Newly Diagnosed

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  • cynthiad
    cynthiad Member Posts: 3
    #22
    COBRA666 said:

    Admiration
    Cynthia,
    All I can say is I certainly admire you for being able to do the things you did,such as getting up everyday and going to work during your last treatments. I really do not know if I could have done it. I was so weak after my 3rd round of R-CVP. I think I slept most of the time. At least if not sleeping I was sitting down most of the day. I did not get sick or anything,but I ached all over. As far as doable,I guess anything is doable if we come out alive.There were times I wasn't too sure about that either.I was fuzzy brained as well. Wish I could have had it as easy as you did. John

    John,
    Sounds like you had it pretty rough during treatment. My bad times were actually before I was diagnosed. I had lost 70 lbs unintentionally and was down to 105lbs for 6 months and my specialists all kept saying I was anorexic and was in denial. They wouldn't test for anything further because they were so convinced. I couldn't get anyone to listen to me until I had a small cyst like growth pop out under my eye. The eye dr. told me to go home and put hot compresses on it and come back in 6 weeks and he would drain it. I went back and he said it's been growing why didn't you come back sooner. I said you told me to do what I did. Anyway he called the lacrimal surgeon down and he put me in the 1st surgery slot open and when the pathology report came back it was an aggressive lymphoma. By this time I was relieved to finally have a diagnosis since for 6 months I could bearly walk more than 25 feet without sitting down because I was so weak. The oncologist told me I was the weakest patient he had ever seen.My Dr's didn't know what to say when I called and gave them the news. They were pretty taken back.
    This was my second cancer ,I had thyroid 4 years before that. I've had 22 operations including open heart ,bowel resection and many other other major ones. The worst problem I have is Crohns disease, the treatment for that caused the lymphoma so now I can't ever be back on the heavy duty Crohns meds (Remicade and immune suppressants)so that is out of control. My son died of (Rhabdomysarcoma) Cancer of the striated muscle at 13). My point is it's all about perspective I think the more you've been through the easy things are to go through in the future because your coping skills are honed. What ever doesn't kill you makes you stonger. I really believe in that saying. I 've never seen anyone suffer the way my son did but he never complained. Children are so resiliant. He went through it with such grace and dignity.He taught me so much and seemed so wise for his age.He set the bar so high for me. I'm still trying to reach it!!!
    Take care
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #23
    cynthiad said:

    John,
    Sounds like you had it pretty rough during treatment. My bad times were actually before I was diagnosed. I had lost 70 lbs unintentionally and was down to 105lbs for 6 months and my specialists all kept saying I was anorexic and was in denial. They wouldn't test for anything further because they were so convinced. I couldn't get anyone to listen to me until I had a small cyst like growth pop out under my eye. The eye dr. told me to go home and put hot compresses on it and come back in 6 weeks and he would drain it. I went back and he said it's been growing why didn't you come back sooner. I said you told me to do what I did. Anyway he called the lacrimal surgeon down and he put me in the 1st surgery slot open and when the pathology report came back it was an aggressive lymphoma. By this time I was relieved to finally have a diagnosis since for 6 months I could bearly walk more than 25 feet without sitting down because I was so weak. The oncologist told me I was the weakest patient he had ever seen.My Dr's didn't know what to say when I called and gave them the news. They were pretty taken back.
    This was my second cancer ,I had thyroid 4 years before that. I've had 22 operations including open heart ,bowel resection and many other other major ones. The worst problem I have is Crohns disease, the treatment for that caused the lymphoma so now I can't ever be back on the heavy duty Crohns meds (Remicade and immune suppressants)so that is out of control. My son died of (Rhabdomysarcoma) Cancer of the striated muscle at 13). My point is it's all about perspective I think the more you've been through the easy things are to go through in the future because your coping skills are honed. What ever doesn't kill you makes you stonger. I really believe in that saying. I 've never seen anyone suffer the way my son did but he never complained. Children are so resiliant. He went through it with such grace and dignity.He taught me so much and seemed so wise for his age.He set the bar so high for me. I'm still trying to reach it!!!
    Take care

    Damn !!!!
    Amanda,
    if I ever had to go thru what you did I think what I went thru was a cake walk. I believe in that old saying of What don't kill you makes you stronger as well. I just never went thru anything like I did with the chemo before. If I had to go thru what you did I would never complain even though what I went thru was tough. I can not imagine losing a child. John

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