TxN0M0 PET Scan Report

Unknown

Cora11 said:

Dear Judy and Frieda
Judy, so relieved that you have the answers and that you can get on with treatment now. And, please don't fear the delays.. they truly are not going to many ANY difference other than they make us stressed out. I remember our doctors saying how important it is to get everything just right prior to treatment initiation. So now the radiation plan can take about a week so be prepared for that. Frieda, what I learned is that 30% chance of PET scan's/CT's not showing a node and then sometimes it gets revealed in the EUS.

Peace and comfort to all of you,
Cora

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Ericalynn

unknown said:

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William & Loretta-Love YOU
I think of you everyday and hope all is going well with you and your family!
Love your quote- "Life isn't about waiting for the storm to pass. It's about learning how to dance in the rain!"
Sooooooooooo True!
John's first visit to Moffitt there was a Thunderstorm, lighting hit a transformer a few feet from the road we were driving on, the traffic lights went out, street were flooding and we were only a few miles from home. I was thinking to myself if this was any other appointment I would turn around and go home. We made it to Moffitt safe and sound and that was the day we meet Dr. Meredith. He explained the MIE procedure and told us John was a good candidate and the rest the say is history.
The reason I made the appointment at Moffitt is because William and Loretta explained (on-line and on phone) to me the difference between the Ivor -Lewis and MIE with an experienced surgeon that performs surgery frequently.
Today it is cloudy in “sunny” Fl. but I am smiling while I clean up around the house start to decorate the Christmas Tree (it takes me forever, lol) and John just left for the gym (I’m on my way soon too)! Life is good 13 weeks post surgery!
Cora-Love the rainbow too!
Love to All
Erica
Wife of John
Diagnosis-T-3, N-1, M-0-- 5-17-11
Chemo/Radiation-completed --7-11-11
MIE surgery with robotics-- 9-9-11
29 lymph nodes & tumor-cancer free

JReed

Cora11 said:

Dear Judy and Frieda
Judy, so relieved that you have the answers and that you can get on with treatment now. And, please don't fear the delays.. they truly are not going to many ANY difference other than they make us stressed out. I remember our doctors saying how important it is to get everything just right prior to treatment initiation. So now the radiation plan can take about a week so be prepared for that. Frieda, what I learned is that 30% chance of PET scan's/CT's not showing a node and then sometimes it gets revealed in the EUS.

Peace and comfort to all of you,
Cora

Cora & Freida
Cora - thank you for that heads up on radiation plan taking about a week. I just love you pioneers. You know exactly what we are going through because you went through it yourself and giving us a heads up certainly helps us out. I would have expected Don to be getting something next week already, but we don't see the doc until Tuesday - so I will do my best to be patient (God must have run out of that one before I came along - maybe I have some other super virtue since I didn't get the patient one! LOL)

Hey Frieda - you have been on my mind and I wanted to pick up the phone and call you first yesterday - but was too afraid that you were either resting or in appointments. So glad to hear from you. What a week you all have been through. When do you go home - do you know yet?

Love and hugs,
Judy

JReed

Freida said:

Than you Cora. Bill's PET
Than you Cora. Bill's PET scan showed 1 node involved - I guess I am guilty of some magical thinking and was hoping the EUS would say the PET was wrong and there is no lymph node involvement .

Judy - there are no "cloves " involved with the PICC line and sterile field procedure. My difficulty was with getting "Gloves" on.

Bills PET
Don's PET scan mentioned the possibilty of one lymph node involvement which was also seen on the CT scan. EUS did confirm that and so they changed the N0 to N1. I think that is probably pretty standard from what I can gather. I'm not too awfully concerned with the N number - the M number is the one I keep an eye on.

Just now in the middle of this posting I was thinking - man I'd like to grab a bottle of wine, cup of coffee (with a big shot of Bailey's!) and sit down with everyone on this site in one big room and just talk and listen. Everyone has so much to offer.

I know you are keeping great notes - keep em handy - I'll need to check back with you on some things for sure.

Keep your head up and smile - God has given you one of His special tasks - and we can be sure He only chooses the very capable for this task!

