Update - HIPEC surgery??

LivinginNH
LivinginNH Member Posts: 1,456 Member
in Colorectal Cancer #1
Hi all,

Well, unfortunately, we didn't get the news that we were hoping for today. We picked up the PET/CT scans (no time to wait for the written report) from Dana Farber and brought them directly over to the HIPEC surgeon. He told us that the scans showed some tumor growth, but not too bad, so he scheduled the HIPEC operation for late March. However, after that appointment, we went back to Dana Farber to see Rick's oncologist. She told us that there was more cancer spread, the old tumor grew, a pelvic lymph node showed uptake, and the liver showed some uptake on the surgical margins of the prior liver resection (but no actual tumor). Soooo.....she doesn't feel as if the surgery would benefit him since the cancer is throughout his body due to it invading the lymphatic system. Therefore, she's going to discuss the test results and offer her opinion to the surgeon tomorrow or Friday. I don't need to tell you all how disappointing this was for us. It actually feels like a mule just kicked me in the stomach. :-(

Anyway, as an aside to this, after she was finished reviewing the results with us, I asked her if she knew of any new drugs about to go "live". She very excitedly told us that Regorafenib showed great promise with a significant extended survival period. I was a little skeptical of this statement since I had read that it only extended survival by two months. So, I asked, "Does the significant extended survival period mean two YEARS, or, two MONTHS?" She then looked at me curiously and said, "Well, two months, but that is statistically very significant!!" Um, well, not really my dear doctor - at least not enough to get that excited about. Sigh... So, here we sit awaiting news on whether or not the surgeon believes that another HIPEC surgery will be of benefit, or if he'll change his mind now that he has the written report on all of the new details. As always, time will tell... Luv to all, Cyn

Comments

  • tommycat
    tommycat Member Posts: 790 Member
    #2
    I just logged on and went to
    I just logged on and went to see if there were any messages from you...
    Can only imagine how you are feeling right now.
    Sorry about the news, and will hope for only the best.
    Take good care~and a hug from California
  • tina dasilva
    tina dasilva Member Posts: 641
    #3
    I'm sorry
    Cyn I'm so sorry to hear this. I'm sending prayers to you and Rick. Man I hate cancer
  • janie1
    janie1 Member Posts: 753 Member
    #4
    tina dasilva said:

    I'm sorry
    Cyn I'm so sorry to hear this. I'm sending prayers to you and Rick. Man I hate cancer

    I'm sorry. I know I'm still
    I'm sorry. I know I'm still holding on for new treatments. Hang in there. Prayers for you both.
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #5
    Dear Cynthia
    So sorry for the news you got today.

    I some times wonder about the decisions to do or not do treatments/surgeries.

    Are there any past treatments to which hubby showed good response? Some folks have gone back to previous chemos which worked.

    Praying for there to be something out there which offers some good results.

    Hugs,

    Marie who loves kitties
  • steveandnat
    steveandnat Member Posts: 886
    #6
    Hoping for the best
    Maybe there will be better news once they examine everything closly. This cancer stuff stinks I pray every day that a miracle cure will be found. Praying hard for everyone.
    Jeff
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #7
    steveandnat said:

    Hoping for the best
    Maybe there will be better news once they examine everything closly. This cancer stuff stinks I pray every day that a miracle cure will be found. Praying hard for everyone.
    Jeff

    Cyn feel so sorry for the news!
    I'm praying for you both, have a big hug from here!
  • sasjourney
    sasjourney Member Posts: 395 Member
    #8
    Sorry
    Hi Cyn,

    I am so sorry to hear this news. Praying that the surgeon will still do Hipec or come up with a better plan.

    Hugs,
    Sara
  • toyfox
    toyfox Member Posts: 158 Member
    #9
    Hurt
    It hurt to read this...am a caregiver for my husband.
    Every scan or treatment is so hard to handle. My husband
    is ok for now but never know what the future will bring.
    I hope and pray that something will work out for you.
    Linda
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #10
    Thank you friends, Rick and
    Thank you friends, Rick and I truly appreciate your expressions of kindness. And as an update to yesterday's news, the surgeon and the oncologist decided that Rick should have an MRI next week to determine if the uptake that was seen on the edge of the liver is surface only, in which case he could have the HIPEC surgery. (Although the onc. is still against any type of surgery.) So, it's still a wait and see at the moment.

    All my best,
    Cyn

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