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Cicirunner
Cicirunner Member Posts: 1
in Lung Cancer #1
Don't know where to start but kind if know where to end. My spouse is 57 years old and after a cascade if events has been diagnosed with Stage 4 adenocarcinoma in his left upper lobe and plureal linning. Unfortunately we have been delayed from treatment by a bad bunion surgery which has turned into an amputation of his great toe left foot. He also had a greenfield filter inserted in his inferior vena cava as he has blood clots in right thigh. He is on lovenox injections and hes now in skilled care His filter is clotted and he has 60+ pounds fluid in his torso and legs that is not going away quickly. He is miserable and I'm scared. The oncologist is hopeful but we can't begin to think if chemo until my husband is stronger. He gets winded trying to walk. His legs are massive and very heavy. He does not have full range of motion and with the extreme edema he is now having trouble standing erect. It's been a difficult time to say the least. I not sure what I'm looking for other than someone to tell me there is hope. Im scared and feeling inadequate. I don't know what to do.

Comments

  • dennycee
    dennycee Member Posts: 857 Member
    #2
    So sorry for the
    So sorry for the circumstances that drove you here. You have both been through so much! This is a terrific resource and I am glad you found us. Please also check inspire.com and cancergrace.org. The inspire site encompasses more than cancer and should be another terrific resource for you.
  • tanilla
    tanilla Member Posts: 4
    #3
    *HOPE*
    *FAITH*LOVE*Psalms 46:1. Its short simple and to the point. My favorite one! Try not to stress about anything and pray about everything! That is where I get the most of my hope! This isn't over yet! It is time to show trouble where to go! You both need each other more than anything right now. When you or your husband feel alone, scared, mad, sad pray and think funny thoughts! Anything to make you laugh! Shrink all that overwhelms you if possible! I can't say that enough!! My mom (who is stage 3b) and I tell jokes to each other. Our latest?? Well corny but, What do you call an alligator in a vest? an invest-gator! I'm almost 37 and I have so much to learn as I ask around @work to my fellow co-workers to give me the most absurd jokes. Also from my dear friends son (who is just 8 and starting his own stand up) Why didn't the chicken cross the road?? because he is a chicken. ba-dump crash! I will keep you and your husband in prayer that all will be comforted. I don't have any wrapping paper but I want you to have the hope I have for you both! My mother has her visit tomorrow with her oncologist she is suppose to start new treatment... well 8 weeks ago but her platelets were too low, and then pneumonia, and then the transfusion, and so on but tomorrow is a new day as I rest my head I will be asking for a renewal of hope for all of us. The remember Cicirunner.... that if you need to read this over and over that I will be giving you again and again all of my hope to renew over and over. Its hard to go through this and this is my first time on this site. I am amazed with what I read! Its crazy to know all of these people that I don't know are in this same exact boat in one way or another in this same war! Well it is time our ship gets to sail in! So I pray for all of us to fight the fight, win the war and go on to be happy to get to hope for more than this!!!
  • tanilla
    tanilla Member Posts: 4
    #4
    dennycee said:

    So sorry for the
    So sorry for the circumstances that drove you here. You have both been through so much! This is a terrific resource and I am glad you found us. Please also check inspire.com and cancergrace.org. The inspire site encompasses more than cancer and should be another terrific resource for you.

    Hey thank you so much I will
    Hey thank you so much I will definitely check those out!

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