Love and hugs,
Judy

TerryV

JReed said:

Bills PET
Don's PET scan mentioned the possibilty of one lymph node involvement which was also seen on the CT scan. EUS did confirm that and so they changed the N0 to N1. I think that is probably pretty standard from what I can gather. I'm not too awfully concerned with the N number - the M number is the one I keep an eye on.

Just now in the middle of this posting I was thinking - man I'd like to grab a bottle of wine, cup of coffee (with a big shot of Bailey's!) and sit down with everyone on this site in one big room and just talk and listen. Everyone has so much to offer.

I know you are keeping great notes - keep em handy - I'll need to check back with you on some things for sure.

Keep your head up and smile - God has given you one of His special tasks - and we can be sure He only chooses the very capable for this task!

Love and hugs,
Judy

Smiling at your coffee comment
Hello Judy

I've just finished my morning pot of coffee with Bailey's. That's my weekend treat for myself.

Just had to comment.....

Love & Hugs!

Terry

BobHaze

JReed said:

We do ride Harleys!
Hi Cora:

Yes we do ride - our profile picture was taken in Valley of Fire in Las Vegas (which Chantal and Lee were married there!) Don rides a dyna wideglide and I ride a Sportster 883.

I have never been to Milwaukee but love to go there sometime and tour around.

Today, Don was staged via EUS - Stage IIIa T3N1M0 - so battle gear ready - going in Tuesday to get the suggested plan of action. Hubby is so tired right now, but we'll be talking over the weekend - I'd like to get a 'feel' for what he's thinking.

Thank you so much for your comforting words and thoughts and prayers.

Judy

Riding
I noticed your leathers in that great picture and was wondering what you ride. I ride an ElectraGlide. Last summer I took the month of June off and rode solo cross-country - shipped the bike to Seattle and rode home to Cape Cod. It was an unbelievable time, and 1 month to the day after I got home I was diagnosed with EC. Now I'm 11 weeks post-MIE and 1 of the things I'm looking forward to at my follow-up appointment with my surgeon in January is permission to ride again. It's winter, but I'm finding that each thing I am able to do from my old life gives me a big emotional boost. I'm feeling generally really good, but I do still need those boosts from time to time.

Recovery is challenging, but definitely worth it. Just keep looking forward to the day that damn demon has been removed from your body and you can start getting better...and start riding again!

Bob
T1aN0M0
dx 8/3/11
MIE 9/23/11

Freida

JReed said:

Cora & Freida
Cora - thank you for that heads up on radiation plan taking about a week. I just love you pioneers. You know exactly what we are going through because you went through it yourself and giving us a heads up certainly helps us out. I would have expected Don to be getting something next week already, but we don't see the doc until Tuesday - so I will do my best to be patient (God must have run out of that one before I came along - maybe I have some other super virtue since I didn't get the patient one! LOL)

Hey Frieda - you have been on my mind and I wanted to pick up the phone and call you first yesterday - but was too afraid that you were either resting or in appointments. So glad to hear from you. What a week you all have been through. When do you go home - do you know yet?

Love and hugs,
Judy

Hi Judy
No, we don't know
Hi Judy
No, we don't know when we are going home yet. His EUS is scheduled for tuesday. The MDA one is so backed up that it would be 3-4 weeks before they could do it there, so they scheduled an appointment for us in clearlake at a center there. Have to go there monday for pre work and paperwork (different hospital) and then tuesday for the EUS. Then we will see the oncologist after that for results and a treatment plan. He had talked about possible starting chemo next week, depending on the test results and if they are still going to do the 2 month chemo followed by 6 week chemo/radiation plan. He had a 5+ hour stress test with nuclear nuclear cardiac (kind of a chemically induced stress test). So he was radioactive and was told not to try and fly for the second time in 3 weeks - if he didn't already have cancer I'd be worried about him developing it!

We have been at MDA 4 days in a row. Thursday we were there from 8 a.m. to nearly 10p.m. then had to be back by 8 friday morning and left about 4. I was pretty spacey yesterday. One piece of advice that may seem a bit silly - grab some packs of something none sugary to carry with you to snack on while waiting around. I think my spaciness yesterday was from a combination of tiredness and eating too much rubbish. When we finally got to eat actual food yesterday, I felt so much better.

