I'm just not the same...Had mri...need a new hip!

24

Comments

  • RoseC
    RoseC Member Posts: 559
    #22
    sandysp said:

    Lyrica
    I hate to sound like a commercial. I am suffering with these types of symptoms too. I do Tai Chi and Chi Gong which really helps but also take Lyrica three times a day. I know when I am late or missed a dose. It was prescribed to me before I was diagnosed for pain in my legs mostly that now I believe was caused by the tumor and now by the scar tissue. This is the first week I got on my exercise bike. I stayed on for 8 minutes. My right leg pulls to the right and I have to throw my leg forward when I get fatigued which is often. I walk our dog a mile a day most days. I Fell flat on my face last week. It is interesting to be on this site again. What is described here is exactly what has been troubling me . . . the fear that I am getting worse and the cancer is back. It seems the scar tissue is changing. I have had some sharp jagged pains in my anus from time to time and can really feel where the tumor was almost like when I first was diagnosed and doctors were pushing on it during examination. It really helps to hear you bring this up. Thanks.

    Hi Sandy - please try not to
    Hi Sandy - please try not to worry about the leg kicking out. I had the same thing happen - for several months. It's gone away now. Don't worry - it's only the residue of the treatment - why, I don't know (but it went away). Keep doing what you're doing. It'll go away.
  • z810840b
    z810840b Member Posts: 207 Member
    #23
    RoseC said:

    Hi Sandy - please try not to
    Hi Sandy - please try not to worry about the leg kicking out. I had the same thing happen - for several months. It's gone away now. Don't worry - it's only the residue of the treatment - why, I don't know (but it went away). Keep doing what you're doing. It'll go away.

    thanks
    Thank you all for your 'war stories"It helps to know i am not alone.I think we have to just keep moving...stretching and exercise must be a part of our normal routine.I just turned 59 and am worried how i will be in 5 years..or 10 years.i live in southern florida and see elderly people with walkers and wheel chairs..i often wonder..will that be me???I hope not...Thanks all...hugs..alyse
  • mp327
    mp327 Member Posts: 4,440 Member
    #24
    z810840b said:

    thanks
    Thank you all for your 'war stories"It helps to know i am not alone.I think we have to just keep moving...stretching and exercise must be a part of our normal routine.I just turned 59 and am worried how i will be in 5 years..or 10 years.i live in southern florida and see elderly people with walkers and wheel chairs..i often wonder..will that be me???I hope not...Thanks all...hugs..alyse

    Keep moving, alyse!
    I believe that's the best thing any of us can do. I have aches and pains that I never had previously, but crazy or not, I am doing my very first marathon at age 58 on April 21st.! I know I will hurt when it's over, but that's what Advil is for! Keep up with the stretching and toning--it helps tremendously!
  • tmpage1273
    tmpage1273 Member Posts: 92 Member
    #25
    mp327 said:

    Keep moving, alyse!
    I believe that's the best thing any of us can do. I have aches and pains that I never had previously, but crazy or not, I am doing my very first marathon at age 58 on April 21st.! I know I will hurt when it's over, but that's what Advil is for! Keep up with the stretching and toning--it helps tremendously!

    Good luck
    If I don't talk to you again, congratulations on the marathon!!! I think that's awesome!
  • sephie
    sephie Member Posts: 650 Member
    #26
    z810840b said:

    thanks
    Thank you all for your 'war stories"It helps to know i am not alone.I think we have to just keep moving...stretching and exercise must be a part of our normal routine.I just turned 59 and am worried how i will be in 5 years..or 10 years.i live in southern florida and see elderly people with walkers and wheel chairs..i often wonder..will that be me???I hope not...Thanks all...hugs..alyse

    i can relate
    i feel the same. i just try so hard to be grateful for what ever i can do each day but i get so fed up with all the stuff i have to do to get going. here i am again, complaining and really i am sooooooo grateful for how far i have come after the tx. despite the bad stuff. i will be 59 in july. sephie
  • sandysp
    sandysp Member Posts: 868 Member
    #27
    mp327 said:

    Keep moving, alyse!
    I believe that's the best thing any of us can do. I have aches and pains that I never had previously, but crazy or not, I am doing my very first marathon at age 58 on April 21st.! I know I will hurt when it's over, but that's what Advil is for! Keep up with the stretching and toning--it helps tremendously!

