Five Surgeries, Two Failed Chemos, Now Finally NED for the 1st Time

annalexandria
annalexandria Member Posts: 2,571 Member
in Colorectal Cancer #1
In the 2 1/2 years that I've been in this fight, I never had a clean scan. Until this morning, that is. Had the PET/CT at 9:00, and had the email from the radiologist by 1:00...and it was NED. From brain to knees, absolutely no sign of cancer. I have an extremely rare tumor type that had spread all over in the abdomen (including 5 lymph nodes), and my assumption was that I would never make it to this point, especially since my sister lived for barely a year after diagnosis with another oddball cancer. I guess what I want to say is just...don't lose hope. My onc certainly didn't think I would make it this far, and yet here I am, and looking to be around for awhile yet. I never allowed myself to hope, for fear that it would be crushed, but I'm thinking maybe I can indulge myself a little now. Ann

Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all

Emily Dickinson

Comments

  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #2
    YAY ANN!!!!!!
    Wonderful news!

    Jennie
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #3
    Whoooo Hooooo
    Whoop Whoop!!! So glad for you!!!
    Winter Marie
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    #4
    WOW Happy for You -You are an Inspiration
    Wishing you that wonderful feeling of being NED for a long long time. Sharing your journey with us gives us all hope. Thank you so much for being on this board; You are an inspiration.
    NB
  • janie1
    janie1 Member Posts: 753 Member
    #5
    relaxoutdoors08 said:

    WOW Happy for You -You are an Inspiration
    Wishing you that wonderful feeling of being NED for a long long time. Sharing your journey with us gives us all hope. Thank you so much for being on this board; You are an inspiration.
    NB

    Fantastic!!!!
    That is soooo GREAT. Thank YOU for sharing this.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #6
    janie1 said:

    Fantastic!!!!
    That is soooo GREAT. Thank YOU for sharing this.

    Awesome!! this are the news we need!
    Congratulations and enjoy it!
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #7
    W2Go!
    Enjoy yourself and breathe it all in. Very proud of you, Ann and congratulations!

    "Hope is not something that we can see - rather, it is that intangible element that we feel." ~Sundance
  • tommycat
    tommycat Member Posts: 790 Member
    #8
    Yay!!! now you can get back
    Yay!!! now you can get back in the driver's seat of that boat in your picture!
    All kidding aside, I am very happy for you. What a day....what a beautiful day for you.
    God bless and big hugs from California~
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #9
    tommycat said:

    Yay!!! now you can get back
    Yay!!! now you can get back in the driver's seat of that boat in your picture!
    All kidding aside, I am very happy for you. What a day....what a beautiful day for you.
    God bless and big hugs from California~

    Wooot Woot, how great is
    Wooot Woot, how great is that!!!! :):):)
  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #10
    tommycat said:

    Yay!!! now you can get back
    Yay!!! now you can get back in the driver's seat of that boat in your picture!
    All kidding aside, I am very happy for you. What a day....what a beautiful day for you.
    God bless and big hugs from California~

    Celebrate!!!

    What wonderful news!!!! Enjoy NED! You have been through a lot and deserve to savor every moment. May NED be your companion for many years.

    Cathleen Mary
  • Minnesotagirl
    Minnesotagirl Member Posts: 141
    #11
    What an inspiration
    Ann,

    What an inspiration you are and what an inspirational story you have created. Congratulations and I wish you many more NED's in the future.

    ~"Minnie"
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #12
    Awesome!!!
    Fabulous news!! Thanks for sharing and helping to keep hope alive!!

    Aloha,
    Kathleen
  • jjaj133
    jjaj133 Member Posts: 867 Member
    #13
    congratulations. that is
    congratulations. that is wonderful and just made my night. thanks for being healthy ; )
    Judy
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #14
    "OR ace"
    Five surgeries, makes you an OR ace, an operating room victor. Congratulations on the clear scan and the determination to make things right.
  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #15
    That is awesome. Enjoy every
    That is awesome. Enjoy every hour of being NED. It is a gift.
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #16
    janderson1964 said:

    That is awesome. Enjoy every
    That is awesome. Enjoy every hour of being NED. It is a gift.

    congrats
    that is news we love to hear.does anybody do the happy naked dance anymore when being declared NED.go ahead and try it i wont tell.best of luck to you and as always...Godbless...johnnybegood
  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #17
    tanstaafl said:

    "OR ace"
    Five surgeries, makes you an OR ace, an operating room victor. Congratulations on the clear scan and the determination to make things right.

    At my post-surgery visit this last time,
    my surgeon referred to me as his "professional patient" to the resident who was with him...kind of like being a lab rat or a crash-test dummy, I guess!
  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #18
    johnnybegood said:

    congrats
    that is news we love to hear.does anybody do the happy naked dance anymore when being declared NED.go ahead and try it i wont tell.best of luck to you and as always...Godbless...johnnybegood

    Naked happy dance...
    only if the doors are locked, the blinds down, and my family and the neighbors all out of town for the weekend! Oh, and the mirrors covered, so I don't blind myself.
  • lauragb
    lauragb Member Posts: 370 Member
    #19
    annalexandria said:

    Naked happy dance...
    only if the doors are locked, the blinds down, and my family and the neighbors all out of town for the weekend! Oh, and the mirrors covered, so I don't blind myself.

    What a long road you've had
    What a long road you've had to NEDsville. Glad you're here.
    Enjoy!

    Laura
  • joemetz
    joemetz Member Posts: 493
    #20
    Awesome News!
    Congrats on your great news.

    you made my day and many others.

    Prayers are with you.

    Joe

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