Confused by news today, can you all help a bit?

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  • Phoenix chick
    Phoenix chick Member Posts: 13
    #22
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    Getting the facts straight
    It seems to me that you Mum is perfectly normal getting things all mixed up!!
    Even the most intelligent people can get things mixed up with such a a diagnosis as breast cancer. The day of you diagnosis is THE MOST SURREAL experience of you whole life. I did not cry... but everyone else around me did. I was just overwhelmed.
    Useful tips:
    Make sure that your mum always attends an appointments with a " brains trust" and notebook.
    Keep printed copies of test results.
    Write everything that you can possible remember in the note book a the appointment or immediately afterwards.... hence the importance of the Brains Trust.
    Keep a diary ( suggest 'a day to a page') to write down appointments and questions that need answering at each appointment... then write the answers.
    Write down test result as you go.
    In Australia we are all issues with BCNA Diary. They are wonderfully set out. I take my diary everywhere.
    When your Mum starts treatment, she will meet some wonderful nurses an other patients who will provide wonderful support and encouragement. It is sure to be harder for you however, just watching!!!
    I also kept a blog which a published for my close friends and family... this kept everyone informed so that we could share accurate information and deal with THE FACTS as necessary.
    Remember that everyone will have a slightly different diagnosis and other health issues to contend with. We all have slightly different treatments and different side effects.
    Make sure you deal with YOUR MUM' s condition and do not listen to everyone else's horror stories and 'miracle' cures.
    Deal with one issue at a time, one day at a time.
    Talks to the doctor and specialist nurses.. they have had lots of practice.
    You will eventually learn a lot.
  • Phoenix chick
    Phoenix chick Member Posts: 13
    #23
    Options
    Getting the facts straight
    It seems to me that you Mum is perfectly normal getting things all mixed up!!
    Even the most intelligent people can get things mixed up with such a a diagnosis as breast cancer. The day of you diagnosis is THE MOST SURREAL experience of you whole life. I did not cry... but everyone else around me did. I was just overwhelmed.
    Useful tips:
    Make sure that your mum always attends an appointments with a " brains trust" and notebook.
    Keep printed copies of test results.
    Write everything that you can possible remember in the note book a the appointment or immediately afterwards.... hence the importance of the Brains Trust.
    Keep a diary ( suggest 'a day to a page') to write down appointments and questions that need answering at each appointment... then write the answers.
    Write down test result as you go.
    In Australia we are all issues with BCNA Diary. They are wonderfully set out. I take my diary everywhere.
    When your Mum starts treatment, she will meet some wonderful nurses an other patients who will provide wonderful support and encouragement. It is sure to be harder for you however, just watching!!!
    I also kept a blog which a published for my close friends and family... this kept everyone informed so that we could share accurate information and deal with THE FACTS as necessary.
    Remember that everyone will have a slightly different diagnosis and other health issues to contend with. We all have slightly different treatments and different side effects.
    Make sure you deal with YOUR MUM' s condition and do not listen to everyone else's horror stories and 'miracle' cures.
    Deal with one issue at a time, one day at a time.
    Talks to the doctor and specialist nurses.. they have had lots of practice.
    You will eventually learn a lot.

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