My legs hurt from all the breaking I am doing in the cray Houston traffic - and I'm not even driving.

Hugs
Freida

Cora11

Freida said:

Hi Judy
No, we don't know
Hi Judy
No, we don't know when we are going home yet. His EUS is scheduled for tuesday. The MDA one is so backed up that it would be 3-4 weeks before they could do it there, so they scheduled an appointment for us in clearlake at a center there. Have to go there monday for pre work and paperwork (different hospital) and then tuesday for the EUS. Then we will see the oncologist after that for results and a treatment plan. He had talked about possible starting chemo next week, depending on the test results and if they are still going to do the 2 month chemo followed by 6 week chemo/radiation plan. He had a 5+ hour stress test with nuclear nuclear cardiac (kind of a chemically induced stress test). So he was radioactive and was told not to try and fly for the second time in 3 weeks - if he didn't already have cancer I'd be worried about him developing it!

We have been at MDA 4 days in a row. Thursday we were there from 8 a.m. to nearly 10p.m. then had to be back by 8 friday morning and left about 4. I was pretty spacey yesterday. One piece of advice that may seem a bit silly - grab some packs of something none sugary to carry with you to snack on while waiting around. I think my spaciness yesterday was from a combination of tiredness and eating too much rubbish. When we finally got to eat actual food yesterday, I felt so much better.

My legs hurt from all the breaking I am doing in the cray Houston traffic - and I'm not even driving.

Hugs
Freida

Will and Loretta
So happy you like that rainbow and I so love those inspirational quotes. I saw that rainbow right out my back door, looking to the east at my neighbors horse farm. We live in an area full of hobby and working farms.
I decided to put it on there because it reminds me to be hopeful for continued miracles for each and everyone of us and grateful for this group of kind and smart people. So, that reminds me of my question that is completely rhetorical: Why does EC go after so many good people?"

Cora

Unknown

Cora11 said:

Will and Loretta
So happy you like that rainbow and I so love those inspirational quotes. I saw that rainbow right out my back door, looking to the east at my neighbors horse farm. We live in an area full of hobby and working farms.
I decided to put it on there because it reminds me to be hopeful for continued miracles for each and everyone of us and grateful for this group of kind and smart people. So, that reminds me of my question that is completely rhetorical: Why does EC go after so many good people?"

Cora

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JReed

BobHaze said:

Riding
I noticed your leathers in that great picture and was wondering what you ride. I ride an ElectraGlide. Last summer I took the month of June off and rode solo cross-country - shipped the bike to Seattle and rode home to Cape Cod. It was an unbelievable time, and 1 month to the day after I got home I was diagnosed with EC. Now I'm 11 weeks post-MIE and 1 of the things I'm looking forward to at my follow-up appointment with my surgeon in January is permission to ride again. It's winter, but I'm finding that each thing I am able to do from my old life gives me a big emotional boost. I'm feeling generally really good, but I do still need those boosts from time to time.

Recovery is challenging, but definitely worth it. Just keep looking forward to the day that damn demon has been removed from your body and you can start getting better...and start riding again!

Bob
T1aN0M0
dx 8/3/11
MIE 9/23/11

Bob - Nice Electragide!
I bet that was an awesome trip. You must have had a blast. My husband has been riding most of his life - he rides a dyna wideglide and I ride an 883 sportster. We too are looking forward to riding again - winter here so bikes are tucked away. Usually Don spends the winter months, polishing, tweeking, polishing and in general just dinking around in the barn with the bikes. We have two great nephews that Don has bought them each dirt bikes (and one for himself of course!) We love American Iron magazine and he'll spend the winter reading those from cover to cover.

Thank you for the encouragement on the recovery - we haven't started that yet, but I'm getting a pretty clear picture on what to expect and read through all the posts on here daily. What a great site and we were very lucky to have all of you.

Hopefully we can our knees in the breeze next summer and hook on with you on some ride.

Live to Ride!
Judy