Looking for similar stories. Experience.
Location is Parietal Lobe, more centered. He is Left handed.
After surgery we found out he was only partially removed, as a smaller part of this tumour has branched into the center, a place in his brain used to communicate with each side, so this is inoperable.
He has received no treatment after surgery, they are advising against this. Because it is grade two, slow growing, they would like to watch and see what it does, then when needed, radiation. So this is them basically saying wait until spreading occurs, and when things look grim, radiation to extend his life? Correct? The doctor also made us aware, this usually does come back, and at a higher grade. So not only are they going to wait and let what's left grow, but do nothing about the area removed, and wait for a higher grade to grow back?
He does not have the gene deletion we had hoped for, which would have made his cancer more responsive to chemo therapy, from what I understand.
He has not suffered from seizures, but was made aware of this through really bad headaches. Since surgery the headaches are gone.
Does anyone have experience with this cancer? Or if not this cancer, the same location? Has anyone else been told they are not going to receive treatment after? What were your feelings on this? Does anyone with experience in this believe, no treatment means things look pretty grim?
We have a second opinion booked for the 31st of this month. Doing nothing at all does not sit right with me. Someone had mentioned due to the location, it was almost worth trying surgery due to the effects radiation could have.
Once again reaching out, hope someone has some answers.
Love and prayers sent to all of you!
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