does peripheral neuropathy get better?

pjlee123
pjlee123 Member Posts: 14
in Esophageal Cancer #1
Best wishes to you all.

My father in law with stage iv is trying to figure out how aggressive to be with his Chemo regimen.

Aside from fatigue, he hates the chemo related pain and sensitivity that's now mainly in his hands. I believe the cisplatin class of Chemo is to blame for that.

I hear these symptoms often don't improve when off Chemo or improve only over months.

True in your experience?

Comments

  • sangora
    sangora Member Posts: 213
    #2
    Some Do Some Don't
    I have had some tingling and dumness in hands and feet. Didn't do it with Cistplatin, but did with Xeloda. Once I moved from Xeloda to the drug I am on now, it took about a month or so for the dumness to go away. Some people don't have a problem at all and others seem to be slower to clear up once treatment stops and yet others report that they have the symptoms always. Like any of the other side effects, it varies with each person. I never let it bother me, focused on the good things that took place in my life everyday and moved on. If he is having actual pain, his oncologist can give him something for that. I never had any actual pain. Hope this helps. Sam
  • Unknown
    Unknown
    #3
    This comment has been removed by the Moderator
  • chemosmoker
    chemosmoker Member Posts: 501
    #4
    neuropathy
    My sister in law had a trial with normal chemo for breast cancer, stage IIIB or IVa and had MAJOR high strength, trial strength chemo so not to be compared to a light or normal chemo, but she has 7 years out, can barely walk (LITERAL) and would NOT ever ever ever do it again due to the pain and neuropathy due to the chemo. Red the beginning though this was HIGH dose and they went too high. Wanted to share. It REALLY seems to depend on the dosage of the chemo.

    God bless.

    Eric
  • paul61
    paul61 Member Posts: 1,391 Member
    #5
    Mine did get slightly better
    I had very mild peripheral neuropathy in the toes of my feet from Cisplatin. After about a year it seems to have improved slightly.

    That is; originally my toes were numb and tingled slightly from time to time. Now they are just somewhat numb. I have some feeling in them now. Sometimes they feel almost normal.

    It has been about 18 months since I completed my chemotherapy.


    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    Two year survivor

    Life may not be the party we hoped for, but while we are here we might as well dance!

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