Taste

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Comments

  • tommyodavey
    tommyodavey Member Posts: 728 Member
    #22
    Tonsil Dad said:

    Ask.
    As you know I take a lot of alternative products, but I have shown these products
    to my Rad Oncologist and Nutritionist and they said that these are ok ( The ones for
    my immune system) but not to take the super antioxidents and high doses of
    Vitamin C. So to anyone taking supplements or any kind of alternative pills check
    with your Docs first, because the last thing you want is for them to interfere with
    Your treatment and cause problems.
    Better to be safe than sorry.

    God bless
    Tonsil Dad,

    Dan.

    Good Advice
    I too agree with the above statements. As I started my RT, I asked about a moisturizer cream I use after bathing. My tech told me to not use it until it's cleared by the Dr. She said it may contain metals. Sure enough, I checked the ingredients and it had iron in it. Didn't even bother to ask the Dr., just asked them what to use for the rad burn.

    Tommy
  • francma
    francma Member Posts: 69 Member
    #23
    altered taste buds
    If your doctor advises a peg tube, I would highly recommend it. I am 13 months post treatment. For awhile there, I was unable to eat or drink anything. It took along time to get that confidence back and to be able to eat comfortably. I am a small person so fortunately I only lost 7 lbs, and that's with the peg! I'm sure I would not have lived without it. I've eaten normal amounts of food now since 1 1/2 months ago. Will finally have it removed next week.
    I did read that zinc could help and bought it. But foolishly I didn't give it a try as I'm afraid of taking anything. My doctor didn't think it would help, but I say try it. It takes alot of patience and he needs to retry things every week. I definitely felt the frustration. It will come back! My doctor highly recommended Carnation Breakfast drink, if not, ensure. Prayers sent for your husband.

    Fran~
  • Zorba
    Zorba Member Posts: 5
    #24
    Tonsil Dad said:

    Ask.
    As you know I take a lot of alternative products, but I have shown these products
    to my Rad Oncologist and Nutritionist and they said that these are ok ( The ones for
    my immune system) but not to take the super antioxidents and high doses of
    Vitamin C. So to anyone taking supplements or any kind of alternative pills check
    with your Docs first, because the last thing you want is for them to interfere with
    Your treatment and cause problems.
    Better to be safe than sorry.

    God bless
    Tonsil Dad,

    Dan.

    Taste, Siliva and throat pain 10 weeks post radiation!
    Mr. Tonsil Dad,

    I am 10 weeks post Radiation for Stage 4 SC. Ca left Tonsil bed with mets to left neck. Operated at Mayo Rochester had Robot surgery, told had great results? However I still have significant pain in the tonsil area and taste / saliva are still nonexistent. My entire body is generally sore especially my spine and ribs, anybody experienced these issues this long after treatment?

    Many thanks, I have learned a lot from the many responses on this website.

    Zorba
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #25
    Zorba said:

    Taste, Siliva and throat pain 10 weeks post radiation!
    Mr. Tonsil Dad,

    I am 10 weeks post Radiation for Stage 4 SC. Ca left Tonsil bed with mets to left neck. Operated at Mayo Rochester had Robot surgery, told had great results? However I still have significant pain in the tonsil area and taste / saliva are still nonexistent. My entire body is generally sore especially my spine and ribs, anybody experienced these issues this long after treatment?

    Many thanks, I have learned a lot from the many responses on this website.

    Zorba

    Ten Weeks...
    Zorba, while that sounds like a long time to heal normally. I wouldn't necessarily say it is under the circumstances.

    As for taste and saliva, it definitely isn't a long time considering. It took nearly two years for mine to nearly entirely return. Though I did start having improvement with in a few months post treatment. For me that was STGIII Tonsils and a lymhpnode, tonsils out, chemo and rads.

    If the pain is too bad or if nothing else to ease your mind, maybe you should communictae and consult with your MD's.

    Best,
    John
  • Billie67
    Billie67 Member Posts: 898
    #26
    francma said:

    altered taste buds
    If your doctor advises a peg tube, I would highly recommend it. I am 13 months post treatment. For awhile there, I was unable to eat or drink anything. It took along time to get that confidence back and to be able to eat comfortably. I am a small person so fortunately I only lost 7 lbs, and that's with the peg! I'm sure I would not have lived without it. I've eaten normal amounts of food now since 1 1/2 months ago. Will finally have it removed next week.
    I did read that zinc could help and bought it. But foolishly I didn't give it a try as I'm afraid of taking anything. My doctor didn't think it would help, but I say try it. It takes alot of patience and he needs to retry things every week. I definitely felt the frustration. It will come back! My doctor highly recommended Carnation Breakfast drink, if not, ensure. Prayers sent for your husband.

    Fran~

    Just based on your picture,
    Just based on your picture, you seem little like me! I am 2 weeks done with RT and 4 weeks done erbitux. I've lost almost 11lbs and that is also with a tube. So far I'm having a hard time putting it back on! Any advice on how you got your weight back? Funny people think thin people have it so easy but I think not! I always had to work on keeping weight on and now it's even harder!
  • Paintraind1
    Paintraind1 Member Posts: 3
    #27
    Taste
    Linda: Hello my name is Jerry Owens. when my treatment was over in Feb.2001 I couldn't eat for 9 months,but the Lord mercy keep me full! I can't hold down any foods or liquids . When I final began to eat,my first meal was a bowl of egg drop soup which took me 5 days to complete.Also ice cream goes down well regardless of the taste. I am praying for you guys, hope my experience help some.
  • TheDane
    TheDane Member Posts: 27
    #28
    Too much taste - and it's bad
    No taste? Wow - I'd love that!
    I'm almost 2 years out and everything burns and tastes too strong.
    NO taste would be my dream. Then I could just eat without pain.
    ZINC- my experience has been that it lessens "Bad" mouth tastes but has not done anything to regrow taste buds or anything like that.
    If your husband's experience is simply muted taste or lack of taste, then I envy him.
    But if food tastes BAD - then that's a hell I am very familiar with.

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