The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Joint Pain AFTER Tamoxifen

debbiej954
debbiej954 CSN Member Posts: 1
in Breast Cancer #1
I was on Tamoxifen for 3-1/2 years. I stopped taking it June 2011 due to extremely painful periods. The past few months I've been having joint pains in my hip/legs. I'll be sitting for 30 minutes, get up and be in pain. Although I am only 41 years old, I'm going for a bone density test (and blood work) next week. I was wondering if anyone else had this problem after being on Tamoxifen.
Like Care

Comments

  • disneyfan2008
    disneyfan2008 CSN Member Posts: 6,583 Member
    #2
    I am still on tamoxifen
    I am still on tamoxifen (Sept will be 4 yrs..) I have terriable legs cramps that seem like last for 10 mins..I know less...but during that time...ouch.....

    only other issue I had was THICKENED UTERUS-which is now not an issue since Last May (almost a year) had totaly hysterctomy

    Denise
    Like Care
  • JuJuBeez
    JuJuBeez CSN Member Posts: 332
    #3
    I have been on Tamoxifen for
    I have been on Tamoxifen for 2 1/2 years. I was having a lot of joint and bone pain until the past couple of months. I was taking ibuprofen every day, and after a while it didn't seem to help. My Vit D level has been very low... single digit, for the past few years. I've been taking 5,000 units of Vit D (at dr request) plus I take a Claritin every day. I have heard that each of these can help with bone pain. I'm not sure which one, or if both, are helping. I have noticed such a difference in how I feel. (Knock on wood, I don't want to jinx anything...)

    Have you had your Vit D level checked lately? If not, see if they will throw that in the mix of your blood work.
    Like Care

Discussion Boards