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Scan results...clinical trial

robinleigh
robinleigh CSN Member Posts: 297
in Head and Neck Cancer #1
An update on my husband, Andy, who is in a clinical trial treatment for metastasis...Andy has had four out of eight cycles of his Reovirus clinical trial and had his second ct scan a week ago. His first scan showed a very positive response with approximately 40% shrinkage of his lesions. The second scan surprised his oncologist showing even more shrinkage. The doctor was actually expecting to see "stable disease", so we were all very thankful to see this response.

I know that there is a small percentage on this board dealing with a recurrence but, I do want to keep everyone informed of our journey battling a distant metastasis, since we are seeing positive results. I am always more than happy to share my experience with clinical trial searches if anyone has the need. Just send me a private message.

We are hoping and praying for continued positive reports and appreciate your support greatly!

Robin
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Comments

  • longtermsurvivor
    longtermsurvivor CSN Member Posts: 1,842 Member
    #2
    Robin thanks for posting this
    It is great to hear of Andy's response to the trial. This is heartening for those who have run the gammut of standard treatments. Thanks for blazing the trail. Wishing you continued success.

    Pat
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  • jim and i
    jim and i CSN Member Posts: 1,788 Member
    #3
    praying
    robin, continuing to keep you both in prayer. Thanks for the update.

    Debbie
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  • adventurebob
    adventurebob CSN Member Posts: 691 Member
    #4
    Wow!
    That's great news Robin. Really happy to read this. So nice to know there's another tool in the metastatic disease arsenal. Keep the good news coming.

    AB
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  • joannaw81
    joannaw81 CSN Member Posts: 185 Member
    #5
    adventurebob said:

    Wow!
    That's great news Robin. Really happy to read this. So nice to know there's another tool in the metastatic disease arsenal. Keep the good news coming.

    AB

    thank you
    that is great news, thank you
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #6
    Fantastic....
    Hopes, thoughts and prayers for continued improvement and long term success....

    Best,
    John
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  • mixleader
    mixleader CSN Member Posts: 267 Member
    #7
    Cllinical Trial
    Wow! Robin that is really great news. I hope and pray that these results keep on coming until 'the beast' is gone. I also considered a clinical trial, but my cancer is so rare that none were being held. Best of luck and kick this thing.

    Roger
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  • luv4lacrosse
    luv4lacrosse CSN Member Posts: 1,410 Member
    #8
    GREAT NEWS
    Robin, this news just made my day.

    Stay strong

    Best!!

    Mike
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  • robinleigh
    robinleigh CSN Member Posts: 297
    #9
    mixleader said:

    Cllinical Trial
    Wow! Robin that is really great news. I hope and pray that these results keep on coming until 'the beast' is gone. I also considered a clinical trial, but my cancer is so rare that none were being held. Best of luck and kick this thing.

    Roger

    Roger
    Just FYI...The Lance Armstrong Foundation has clinical trial coordinators who actually TALK to you on the phone about your specific situation. I reached them at www.livestrong.org. They check in with me every three weeks for updates on Andy's progress and always have current trials available for us to consider in case need be.

    Best wishes,
    Robin
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  • robinleigh
    robinleigh CSN Member Posts: 297
    #10
    adventurebob said:

    Wow!
    That's great news Robin. Really happy to read this. So nice to know there's another tool in the metastatic disease arsenal. Keep the good news coming.

    AB

    AB
    I dream of one day going on a healthy hike with Andy as you are doing!
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  • sweetblood22
    sweetblood22 CSN Member Posts: 3,228 Member
    #11
    Thankful
    Robin, Sounds positive. I may not be on the board as much anymore, but you and Andy are in my daily prayers. Will give a prayer of thanksgiving for that positive report.
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  • robinleigh
    robinleigh CSN Member Posts: 297
    #12
    sweetblood22 said:

    Thankful
    Robin, Sounds positive. I may not be on the board as much anymore, but you and Andy are in my daily prayers. Will give a prayer of thanksgiving for that positive report.

    ty dawn
    I know you're taking a little break but I appreciate your chiming in when you can. It's quite obvious that many people miss you so I love it when you post! Thanks for your prayers. Prayers back for your continued health!
    Robin
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