port removal

Kaleena

light42day said:

Wish I could get the port out right now
I just finished my Taxol/ Carbo treatments but my doctor wants me to wait two months before I have my port removed so I have time to recover first. My port seems like it has shifted or something and is lying on it's side now with the edges sticking straight up! Has anyone had this happen? I'd sure like to get it out of there soon!

My port twisted and shifted
My port twisted and shifted and it was in my breast area so it didn't outright show on the surface and getting it flushed can be more of a task if you have an inexperienced nurse. Request a nurse that has more experience in ports. It makes a big difference.

I hope you get yours out soon. My doctor wanted me to wait a couple of months. Then a couple of months more. and then a couple of months more. Because it wasn't determined where my cancer originated from, he felt better leaving it in. Then he tells me we'll leave it in a bit more because it is easier taking it out than putting in it. But then he retired and the new doctor didn't want to remove it. So for almost six years after treatment, I kept going monthly to get it flushed out. I finally got it out in October.

But if it is two twisted or it can't be flushed, request the removal.

chicainwa2001

lovesanimals said:

I appreciate your port question
and also feel reassured by the responses from the other women here. I'm a stage 2b ovarian cancer survivor who is fortunate to be currently NED. My chemo treatments ended a little over a year ago and I still have my port. At first I didn't want to even think about getting it removed, because I was afraid that the minute I had it taken out, my cancer would return. While my oncologist has already talked to me about its removal, he has also been supportive and sensitive to my fears. Lately, I've been thinking it's time to have it removed. Thanks to the discussion on this board, I think I'll have it removed sooner rather than later.

Kelly

hi Kelly

I also had stage 2b ovarian cancer. Diagnosed 4 years ago at 29 years old. I had 6 rounds of cisplatin/taxol. Was just wondering though how you are doing after 5 years?

Cheryl

Moped7946

Flushing the port

I forgot about having mine flushed on a regular basis...I hope it hasn't become attached to my body like some kind of bionic thing...it kind of grosses me out now..had it for about two years...stage 3c endometrial cancer...I am oretty sure they will want to remove it this summer...I DO NOT want to be awake for this...

CheeseQueen57

Moped7946 said:

Flushing the port

I forgot about having mine flushed on a regular basis...I hope it hasn't become attached to my body like some kind of bionic thing...it kind of grosses me out now..had it for about two years...stage 3c endometrial cancer...I am oretty sure they will want to remove it this summer...I DO NOT want to be awake for this...

Port

I’ve had mine for 2 years and since I’ve re-occurred I guess it’s permanent.  

TeddyandBears_Mom

Moped7946 said:

Flushing the port

I forgot about having mine flushed on a regular basis...I hope it hasn't become attached to my body like some kind of bionic thing...it kind of grosses me out now..had it for about two years...stage 3c endometrial cancer...I am oretty sure they will want to remove it this summer...I DO NOT want to be awake for this...

Moped, I was awake when they

Moped, I was awake when they removed mine. It really isn't bad at all. They numb the area so you don't feel anything except a little pressure. I put lidocaine on so that I didn't feel too much of the numbing shots. Like you, I dreaded being awake for it, but was pleasantly surprised by how easy it was. And, I was so relieved to get that thing out. Mine bothered me the entire time I had it in.

Hope this helps!

Love and Hugs,

Cindi

Moped7946

TeddyandBears_Mom said:

Moped, I was awake when they

Moped, I was awake when they removed mine. It really isn't bad at all. They numb the area so you don't feel anything except a little pressure. I put lidocaine on so that I didn't feel too much of the numbing shots. Like you, I dreaded being awake for it, but was pleasantly surprised by how easy it was. And, I was so relieved to get that thing out. Mine bothered me the entire time I had it in.

Hope this helps!

Love and Hugs,

Cindi

TeddyandBears_Mom

Thank you! Mine doesn't really bother me all that much but I CAN feel something in there sometimes...

lumberjack81

Well here goes! Last year in May of 2024 when I was told that I had to have chemo the oncologist said that it was to facilitate the insertion of chemo. The oncologist also told me that after the chemo sessions and radiation were completed and my results were favorable the port would be removed. Since that time I have had an MIR , a CT/PET scan and blood work; all showed good results and no tumor. Last week during my appointment I asked to have the port taken out. The doctor refused and told me he wanted to do further tests with a sigmoidoscopy and biopsy to make sure the cancer did not spread. He explained that the scar tissue on my colon would have to be penetrated so that the technician could access the sphincter muscle and take a biopsy. I remembered conversations with patients and nurse practitioners while getting chemo and radiation and was told repeatedly that there were cases of significant bleeding and even hemorrhages from rectal biopsies; one patient had to have surgery and had to be equipped with a bag; while another woman told that she was cancer free but that after the biopsy she received she had to go back on chemo because her cancer had returned. This was not what I wanted to hear; I just don't have any faith or confidence in any doctor now that I have been manipulated and essentially deceived into believing that the port would be removed after the chemo and radiation were completed . Actually I was lied to by the oncologist. It appears that this cancer issue that we are threatened with is a lucrative never ending business to enhance the pockets of the medical profession and big Pharma.