    Congratulations
    It is wonderful to hear you are working out in preparation for a marathon. You certainly are an example that anything is possible. I am glad Ibuprofen helps you.
  • mp327
    mp327 Member Posts: 4,440 Member
    #28
    tmpage1273 said:

    Good luck
    If I don't talk to you again, congratulations on the marathon!!! I think that's awesome!

    Thank you!
    I very much appreciate your good wishes!
  • sandysp
    sandysp Member Posts: 868 Member
    #29
    z810840b said:

    thanks
    Thank you all for your 'war stories"It helps to know i am not alone.I think we have to just keep moving...stretching and exercise must be a part of our normal routine.I just turned 59 and am worried how i will be in 5 years..or 10 years.i live in southern florida and see elderly people with walkers and wheel chairs..i often wonder..will that be me???I hope not...Thanks all...hugs..alyse

    Understanding
    Sometimes I have to move as slowly as my mother who is 85 to get around.I am 62 and look forward to feeling better next year than maybe this one and last. Not everyone can say that. We were diagnosed and treated successfully. That's a really good thing. But it sucks to hurt when I move so I get totally what you are saying. Happy Easter and/or Passover.

    Fondly,
  • mp327
    mp327 Member Posts: 4,440 Member
    #30
    sandysp said:

    Congratulations
    It is wonderful to hear you are working out in preparation for a marathon. You certainly are an example that anything is possible. I am glad Ibuprofen helps you.

    Hi Sandy!
    Thank you so much for the kind words! As a smart person once said, "You'll never know how far you can go until you go too far!" I guess I'm about to find out.
  • tmpage1273
    tmpage1273 Member Posts: 92 Member
    #31
    mp327 said:

    Hi Sandy!
    Thank you so much for the kind words! As a smart person once said, "You'll never know how far you can go until you go too far!" I guess I'm about to find out.

    Go for it!
    And let us know how you do.
    PS. I accidentally hit report as offensive instead of reply I think. SO SORRY!
  • AZANNIE
    AZANNIE Member Posts: 445 Member
    #32
    mp327 said:

    Keep moving, alyse!
    I believe that's the best thing any of us can do. I have aches and pains that I never had previously, but crazy or not, I am doing my very first marathon at age 58 on April 21st.! I know I will hurt when it's over, but that's what Advil is for! Keep up with the stretching and toning--it helps tremendously!

    Marathon Martha
    Best wishes on your upcoming marathon!!! You go girl!!


    Ann
  • mp327
    mp327 Member Posts: 4,440 Member
    #33
    AZANNIE said:

    Marathon Martha
    Best wishes on your upcoming marathon!!! You go girl!!


    Ann

    Thank you, Ann!
    I'm going to give it my best shot!
  • mxperry220
    mxperry220 Member Posts: 496 Member
    #34
    mp327 said:

    Thanks Mike
    I appreciate your response to my question. I am taking Lipitor too--40 mg. per day. I really feel I am having some effects from it, but like you, my primary care doctor is insisting that I take a statin. I am due to see her soon and am going to have a discussion with her about this. I really would like to discontinue taking it. Thanks again!

    You Are Welcome
    You might want to ask your doctor if you can quit taking your meds for one month and see if there is any relief. If so then your doctor might could put you on a different statin. I was taking one Lipitor 40 mg. daily.
  • mp327
    mp327 Member Posts: 4,440 Member
    #35
    mxperry220 said:

    You Are Welcome
    You might want to ask your doctor if you can quit taking your meds for one month and see if there is any relief. If so then your doctor might could put you on a different statin. I was taking one Lipitor 40 mg. daily.

    Thanks Mike--
    I am also taking one 40 mg. Lipitor daily. I am due to see my internist soon and will be having a discussion with her about this. Thanks!
  • sandysp
    sandysp Member Posts: 868 Member
    #36
    Angela_K said:

    Alyse
    I was finding myself exhausted some days as well. A regular Pilates practice and subscribing to a Paleo diet has helped me greatly . . .like night and day, in fact. The late Joesph Pilates summed it all up when he said:

    "A body freed from nervous tension and over-fatigue is the ideal shelter provided by nature for housing a well-balanced mind that is always fully capable of successfully meeting all of the complex problems of modern living."

