Colonpalooza crew

Kathryn_in_MN Member Posts: 1,252 Member
I hope everyone is having a great time at CPT! I wish I could be there with you all, but I have very good reason not to be. While I didn't qualify for SBRT (due to positioning of one measly node out of the 4), the radiology oncologist felt very strongly that I should have radiation to try and knock out these stubborn abdominal mets I have been chasing for two years. He feels they are the "seeds" for sending out other lymphatic system mets, and that if we can reduce my tumor load by taking them out, we'll have a much better chance at long-term management of my cancer, with hopefully more chemo breaks too! This makes sense, because we've killed off a few distant nodes with chemo, but those 3 in the abdomen are stubborn and never go. They trick us and look gone sometimes, but come right back if I stop Irinotecan. Right now I have one near my esophagus, and three in the abdomin - near my bowels - with the troublesome one being on the duodenum.

Today was my first radiation. I thought of all of you. I hope you are having a great time! While I am sad not to be there, I am happy to be starting radation and feeling like I have some power again against the beast. Right now this is the most important thing for me. (No chemo during this time - today should have been chemo day, but instead was radiation day - so much easier!)

Have fun. Please update us on your adventures, and post photos!


  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Good luck on the new treatment involved and I'm hoping you get more chemo breaks too.

    Hey gang wishing you all a fantastic time there. Just didn't work out this year, hopefully next year.

    It's really windy here in MI so it's got to be windy in Chicago- no one blow away. We need you on these boards :)

  • sladich
    sladich Member Posts: 429 Member

    We had a blast in Chicago. We wish you could have joined us. I didn't know that you were going through treatments. Are these colon cancer mets? or a whole new cancer?

  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    Wish you were there!
    Hi Kathryn,

    We thought of you too!

    Glad you feel empowered to meet this next challenge. YOU GO GIRL!

    It was quite a powerful experience to meet all these wonderful Semi-colons this past weekend.

    I hope at some point you will be able to make one.

    peace, emily
  • luvmum
    luvmum Member Posts: 457 Member
    Stay strong!!!
    Dear Kathryn,

    I have been reading your posts and you have been through a lot but you always stay strong! I really admire your strength and courage!

    I sincerely hope the new treatment will work well for you!
    Hugs Dora
  • jjaj133
    jjaj133 Member Posts: 867 Member
    Kathryn, I am sending
    Kathryn, I am sending prayers and good vibes your way/ This sounds very hopeful. If anyone can do this, you can.