How fast does uterine cancer grow?

Sd-pegasus

Just diagnosed last week - hope subject still open

hi, I'm 52.  Was informed had uterine cancer after having d&c which found polyps. And biopsy of one showed cancer.   A bit anxious, sent records to referred gyn-onc awaiting call back to see next steps.  How long should I give referred dr b4 checking with them again If I don't here back from them soon?  Don't know what stage or how fast this thing spreads.  

TeddyandBears_Mom

Hi SD,

Hi SD,

This is a very old thread so you might want to start a new one to introduce yourself if you have questions.

Anyway, wanted to welcome you to the board. This is a great place to come for support, understanding and information.

Did they tell you what kind of cancer you have? They can't stage it for you until after surgery because they need to see if it has spread. But, the pathology report should have stated the kind / grade of uterine cancer you have.

It is not uncommon to wait a couple of months for your surgery. I was diagnosed on 5/28/15 and didn't have my surgery until 7/22/15. And, I had a high grade (grade 3) type cancer which is very aggressive. The hardest part of this journey is all of the waiting. Just know that this is part of the journey. If you start feeling anxiety, please consider asking for a mild anti-anxiety med like Lorazapam. I never take anything and I did use this for a short time. It was very helpful.

Please come back and ask us anything. You will find the ladies here very supportive. Let us know how you are doing too!

Love and Hugs,

Cindi

Nellasing

Welcome Sd-pegasus

We can all sympathize with what you are thinking and feeling right now.  If you don't hear from them it is perfectly ok to give them a call and let them know you just want to follow up and make sure they got your records and see when your appointment is.  You never know, perhaps they didn't receive the records etc.  You being your own advocate is a great thing to get used to because it gives you a sense of control in something that seems out of control.

Please don't be overly concerned about how fast this spreads- whatever type it is you have probably had it for a while and like Cindi said, many of us waited a while before we got going.  The waiting is the WORST and there is a LOT of it, so best to know that and get ready for it.  We all just wanted that stuff out of us asap and that is a very normal feeling.... best advice is just to breathe, once you know you are in the system and things are moving forward then just take it a day at a time- LIVE YOUR LIFE- do fun things, distract yourself with a hobby or focus on the good and wonderful things that you are normally running around to fast to notice.  This can be a life altering experience in more than one way- you have the power to control much of it with your thoughts and attitude.

We are happy to walk along with you and to share our stories and listen to yours.  It wont be easy but you can do it!!!  I am almost 1 year from my last chemo (and ringing the bell) and I will soon be 56.  Please keep us posted.  (((HUGS)))

vfromchi

Hello

Hello I am new to the support group.  My mother recently received the dreadful call and was told she had uterine cancer.   We have an appointment with the gyn-onc next week.   I obtained her pathology report and faxed it over myself to the gyn-onc.   I am very worried as I saw it said it was listed as high grade endinocarcinoma with clear cell and serous features.  After research online, my worries increased.   @teddyandBears_Mom this sounds similar to your diagnosis.   Please send me advice on how I can encourage my mom to remain positive.   I know it is a fight to live and I want to be the best support I can.   I feel heartbroken at times but I know i need to be positive and provide her support.   All of you are very brave.  Much love and prayers to you all. 

MAbound

Too Soon to Research Pathology

 

 

Hi,

welcome to the board, but so sorry that you needed to. You are going to be such a blessing to your mother helping her through this as time goes on and we are very glad to offer you any help and support that you may need as things move along.

There is way too much scary and outdated information on the internet to be researching just what you know from the biopsy report. You will scare yourself witless unnecessarily doing that. It's important to take this diagnosis one step at a time. 

The first step your mom is facing is a consult with a gyn-oncologist and preparing to have some version of a hysterectomy. That's what you may want to focus your research on so you can prepare a list of questions that may arise from doing so.  Things like abdominal vs robotic surgery and some of the possible pre-op tests like MRI, CAT Scan, or PET scan.

Also prepare yourself for things not happening as fast as you'd like them to. Getting appointments for the consult and surgery won't necessarily happen quickly. That's been a fact for all of us and it'll be ok in spite of a strong desire to get the cancer out as fast as possible. 

Until the gyn-oncologist gets the pathology on the tissue that gets removed during surgery and comes up with a proposed plan for further treatment, there's really no point in researching anything else because there are too many variables for treatment of this cancer.

So, first of all, take a breath. This is going to be a marathon rather than a sprint, but it is doable.

 

TeddyandBears_Mom

Welcome Vfromchi,

Welcome Vfromchi,

So sorry to hear about your Mom. You have come to the right place for support, information and understanding. First thing, it is normal to be afraid. Anyone that gets that C word diagnosis is afraid. Please take caution in reading things that you Google. Many are very outdated and the stats are not what we are currently seeing.  The best thing I did for myself was ask for a mild anti-anxiety med. I used Lorazapam for a very short time. This was the first time in my life that I have ever used anything like that. Here's what I can tell you for sure - it does get EASIER once you know what you are dealing with. The waiting is hard. And, there is a lot of waiting. Regardless of the stage of your Mom's cancer, with it being a Grade 3 she will most likely have a complete hysterectomy and chemo. My guess is she will have radiation of some sort as well. I was stage 1A Grade 3 and received 6 rounds of chemo and 5 brachy therapy treatments. This is all doable. It isn't easy, but they have come a long way in giving us meds to counter the side effects. I am 1 year and 9 months out from my final treatment. And, I feel good these days. I walk about 30 miles a week and wake up grateful every day. Please see if your Mom is open to joining this discussion board along with you. The ladies here are wonderful and willing to answer any questions and provide support and understanding that no one else can if they haven't lived it.

There are two threads that you will want to read at some point. 'Ladies Going Through Chemo'  and  'Let's Talk About Radiation'.  I think it will help you and your Mom understand what she will be working with. Lots of frank discussion there. Some humor too. Several of us documented our treatment from start to finish.

Thank you for being there for your Mom. That is the best gift you can give her. Stay strong and please come back with any questions and also let us know how she is doing.

Love and Hugs,

Cindi

Soup52

Vfro, I also have high grade

Vfro, I also have high grade with clear cell features. When I told my daughter’s that sent them into big time concern and wanting me to go immediately to MD Anderson. (One of my daughter’s lives in Texas) No I did not go there, but was treated locally in Illinois. I know it was the clear cell that sent their heads spinning. Like others hAve said try tot to look at older info on the Internet. I was treated aggressively with robotic surgery, external and internal radiation, and 6 rounds of chemo carbo/taxol. It’s not a picnic, but it is doable. Your support is very important. So far I am clear as of July 2016. I am enjoying life! Learning cancer is in your family is devastating, but there is hope!

MarisaW

Scared Newbie

Hello,

I was diagnosed with low grade endometrial cancer 11/17/17.  I had a total hysterectomy with removal of tubes and ovaries on 12/27/17. I go today for my 2 week follow up and pathology report and I’m so scared.  I have the caretaker mentality in my family and I’ve been trying to hold it together for everyone else, smiling, laughing, and assuring that everything will be alright.  I really want to breakdown and cry until I have no more tears.  I sure can use reassurance that it WILL be alright.  Any words of advice are most welcome.

Many thanks,

Marisa

NoTimeForCancer

MarisaW said:

Scared Newbie

Hello,

I was diagnosed with low grade endometrial cancer 11/17/17.  I had a total hysterectomy with removal of tubes and ovaries on 12/27/17. I go today for my 2 week follow up and pathology report and I’m so scared.  I have the caretaker mentality in my family and I’ve been trying to hold it together for everyone else, smiling, laughing, and assuring that everything will be alright.  I really want to breakdown and cry until I have no more tears.  I sure can use reassurance that it WILL be alright.  Any words of advice are most welcome.

Many thanks,

Marisa

Marissa, have a good cry!  It

Marissa, have a good cry!  It's ok!!  Please let us know what the doctor says and what plan they have for you.  All questions are welcome.  

Cass83

MarisaW said:

Scared Newbie

Hello,

I was diagnosed with low grade endometrial cancer 11/17/17.  I had a total hysterectomy with removal of tubes and ovaries on 12/27/17. I go today for my 2 week follow up and pathology report and I’m so scared.  I have the caretaker mentality in my family and I’ve been trying to hold it together for everyone else, smiling, laughing, and assuring that everything will be alright.  I really want to breakdown and cry until I have no more tears.  I sure can use reassurance that it WILL be alright.  Any words of advice are most welcome.

Many thanks,

Marisa

You will be ok

You are allowed to cry And I sent you a private message too. Hang in there!

janice11

stage 2 low grade endrometrial adenocarcinoma endrometrioid type

hi everyone. 

on april26 i found out i had stage 1 low grade endrimetrial adenocarcinoma endrometroid type after an in dr office biopsy. i had my surgery june 7, 2 weeks ago. i had everything removed. ovaries, tubes, uterus, cervix and they checked my bladder. 2 days ago i get a call from the surgeon saying its actually grade 2. and i have been referred to bc cancer clinic. ( i live in bc canada ). he said no lymph node, no blood vessel invasion,low grade, stage 2. he said the cancer agency may call me or they may not depending if they think i need more treatment. i couldnt handle waiting so i phoned bc cancer and they said they got the pathology and its been referred to a doctor and if i dont hear anything by next wednesday i should call. im not to sure what has happened to me but i have been crying since that phone call, i can almost not breath, i dont know what has happened to me. i have become so scared. yet it is all out of me. what is gong on with me and will i be ok. i feel like ive been traumatized. im 56 years old. ugh.

Jacjac2

CindyGSD said:

Don't stress....
Unfortunately "waiting" will happen a lot during the course of your treatment. Waiting for your blood counts to come up, waiting for your next doctors appointment, waiting for results or in my case, waiting to start chemo a ridiculous five weeks after I get my radiation (okay that's another story), so don't let it stress you.

Depending on your financial situation, money issues can be a major source of stress and one you don't want and 35% will be a huge financial burden. Cancer is expensive to treat.

If it were me, I would wait. You didn't mention where you are in this journey but one week shouldn't make any difference. I think you'll find many women on this board that have waited several weeks from time of diagnosis to treatment for one reason or another.

Take care,
Cindy

Good Advice CindyGSD.   Wait

Good Advice CindyGSD.   Wait (Women Always ......... Time) - someone needs to come up with the "I" word.

It happened to Me

Janice11

This is an old thread and so I am not sure if the ladies have seen your post or if you have posted on another thread.  I hope you are feeling better.  A lot of us  have all been where you are.  Being told one thing and and then being told something else.  I was told that mine was the "best" kind of cancer to have.  Hysterectomy and maybe radiation.  Got to my oncologist and he tells me my cancer is rare.  End up having surgery and chemo. and was not a candidate for radiation because it had spread.  Keep posting and asking questions on this site.  These women are amazing and very knowledgeable.  I hope you are feeling better and have more answers now.  I think the first diagnosis and the unknown is the worst.  Keep asking questions with your doctor.

Jeanette

Willow oaks

Uterine Serous Carcinoma

This thread seems old is someone still using it? I’ve just been learned I have Serous Carsinoma. I’m scared on too many level To think about! 

Forherself

Willow oaks said:

Uterine Serous Carcinoma

This thread seems old is someone still using it? I’ve just been learned I have Serous Carsinoma. I’m scared on too many level To think about! 

Welcome Willow

I am so glad you found us.  Sorry that you have to.  This is an old thread.  If you have questions, it would be better to create a. new post and lot's of women will see it and respond. It is a scary time, and you will find lots of help here.   The board shows us when a new post is. made so I saw yours.   We can offer you help and hope.   And it is SO nice to talk to people who truly understand whay you are going through.

zsazsa1

Willow oaks said:

Uterine Serous Carcinoma

This thread seems old is someone still using it? I’ve just been learned I have Serous Carsinoma. I’m scared on too many level To think about! 

Hello, Willow.  I am in

Hello, Willow.  I am in medicine, and I was diagnosed with Serous about 2 yrs ago.  There are a number of us who can offer you help and support regarding treatment decisions.  Start a new thread with your questions.

NoTimeForCancer

Willow, try to take a breath.

Willow, try to take a breath.  Your feelings are completely understood as a diagnosis is overwhelming.  

You already figured out this thread is older, so starting a new one so the other ladies can best support you was a great suggestion.  Let me add, you are not alone.

Willow oaks

New thread

 

Not sure how to start one put I’ll try. Thank you so much for quick feedback on this thread!

oldbeauty

Willow oaks said:

New thread

 

Not sure how to start one put I’ll try. Thank you so much for quick feedback on this thread!

Start a new topic is easy

Welcome Willow.  Towards the top of "our" page, where it says the name of this cancer specific page, "Uternine Cancer," right below there is a blue click-on "Start a New Forum Topic" tab.  Click there and you can start a new subject matter topic to post.  We're here for you.  Best wishes, Oldbeauty

Love23

Uterine Serous Carcinoma Help!

Hello, my mom was diagnosed with this cancer and recently had a recurrence. Please im just looking for people who have gone through this to help with any information??