Husband had 4th treatment today-stage 4

cynthiapi40

My husband had his fourth infusion today. He has to wear his pump home and get it taken off on Wednesday. His treatment is every other week. He seems to be doing well but I hear he may get leg pain in the later treatments. He has stated that the feeling comes and goes in his hands and feet. The taste of food is real intense. What I have noticed is that he wants sweets a little more than he used to. Not a lot. He just never really eat sweets. It's mostly cookies, pie or ice cream.

I was surprise today when we got home that he wanted to go in the yard and plant a few flowers in our flower bed. I was a little worried, but I know he enjoys working in the yard.

So I pray everyday all day that his treatments go well. The tumor continues to shrink. I know he will have hard days. I am learning to enjoy the good days as much as possible.

tootsie1

Good!
Good for you! Try to focus on the good as much as possible! I'm glad your hubby had energy enough to want to work in the yard.

*hugs*
Gail

Buckwirth

Cynthia,
Folfox or Folfiri? Side effects, both permanent and temporary, are different depending on which treatment he is in. Also note that just because a particular treatment may have a side effect, like leg pain, it does not mean everyone who is on the treatment will get it and if he does experience a particular effect the severity can range from a minor annoyance to serious enough to stop treatment.

Any activity that he feels up for should be fine. I continued to work and travel while getting Folfox, but again everyone reacts a little differently, so it is best to let the patient set the pace.

Sorry you are here, but if you need anything, please don't hesitate to ask.

Blake

cynthiapi40

Buckwirth said:

Cynthia,
Folfox or Folfiri? Side effects, both permanent and temporary, are different depending on which treatment he is in. Also note that just because a particular treatment may have a side effect, like leg pain, it does not mean everyone who is on the treatment will get it and if he does experience a particular effect the severity can range from a minor annoyance to serious enough to stop treatment.

Any activity that he feels up for should be fine. I continued to work and travel while getting Folfox, but again everyone reacts a little differently, so it is best to let the patient set the pace.

Sorry you are here, but if you need anything, please don't hesitate to ask.

Blake

Thanks so much. I am so glad
Thanks so much. I am so glad I found this site. I did find myself just letting him take the lead. He does do all of the things he is suppose to. I now understand everyone is different. That is why I have stop reading all of the statistics. That can drive you crazy. I feel my husband would still be working also if he was in another field. He has 18 years in with the fire department. He hopes to return, but one day at a time. Right?

cynthiapi40

tootsie1 said:

Good!
Good for you! Try to focus on the good as much as possible! I'm glad your hubby had energy enough to want to work in the yard.

*hugs*
Gail

Thank you so much! I am so
Thank you so much! I am so happy he is up to doing things doing things.

Cynthia

buckeye2

You are certainly bringing
You are certainly bringing the right attitude to this battle. I have found with my husband that the reaction to each infusion is different, some worse than others. I am learning when to "baby" him and when to back off. The thing he needs most during his bad days is just my presence even though he may be sleeping. I think four days in bed gets lonely and just having the presence of another person in the same room doing whatever helps with that. Lisa

stevec2

buckeye2 said:

You are certainly bringing
You are certainly bringing the right attitude to this battle. I have found with my husband that the reaction to each infusion is different, some worse than others. I am learning when to "baby" him and when to back off. The thing he needs most during his bad days is just my presence even though he may be sleeping. I think four days in bed gets lonely and just having the presence of another person in the same room doing whatever helps with that. Lisa

You are absolutly right
I finished my first round of fulfox about a 3 weeks ago and I am starting fulfuri this Monday. But when I was on Fulfox every treatment it seemed like there was a different reaction, I called them adventures. This medicine affects you in many ways, Sometimes you want to get out and do things and sometimes you want to stay in bed. Some days you want to cry some days you want to jump for joy. And you never know how youre going to react till it happens. But you have the right Idea. Be there for you husband in whatever he wants to do. Having someone there for you is a huge help both physically and mentally.
I know exactly what you are talking about with the sweets. I was always hungry. I think it's the steroids. the treatments effect your sense of taste. I needed somthing sweeter than normal just to taste things. Thankfully all of the side effect slowly subside and things will get "normal" again.

cynthiapi40

stevec2 said:

You are absolutly right
I finished my first round of fulfox about a 3 weeks ago and I am starting fulfuri this Monday. But when I was on Fulfox every treatment it seemed like there was a different reaction, I called them adventures. This medicine affects you in many ways, Sometimes you want to get out and do things and sometimes you want to stay in bed. Some days you want to cry some days you want to jump for joy. And you never know how youre going to react till it happens. But you have the right Idea. Be there for you husband in whatever he wants to do. Having someone there for you is a huge help both physically and mentally.
I know exactly what you are talking about with the sweets. I was always hungry. I think it's the steroids. the treatments effect your sense of taste. I needed somthing sweeter than normal just to taste things. Thankfully all of the side effect slowly subside and things will get "normal" again.

Hi
That is funny that you say you was always hungry. My husband says he is always hungry. I'm just happy he is eating. He just finished up his 4th treatment. He gets blood work before every treatment. His CEA went from 186 to 125 to 27 this week. So the treatment seems to be working. You said things would return to normal again. I have started calling this or new new normal. It seem like this 4th treatment was a little more harder for him,but he is pushing right along.