Second round of chemo

jgwright

Well, I started round #2 today. Leukovorin, oxaliplatin, and 5FU. So, we shall see what we shall see. I have the wonderful little pump for the next couple of days, Then two weeks of recovery, and then chemo and the pump again for 6 rounds of chemo every two weeks, and a CT scan again. So we shall see what we shall see. Did have a bit of finger tingling when I ran the garbage container out to the curb. Cold, don'tchaknow... Feels fine now.

--Jerry

Unknown

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megmacmd

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PET SCAN
My insurance company would not approve a PET they would only cover a CT scan.My doctor tried very hard even talked to the director but no go.I must agree a PET scan is going to show hot spot that dont show up on a CT scan.Pet is so much more sensitive since it picks up rapid sugar consuming areas that are indicative of cancer cells rapidly dividing.But unfortunately am at the mercy of the insurance company

ECson

My Dad
My Dad is right in the middle of his 2nd stage of chemo. First stage he had cisplatin, taxotere, and 5FU pump for two days. This second round is cisplatin an 5FU pump for 5 days. The 5FU this time around crushed his mouth on days 7-10 after pump was removed. We ended up having him go get IV fluids on day 10 cause he was having trouble getting anything down. He is at day 16 now and the sores are gone and he is getting his feet back under him. They gave him a lidocaine mouth rinse that helped alot. Hope everything goes well with your treatment, we have been blessed as Dad is a stage IV who is in complete clinical remission.

Freida

ECson said:

My Dad
My Dad is right in the middle of his 2nd stage of chemo. First stage he had cisplatin, taxotere, and 5FU pump for two days. This second round is cisplatin an 5FU pump for 5 days. The 5FU this time around crushed his mouth on days 7-10 after pump was removed. We ended up having him go get IV fluids on day 10 cause he was having trouble getting anything down. He is at day 16 now and the sores are gone and he is getting his feet back under him. They gave him a lidocaine mouth rinse that helped alot. Hope everything goes well with your treatment, we have been blessed as Dad is a stage IV who is in complete clinical remission.

ECson - your Dad's situation
ECson - your Dad's situation sound like Bill's. His first 2 months of chemo it was carboplatin, taxotee, and the 2 day 5FU pump. For the 6 week chemoradiation phase they upped the 5FU to 5 days a week and he also has had problem with mouth sores - ulcers all over the place. They reduced the 5FU strength by 1/3 and also prescribed the lidocaine mouth wash. But they didn't prescribe it until the 3rd time he reported it. The first 2 times the PA then the doc just told him to use baking soda. The 3rd (weekly) visit the nurse who had been absent the last 2 times, took one look at his mouth and said "oh, we have a medicine for that", and made sure he was prescribed it. Thank goodness for nurses.

Nice to read about a stage 4 survivor. Bill is stage 3, but not a surgery candidate so reading positive stories is really encouraging.

ECson

Freida said:

ECson - your Dad's situation
ECson - your Dad's situation sound like Bill's. His first 2 months of chemo it was carboplatin, taxotee, and the 2 day 5FU pump. For the 6 week chemoradiation phase they upped the 5FU to 5 days a week and he also has had problem with mouth sores - ulcers all over the place. They reduced the 5FU strength by 1/3 and also prescribed the lidocaine mouth wash. But they didn't prescribe it until the 3rd time he reported it. The first 2 times the PA then the doc just told him to use baking soda. The 3rd (weekly) visit the nurse who had been absent the last 2 times, took one look at his mouth and said "oh, we have a medicine for that", and made sure he was prescribed it. Thank goodness for nurses.

Nice to read about a stage 4 survivor. Bill is stage 3, but not a surgery candidate so reading positive stories is really encouraging.

No sx for us either
As you know stage IV's don't typically have a sc option. We are hoping for long term (3-5 years) remission! It would be great to have him around for a bunch more years. 3.5 weeks a rads left and one more chemo treatment then we are done for the time being!

AngieD

ECson said:

No sx for us either
As you know stage IV's don't typically have a sc option. We are hoping for long term (3-5 years) remission! It would be great to have him around for a bunch more years. 3.5 weeks a rads left and one more chemo treatment then we are done for the time being!

Jerry, I'm glad your chemo
Jerry, I'm glad your chemo is progressing and hoping for great results on your next CT scan. Larry had 9 rounds of Oxaliplatin and Xeloda (oral 5FU) with good results. His experience was the cold sensitivity got progressively worse with the oxaliplatin. So, thankfully, for you, spring is on the way! We hung gloves on the frig, but it is SO easy just to automatically reach in for something. I'm sure you know from your previous chemo to keep well hydrated. Good luck!!
Angie

megmacmd

chemo
Hi Jerry I had them same chemo called flofox .Did 12 rounds over 9months some every other week sometimes had to skip due to blood counts.Had my friendly 5FU pump.LOst some hair but not all .Got the tingling in my fingers for about 24 -48 hours after. Toward the last couple of treatment tingling got a little worse.still have a little reiduals but 100% better.Biggest thing was dry mouth lack of appetite and fatigue. But it worked everything nodes and esophageal cancer shrank alot and have been symptom free as far as swallowing and eating now.Hope you have the same results and not too many side effects. I managed to work through the whole time.Be sure to take care of your mouth can get tooth decay from dry mouth. Biotene helped some. Good luck .Hope the side effects are few and it works as well for you as it did me. Meg Mac