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endometrial stromal sarcoma
I see my oncologist every 6 months.
I am wondering if any one has had a this type of cancer.
Thank you for reading
Jackie
Comments
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Hi
Hi Jackie,
I have also been diagnosed with endometrial stromal sarcoma. I had a total abdominal hysterectomy three weeks ago and soon with begin taking an aromatase inhibitor. I understand that this diagnosis is rare. There is little information about treatment. What information I have read is very conflicting regarding treatment and survival rate.
I wish you all the best and will share any information that I know.
linda888 -
ESS - Endometrial Stromal Sarcomalinda888 said:Hi
Hi Jackie,
I have also been diagnosed with endometrial stromal sarcoma. I had a total abdominal hysterectomy three weeks ago and soon with begin taking an aromatase inhibitor. I understand that this diagnosis is rare. There is little information about treatment. What information I have read is very conflicting regarding treatment and survival rate.
I wish you all the best and will share any information that I know.
linda888
Hi Jackie and Linda:
I too was diagnosed with ESS and had been searching for information about our disease. This message board is wonderful for support but I wanted to suggest another site to join that may give you some other information you are seeking. It's a yahoo group that is dedicated to ESS. There are about 70 members and many are active. Here is the info:
http://health.groups.yahoo.com/group/Endometrialstromalsarcoma/
Good healing to you!
Julia -
new diagnosis low grade endometrial stream sarcomalinda888 said:Hi
Hi Jackie,
I have also been diagnosed with endometrial stromal sarcoma. I had a total abdominal hysterectomy three weeks ago and soon with begin taking an aromatase inhibitor. I understand that this diagnosis is rare. There is little information about treatment. What information I have read is very conflicting regarding treatment and survival rate.
I wish you all the best and will share any information that I know.
linda888Hi Linda, Jackie - I recently received this diagnose a few weeks ago after having a hysterectomy. Was radiation therapy ever mentioned to you as a treatment before horomone therapy?
Linda - My Doctors have also mentioned hormone therapy. One mentioned Aromatase Inhibitor. How are you doing on taking an aromtase Inhibitor? My doctor didn't want to suggest Progesterone since you gain weight with that. I was hoping that you could share any information from your treatment.
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