Good news if you like to limbo

grams2jc

Saw my RO today and got the results of last week's brain MRI....The lesion that had been 4 mm is now, 3mm, they think that is the measurement but they said it was indistinct and very hard to measure. The other lesion which at last MRI was 1.4 cm is now 9 mm. He didn't rec. any immediate cyber knife treatment because he says this could be scar tissue or completely dormant and we wouldn't know for sure about that without a biopsy, which he didn't really want to do. I don't want a biopsy either but also do not want to be snuck up on again,so he is going to set me up with a consult with the cyber knife doc and see what he says. Next MRI is in 3 months.....Limbo anyone?

Best thing, it shrunk more, nothing new popped up,and maybe I will eventually get over these rads side effects.

Frying your brain really is a lot to deal with, maybe I should start talking to teen-aged drug users, as long as I can remember what I want to say that is, LOL

Wishing everyone the best possible results of any test and many happy healthy days,

Jennifer

butterflylvr

Buddy...
I think this news is encouraging. Like you said nothing new popped up and nothings gotten bigger. I think waiting 3 months for the next MRI might be a good thing. If nothing has worsened in that time it will bring part of your confidence back with each passing month. You are such an inspiration to me. Keep that sense of humor...

Hugs,
Lorrie

New Flower

Congratulation with Encouraging news
Jennifer,
your news have a big promise for the future. Please keep your positive attitude and great sense of humor. Wishing you quick recovery from this demanding treatment
Hugs

SIROD

Limbo
Three months seems like a long time but, it will be here before you know it. Decrease is always better than an increase so that is good. I imaging that they are hard to measure in a scan.

I do hope the cyber knife radiologist will be able to help you.


Do hope you feel better soon and in the mean time enjoy that new grand baby.

Best,

Doris

carkris

SIROD said:

Limbo
Three months seems like a long time but, it will be here before you know it. Decrease is always better than an increase so that is good. I imaging that they are hard to measure in a scan.

I do hope the cyber knife radiologist will be able to help you.


Do hope you feel better soon and in the mean time enjoy that new grand baby.

Best,

Doris

Unfortunately you will have
Unfortunately you will have to take the wait and see approach which is excrutiating. But the news is encouraging that the lesions could be dead tumor residual. which is great news. you know giving it 3 months is hard on the psyche but good on the body/brain. giving it time to heal and you to recover. This disease is so hard because one always lives with the what ifs. No definitive end. Someone asked me if I put it away between onc visits. I said it is always there, my life is forever changed. but that I try to not live in fear but i think about it all the time. people who dont live with it cant imagine. Enjoy the 3 months of healing, I hope you get the answers you need from the cyber knife doc!!!!

missrenee

carkris said:

Unfortunately you will have
Unfortunately you will have to take the wait and see approach which is excrutiating. But the news is encouraging that the lesions could be dead tumor residual. which is great news. you know giving it 3 months is hard on the psyche but good on the body/brain. giving it time to heal and you to recover. This disease is so hard because one always lives with the what ifs. No definitive end. Someone asked me if I put it away between onc visits. I said it is always there, my life is forever changed. but that I try to not live in fear but i think about it all the time. people who dont live with it cant imagine. Enjoy the 3 months of healing, I hope you get the answers you need from the cyber knife doc!!!!

I like that there was shrinking
and nothing new--that, to me, is very good. Like carkris said, we try not to live in fear, but, hey, we're human. Some days go well and others--well, it just comes crashing down. This is the real bi**h of this disease that no one understands unless they're living it--it's always there. Whether in the forefront or the background.

I'm hoping you can have many more good days than bad--that is all any of us can hope for.

Praying for you, sweetie.

Hugs, Renee

grams2jc

Thanks everyone!
Was just hoping for the perfect, definitive answer. Kind of hard to learn to deal with anything other than black or white....gotta learn to love shades of gray now.

On another note, will be cutting back my work hours on 4/2, filing for social security disability and only working $1010 a month or less. Thankfully I can stay with my current employer, just leave my full time position and go to an easier part-time slot.

Looks like I will have more time to ride the pink bus!

Jennifer

laughs_a_lot

grams2jc said:

Thanks everyone!
Was just hoping for the perfect, definitive answer. Kind of hard to learn to deal with anything other than black or white....gotta learn to love shades of gray now.

On another note, will be cutting back my work hours on 4/2, filing for social security disability and only working $1010 a month or less. Thankfully I can stay with my current employer, just leave my full time position and go to an easier part-time slot.

Looks like I will have more time to ride the pink bus!

Jennifer

Yes the grey
However, the job front news is seeming more certain. It also gives you more time for being good to yourself and recovery.

MAJW

laughs_a_lot said:

Yes the grey
However, the job front news is seeming more certain. It also gives you more time for being good to yourself and recovery.

I GET IT!!!!
Trying to get over the side effects of brain rads is unreal! I was told to expect fatigue but I've never experienced such overwhelming fatigue in my life! I don't know how you continue to work! You truly are my inspiration!
I am FINALLY weaned off steroids..... I HATE that drug! It caused me a lot of misery!

I am so happy that there's nothing new on your scans....Thank GOD!
I had 3 small spots show up on my last scan....knocked my socks off! Had 10 radiation treatments....and had no choice but to take steriods to prevent swelling in thevbrain....

Wishing you all my very best!
Hugs, Nancy

Kat11

MAJW said:

I GET IT!!!!
Trying to get over the side effects of brain rads is unreal! I was told to expect fatigue but I've never experienced such overwhelming fatigue in my life! I don't know how you continue to work! You truly are my inspiration!
I am FINALLY weaned off steroids..... I HATE that drug! It caused me a lot of misery!

I am so happy that there's nothing new on your scans....Thank GOD!
I had 3 small spots show up on my last scan....knocked my socks off! Had 10 radiation treatments....and had no choice but to take steriods to prevent swelling in thevbrain....

Wishing you all my very best!
Hugs, Nancy

Smaller is always better
Smaller is always better right. You are a very positive strong funny lady for sure. I hope you kick this cancer back to the Hell it belongs in. Hugs
Kathy

Angie2U

New Flower said:

Congratulation with Encouraging news
Jennifer,
your news have a big promise for the future. Please keep your positive attitude and great sense of humor. Wishing you quick recovery from this demanding treatment
Hugs

This is good news and I pray
This is good news and I pray that it just keeps on coming for you!


Hugs, Angie

Alexis F

grams2jc said:

Thanks everyone!
Was just hoping for the perfect, definitive answer. Kind of hard to learn to deal with anything other than black or white....gotta learn to love shades of gray now.

On another note, will be cutting back my work hours on 4/2, filing for social security disability and only working $1010 a month or less. Thankfully I can stay with my current employer, just leave my full time position and go to an easier part-time slot.

Looks like I will have more time to ride the pink bus!

Jennifer

This is very good news
This is very good news Jennifer!

Hugs, Lex