The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Zometa

Luvkitty
Luvkitty CSN Member Posts: 6
in Uterine/Endometrial Cancer #1
Has anyone had any experience with Zometa. I have a recurrence, and the tumor is adjacent to the bone. it has weakened the ileum, and I was told by an orthopedic surgeon to start an infusion of Zometa once a month. The side effects can be quite intense, so If anyone has had used this drug, I would like to hear opinions.
Like Care

Comments

  • Double Whammy
    Double Whammy CSN Member Posts: 2,832 Member
    #2
    Breast cancer board
    Lots of women on the breast cancer board have taken Zometa. You might want to post your question there if it is relevant only to side effects. Or you can do a search on that forum that might answer your questions.

    Suzanne
    Like Care
  • Mdotsie47
    Mdotsie47 CSN Member Posts: 28
    #3
    Zometa
    I've got a rib up under my armpit that is almost completely gone from uterine cancer. I've been getting zometa for it. I notice real pain in that rib for aday or two after the infusion, but it gets better and overall the rib hurts less than it did before the zometa. The rib still looks very eroded in my ct scans, so not sure how zometa works. Is it supposed to be rebuilding the bone?
    Like Care
  • carolenk
    carolenk CSN Member Posts: 907 Member
    #4
    Mdotsie47 said:

    Zometa
    I've got a rib up under my armpit that is almost completely gone from uterine cancer. I've been getting zometa for it. I notice real pain in that rib for aday or two after the infusion, but it gets better and overall the rib hurts less than it did before the zometa. The rib still looks very eroded in my ct scans, so not sure how zometa works. Is it supposed to be rebuilding the bone?

    Zometa & immune cells
    There's an interesting "side effect" from Zometa that makes it the bisphosphonate for people with cancer: Zometa stimulates the gamma delta T-cells (the white blood cells that fight cancer).

    Do an Internet search using "Zometa T cells" and read more about it.
    Like Care

Discussion Boards