The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

mets to spine

tammybrook
tammybrook CSN Member Posts: 43
has anyone had or heard of recurring rectal cancer metastasizing to the spine?

Comments

  • geotina
    geotina CSN Member Posts: 2,111 Member
    Tammy:
    We have no experience with mets to the spine but yes, I have heard of mets to the spine. There were a few on the Colon Cancer board that experienced this. If memory serves they were treated with radiation (like bone mets). I can't remember if chemo was also involved but I assume it was.

    Take care - Tina
  • taraHK
    taraHK CSN Member Posts: 1,952 Member
    me
    Hi. Yes -- my original diagnosis was Stage III rectal cancer. That was 9 years ago. I have had metastasis to the lung (treated).

    About 1.5 years ago, I was diagnosed with bone mets -- multiple but including some to the spine. I had no symptoms (like bone pain). I had targeted radiation for one spot (that was quite close to the spine, so making us nervous) and 'normal' (3-D) radiation to other spots. Then I had chemo -- 8 cycles of FOLFOXFIRI. I am currently on a chemo break. Oh, I have also been taking Zometa -- by drip -- not a chemo but designed to strengthen bones.

    It sounds scary but it doesn't have to be. I don't have any other mets (lung, liver). My oncologist thinks my prognosis is reasonably good.

    Please feel free to be in touch

    Best wishes

    Tara
  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    Tammy
    As far as I can recall, we've had 3 memembers who had mets to the spine....2 of the ladies subsequently passed away - one of them had mets to the brain as well.

    The other member (robinvan) had mets to the spine and his treatment was very extensive - surgery / radiation / chemo.

    He's back to a good point now....he does not frequent the boards too much these days, but ou can drop him a PM and see if he has any insight for you.

    Tara: I'm sorry - I could not remember if you had mets to the spine, I stand corrected. You and Rob are great examples to follow.

    -Craig