    Pilates focuses on strengthening your core or 'powerhouse' - abs, lower back and butt through control, breath, flow, precision, stability, and centering. It's gentle, limited to your natural range of motion, and just feels good. (Especially with the stiffness I have now in my hips.) I am now the Pilates instructor at one of our local hospitals' health club and I would be delighted to answer any questions you may have regarding this method of body conditioning. You will find this 20 minute video all you need to get started.
    http://www.youtube.com/watch?v=YW2eRv4kCag&NR=1&feature=endscreen
    but if this sounds like something you would be interested in pursuing, I encourage you to find a reputable instructor in your area to get the most out of it.

    Dropping grains, sugar and all processed food made a huge impact on my energy level. It is a committed lifestyle change, but for me, it has been worth it. I had to totally approach food differently from what had been hammered into my brain for years. The science is there to support the Paleo diet. I just had a check-up and the doctors said my bloodwork was "beautiful."

    I've started a blog, awakeontheconcho.blogspot.com, that you just may find helpful, too.

    And on an end note ~ I still don't have all of the energy (on a consistent basis) that I used to have. But I'm much, much closer now that I practice Pilates daily and have changed my eating.

    Hope some of this helps.

    Angela

    I am open to change by necessity
    I am so glad to hear you are still doing well. It is clear I have to change my diet. I have way too much acid and asthma reflus and it will be the end of me if I don't find ways to change. I made a lasagne the other night and could not believe I was doing it. I can't eat lasagne. I didn't even do well eating it before I had treatment! I don't know what I was thinking. I have an 82 year old friend who jumps around like a child - even did the limbo at her 80th birthday party. She is on the raw diet and only has one warm meal a week. No dairy, no eggs - strictly vegan and raw. She is the power of example. Thanks for your post.n You are a terrific resource.
    Fondly
    Sandy
  • sandysp
    sandysp Member Posts: 868 Member
    #37
    melissatrenary said:

    The Gerson Therapy
    Please just check it out!! Organic, specific, fresh food & Juicing. Also, check out the NIACIN therapy. Hope you feel better!

    My 82 year old friend loves Gerson
    Thanks for your post. The name rang a bell because my 82 year old "youngster" friend says his name all the time. She is very strict about her intake and it shows.
    Fondly,
    Sandy
  • sandysp
    sandysp Member Posts: 868 Member
    #38
    melissatrenary said:

    The Gerson Therapy
    Please just check it out!! Organic, specific, fresh food & Juicing. Also, check out the NIACIN therapy. Hope you feel better!

    My 82 year old friend loves Gerson
    Thanks for your post. The name rang a bell because my 82 year old "youngster" friend says his name all the time. She is very strict about her intake and it shows.
    Fondly,
    Sandy
  • sandysp
    sandysp Member Posts: 868 Member
    #39
    melissatrenary said:

    The Gerson Therapy
    Please just check it out!! Organic, specific, fresh food & Juicing. Also, check out the NIACIN therapy. Hope you feel better!

    My 82 year old friend loves Gerson
    Thanks for your post. The name rang a bell because my 82 year old "youngster" friend says his name all the time. She is very strict about her intake and it shows.
    Fondly,
    Sandy
  • z810840b
    z810840b Member Posts: 207 Member
    #40
    mp327 said:

    Keep moving, alyse!
    I believe that's the best thing any of us can do. I have aches and pains that I never had previously, but crazy or not, I am doing my very first marathon at age 58 on April 21st.! I know I will hurt when it's over, but that's what Advil is for! Keep up with the stretching and toning--it helps tremendously!

    marathon
    Wohoo martha!!! You are my idol..Good luck at the marathon...hugs ..alyse
  • mp327
    mp327 Member Posts: 4,440 Member
    #41
    z810840b said:

    marathon
    Wohoo martha!!! You are my idol..Good luck at the marathon...hugs ..alyse

    Thanks alyse!
    I am going to do my best to complete this marathon, not just for me, but everyone here and elsewhere who has fought hard to beat this disease! Thanks for the good wishes!

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