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Recurrence-any suggestions?

tsaikong
tsaikong CSN Member Posts: 4
in Anal Cancer #1
On aug 23rd, My pet/ct revealed positive activity in my right pelvic wall area and mri shows mass on right side of pelvis. I am trying to stay positive, but this is my 4th recurrence. Here's my history:mitomycin and 5FU and external radiation in 2005. I was in remission for 2yrs. Colostomy in 2007 at Cleveland Clinic, and I was in remission for another 2.5yrs. Cisplatin and tsxotere and radical resection of tumor/IORT in my right pelvis at Sloan-Keterring on Aug 25,1010;but I was in remission for 1yr. The good news, it has not metastasized or involved my lymph nodes. I feel great,and no pain.I am working and exercising ; but now this , I am in disbelief!!!!! I will be speaking w/my onc soon, but any suggestons would be greatly appreciated.
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Comments

  • sephie
    sephie CSN Member Posts: 650
    #2
    hugs to you
    i am so sorry for this. you have been thru it!!! But as you say, no pain. you are still functioning so wait to get the suggestion from docs. Pray Pray Pray. hugs sephie
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  • mp327
    mp327 CSN Member Posts: 4,440 Member
    #3
    Sorry for your latest setback--
    You certainly have been through a lot already. While I can't give you any suggestions, I would like you to know that I will keep you in my thoughts and prayers and I wish you all the best. You are working with good news here in that there is no spread, so try to remain positive.
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  • z
    z CSN Member Posts: 1,414 Member
    #4
    tsaikong
    I'm so sorry for all the recurrances you have had. I can only suggest you go to the rare cancer alliance web site and become a member. There are stage 4 survivors there and 2 that are in a clincal trial. You could put your questions out there and hopefully they will have ideas for you. go to rca I think it takes about 24 hours to be accepted. In the meantime I'm glad your not in pain. Is it at all possible that due to all the surgerys and treatments you have had that this is scar tissue? I hope your oncologist has some answers for you. Lori
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  • tsaikong
    tsaikong CSN Member Posts: 4
    #5
    sephie said:

    hugs to you
    i am so sorry for this. you have been thru it!!! But as you say, no pain. you are still functioning so wait to get the suggestion from docs. Pray Pray Pray. hugs sephie

    Thank you, I always thank
    Thank you, I always thank him for everyday.
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  • tsaikong
    tsaikong CSN Member Posts: 4
    #6
    mp327 said:

    Sorry for your latest setback--
    You certainly have been through a lot already. While I can't give you any suggestions, I would like you to know that I will keep you in my thoughts and prayers and I wish you all the best. You are working with good news here in that there is no spread, so try to remain positive.

    Thank you , it's greatly
    Thank you , it's greatly appreciated.
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  • tsaikong
    tsaikong CSN Member Posts: 4
    #7
    z said:

    tsaikong
    I'm so sorry for all the recurrances you have had. I can only suggest you go to the rare cancer alliance web site and become a member. There are stage 4 survivors there and 2 that are in a clincal trial. You could put your questions out there and hopefully they will have ideas for you. go to rca I think it takes about 24 hours to be accepted. In the meantime I'm glad your not in pain. Is it at all possible that due to all the surgerys and treatments you have had that this is scar tissue? I hope your oncologist has some answers for you. Lori

    Thanks for the suggestion, I
    Thanks for the suggestion, I began to look at it yesterday. You are right, there's lots of info . I'll see how this can help ne, thank you.
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