And I thought EC was the worst thing that could happen
kateel
Member Posts: 28
Yes, I thought EC was the very worst thing, but this bleeding stroke is horrible. As you know from previous writings, Bill was completely cured of the cancer, they got it all. But now, this stroke is sucking the life out of him. It's day 14 and he hasn't opened his eyes yet. The doctors say there is brain activity, but how much? No one knows. He can squeeze my hand when I ask him to and can do thumbs up, like he's hitch-hiking. He is being transferred to a Long Term Acute Care Hospital tomorrow where they will try to start a little rehab. He is back on a feeding tube, has a trache in his throat, and a Foley cath. Any others of you who have gone through a stroke after EC, do things ever get better? My poor Bill has really had it bad. Please God help him.
Kateel
I'm still praying for all of you EC patients and care givers.
Kateel
I'm still praying for all of you EC patients and care givers.
0
Comments
-
KEEP HOPE ALIVE !!!
Kateel,
My grandmother had a horrible stroke, couldn't even squeeze a hand or give that thumbs-up. They also moved her to long-term care the same.
Low and behold, over the next few weeks, she started to come out of it, opening her eyes, and from there she recovered almost fully. "They" said she wouldn't ever and even had suggested stopping treatments, such as the respirator (yes it got THAT bad at times then) and a DNR was talked about too.
Glad we didn't listen.
She had to relearn to walk (with a walker) and talking was a challenge at first. She had right-side issues that it affected most, but she came fully back to us and went on two years more, even living on her own again in the end! So DO NOT give up hope. It sounds like Bill is MILES ahead of where my Grandma Lelia was, with him able to respond.
He HEARS you, that I know even if they are not "awake" or responsive at all.
SO talk to him, read to him, encourage him to fight constantly. The reading was what my Grandma said she felt the most when she was at her worst. We read the Bible, books, told stories about us grand-kids. Just whatever kept us talking to her.
I hope this is helpful, as when I saw her (I was younger then too) I though she was gone. We all came to say our 'goodbye's' and I am glad I didn't have to.
So keep hoping and fighting. Bill IS there. He loves you and he KNOWS you are waiting to talk to him again. I am sure he is struggling and fighting to get to that point with you and for you, too. He beat the cancer beast, I think he can beat this, too. I am so sorry you have to fight this now, instead of enjoying the first victory.
I know it IS very unfair indeed.
You are both in my prayers.
Take time for YOU right now too. That is VERY important. Get rest, eat, etc.
I will hope for progress and an update when you have time again.
May God bless Bill and heal him quickly.
-Eric0 -
I second that emotionchemosmoker said:KEEP HOPE ALIVE !!!
Kateel,
My grandmother had a horrible stroke, couldn't even squeeze a hand or give that thumbs-up. They also moved her to long-term care the same.
Low and behold, over the next few weeks, she started to come out of it, opening her eyes, and from there she recovered almost fully. "They" said she wouldn't ever and even had suggested stopping treatments, such as the respirator (yes it got THAT bad at times then) and a DNR was talked about too.
Glad we didn't listen.
She had to relearn to walk (with a walker) and talking was a challenge at first. She had right-side issues that it affected most, but she came fully back to us and went on two years more, even living on her own again in the end! So DO NOT give up hope. It sounds like Bill is MILES ahead of where my Grandma Lelia was, with him able to respond.
He HEARS you, that I know even if they are not "awake" or responsive at all.
SO talk to him, read to him, encourage him to fight constantly. The reading was what my Grandma said she felt the most when she was at her worst. We read the Bible, books, told stories about us grand-kids. Just whatever kept us talking to her.
I hope this is helpful, as when I saw her (I was younger then too) I though she was gone. We all came to say our 'goodbye's' and I am glad I didn't have to.
So keep hoping and fighting. Bill IS there. He loves you and he KNOWS you are waiting to talk to him again. I am sure he is struggling and fighting to get to that point with you and for you, too. He beat the cancer beast, I think he can beat this, too. I am so sorry you have to fight this now, instead of enjoying the first victory.
I know it IS very unfair indeed.
You are both in my prayers.
Take time for YOU right now too. That is VERY important. Get rest, eat, etc.
I will hope for progress and an update when you have time again.
May God bless Bill and heal him quickly.
-Eric
I completely second the thought to keep hope alive. My best friends MIL had a stroke went into a coma for several weeks and then made a complete recovery. Also my aunt had a stroke and we were told her brain was like scrambled eggs but we saw her trying to communicate and it turned out she had a perfectly clear mind. But every stroke is different and every person is different but the fact that your hubby is responding so quickly means more hope. But it does suck big time that he beat the cancer and now has to face this. My thoughts and prayers will be with you and hope that the rehab goes along and he gets back on his feet. take care,
Donna700 -
So sorry
I'm so sorry for what your family is going through Kateel; you know you have the love and support of everyone here. Sending him strength from afar.
Thinking of you both,
Lee0 -
Kateel
You and Bill are in
Kateel
You and Bill are in my thoughts, hoping he will gain strength, I believe sleep is one of the best healers, when my Dad had a stroke I sat with him for many hours and I truly felt that he could hear me, I would talk to him about what the kids had been doing, I read to him from his beloved Bible and you could almost see him relaxing as I'm sure he felt included, never give up hope, look after yourself too you will need strength for this next battle that you and Bill have in front of you. We are all behind you and surround you with our love.
Ann0 -
You're right - it's awful!
Hi Kateel,
I've been kind of waiting for another post from you on how Bill is doing. The fact that he's showing signs of movement and brain activity are very encouraging. The human brain is an extremely complicated organ and while maybe one or more parts aren't working correctly, some are working just fine. I remember when my husband had his stroke and the words were there but they just wouldn't come out of his mouth - except for the swear words! They came out like crazy!! The doctor explained to us that the part of the brain that stores those kinds of words that he knew were bad words was way inside the brain and that part of the brain rarely gets damaged. I think it can be the same with dimentia patients. Even though those words were not words we liked for him to use in the hospital - especially with grandchildren around, they did provide some much needed comic relief.
The others are right about him being able to hear you. I remember when my mom was in a coma due to a heart condition, the nurses telling us that the hearing is absolutely the last thing to go. Keep talking to him, whisper right into his ear and have his other family and friends do the same thing. When you're not able to be right by his side, play his favorite music or books on tape so his hearing and his brain are constantly being stimulated. You may notice eye flurries or twitches here and there as you do this and it's all good signs. Sometimes it just takes a little longer for the body to come back from a traumatic brain injury like a stroke.
When my husband had his stroke just 9 days after his EC diagnosis it was really tough. He's done very well coming back from the stroke but now he gets to fight this other beast. Sometimes it just doesn't seem right to have so much piled on your plate at once. I've heard that God only gives you as much as he thinks you can handle but in the words of Mother Teresa, I just wish he didn't trust me so much. Eric is absolutely right - make sure to take care of yourself too. Don't get too run down now because when Bill wakes up you're going to need your energy. Thoughts and prayers are with you.
Rita0 -
You are in my thoughts and
You are in my thoughts and prayers. Faith, hope and love are amazing things and your love and support will make a huge difference to Bill. I am confident that even though he can't speak yet he does know you are there and knows how much you love him. Remember to take a few moments to get some rest, sleep in a real bed and have a meal --- you need to take care of yourself so you can be there for him.
Hugs,
Cindy0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards