big hugs, Nancy

    I'm sending prayers and
    I'm sending prayers and cyber hugs! Enjoy your gardens Kari! I bet they are beautiful just like you.
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
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    I'm here, so sorry "AGAIN"
    I'm here, so sorry "AGAIN" for neglecting my Kindred Spirits". As you know my youngest graduated high school, I'm sad and happy all at once, he has turned into a fine young man:). I've been spending a lot of my summer in my garden, although it's getting more and more difficult, I push myself, as I don't want to (please forgive me for saying it like this) lay down and die. I had yet another bad pet scan last week, again the chemo isn't working, so now were trying Navelbine, and that is the last one this girl is doing. This is 9 kinds of chemo and only the first couple really worked and even then the cancer returned in a few months. I don't want to say I'm giving up, because I'm not a quitter, however; I am planning on stopping chemo after this kind, put all my care in the hands of my palliative care doc, keep my pain under control and try to do a few more things. I'm so sorry for not posting more often, I dont get online often as I have so many things I need to take care of offline, as I'm sure everyone understands that. I'll do my best to keep everyone updated better:) now while my Internet is working good, I want to try and catch up on some of you. Big Cyber Hugs and Miles of Love ~ Kari

    No need for 'sorry'!
    Sweet Kari... Enjoy your children, family, loved ones & your garden - to the utmost! And anything & everything else that brings you joy.

    I continue to HOPE with all my heart on your behalf. While also waving my magic wand, wishing for a miracle - if that's what you need.

    (((Hugs)))

    Kind regards, Susan
  • jnl
    jnl Member Posts: 3,869 Member
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    Hi Kari
    So good to hear from you. Continue to live large. Sending hugs and prayers to you.

    Suzanne

    How great to see you posting
    How great to see you posting Kari and it is great that you are enjoying your gardens. Big hugs, prayers and lots of strength!


    Love, Leeza
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    No need for 'sorry'!
    Sweet Kari... Enjoy your children, family, loved ones & your garden - to the utmost! And anything & everything else that brings you joy.

    I continue to HOPE with all my heart on your behalf. While also waving my magic wand, wishing for a miracle - if that's what you need.

    (((Hugs)))

    Kind regards, Susan

    Kari ---
    You continue to be in my thoughts, and prayers. I am happy to see that you are
    living 'life' large -- as it should be.

    Sounds like you have a plan of action, and options.

    I so admire you, and your WARRIOR spirit --

    Continued health, happiness and love.

    Vicki Sam
  • Dot53
    Dot53 Member Posts: 239 Member
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    Hi Kari
    So glad to see you checked in.. I think of you often and wondered how you were doing..
    Will keep you in my prayers dear sister..

    Love,
    Dot
  • Angie2U
    Angie2U Member Posts: 2,991
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    camul said:

    Kari
    It is good to hear from you. I do understand when someone says enough is enough. I am always hoping something new will come up, but sometimes hope is not enough when in spite of the treatment, the cancer keeps on growing. I will pray that the palliative care will keep you comfortable and allow you to enjoy your life without being sick and exhausted all the time.

    Congratulations on your sons graduation. That is a big milestone. Glad you are enjoying your garden

    Love, hugs and prayers will continue coming your way.
    Carol

    Loved seeing a post here
    Loved seeing a post here from you Kari and so great to know how much you love working in your gardens.

    Congrats on your sons graduating. I know you are one proud Mom!

    Hugs to you,

    Angie