My Hair Hurts! Really?

pinkkari09

Good Morning "Kindred Spirits" I'm having a hard time with this hair thing, it never hurt like this in 2009 when it fell out. I have these bumps all over my head, they itch, they hurt, and it feels like someone is pulling my hair out. Did anyone else have this? Last time it just fell out so I shaved it and it was fine, this time, it hurts and it feels like my scalp is covered in pimples or mosquito bites. Tell me I'm not alone in this I'm super sad this time, last time I held to the thought "It's ok Kari, it'll grow back" and this time I don't get to hang on to that. My Oncologist said I will be in some sort of chemo indefinitely Hair/Head help/advice?
Thank you,
Kari

skipper54

mine hurt too
and it felt like I had a really bad sunburn or had been standing in the sun too long or something. But, I didn't have the bumps. I know some have talked about "acne" if they shaved heads but don't know much more than that. Maybe your onc can help or refer you to a demotolgist? Hope you get some answers and some relief. {{{{{{HUGS}}}}}}

butterflylvr

skipper54 said:

mine hurt too
and it felt like I had a really bad sunburn or had been standing in the sun too long or something. But, I didn't have the bumps. I know some have talked about "acne" if they shaved heads but don't know much more than that. Maybe your onc can help or refer you to a demotolgist? Hope you get some answers and some relief. {{{{{{HUGS}}}}}}

Kari,
As my hair was falling out my head felt like Skipper said, a server sunburn. I didn't have the bumps though but I am sure that is just because of irritation. For me it would be a traveling soreness. First maybe the back of my head, then the left side, then the right etc..etc.. After it all fell out of course that sensation went away. I hope that is your case dear sweet sister. You are so brave and so strong.. Keep being you.

Hugs,
Lorrie

Lighthouse_7

butterflylvr said:

Kari,
As my hair was falling out my head felt like Skipper said, a server sunburn. I didn't have the bumps though but I am sure that is just because of irritation. For me it would be a traveling soreness. First maybe the back of my head, then the left side, then the right etc..etc.. After it all fell out of course that sensation went away. I hope that is your case dear sweet sister. You are so brave and so strong.. Keep being you.

Hugs,
Lorrie

Kari,
So sorry you're going
Kari,
So sorry you're going through this. Yes my hair and scalp hurt a lot. I had some little bumps too.
It hurt so bad that I couldn't even stand it when I was laying on a pillow.
You're not alone in this side effect but I hope it goes away soon.
For me, it stopped when I shaved my head. I think it took the pressure off the roots.
Hugs and love,
Wanda

MyTurnNow

Kari, first of all, it's
Kari, first of all, it's good to hear from you, I was wondering how you were doing. I'm so sorry about the scalp issue. When my hair fell out in 2009, I was much like you. It started coming out in handfuls and I had it buzzed. Have you had it buzzed/shaved yet? I would call your onc because with all the medications out there, there must be something for your condition. I'm thinking about you and sending you strength to get through this.

P.S. I understand the hair coming out, too. I had my first chemo last Friday and if I follow the same course as last time, I should see handfuls by next weekend. My cancer has also metastasized to the liver, so treatment will be in my future indefinately. We can do it sister!! Sending you love and (((hugs))).

Megan M

skipper54 said:

mine hurt too
and it felt like I had a really bad sunburn or had been standing in the sun too long or something. But, I didn't have the bumps. I know some have talked about "acne" if they shaved heads but don't know much more than that. Maybe your onc can help or refer you to a demotolgist? Hope you get some answers and some relief. {{{{{{HUGS}}}}}}

No chemo for me Kari, but, I
No chemo for me Kari, but, I wanted to say thanks for your update!


We all love you and are cheering for you!


Hugs, Megan

missrenee

MyTurnNow said:

Kari, first of all, it's
Kari, first of all, it's good to hear from you, I was wondering how you were doing. I'm so sorry about the scalp issue. When my hair fell out in 2009, I was much like you. It started coming out in handfuls and I had it buzzed. Have you had it buzzed/shaved yet? I would call your onc because with all the medications out there, there must be something for your condition. I'm thinking about you and sending you strength to get through this.

P.S. I understand the hair coming out, too. I had my first chemo last Friday and if I follow the same course as last time, I should see handfuls by next weekend. My cancer has also metastasized to the liver, so treatment will be in my future indefinately. We can do it sister!! Sending you love and (((hugs))).

Kari, I had a few of those sores/bumps
as well. Maybe your doc has something to ease the pain/itching. When I had no hair, I hated the darn wigs--as I've said here many times--felt like a dead animal on my head. So, I really tried to rock the cool scarves that are out there now. I had my best luck with a website called headcovers.com. They were reasonably priced, always had some on sale and I found the pure cotton to be the most comfortable. I did have a few in more of a translucent chiffon type fabric for "dressy" occasions! I also used a little terry cloth skull cap type of thing that I bought on line underneath. That helped the scarves stay on and I didn't look like such a pinhead!

Stay strong, Kari--we're all with you.

Hugs, Renee

Bella Luna

Hugs
Kari... it's so wonderful to hear from you. Sorry to hear about your scalp hurting. Maybe the doc can prescribe an ointment that will help with the pain. I know when I lost my hair, I ordered this beautiful free silk scarf that had a Japanese print on it. I ordered it online and it came in several weeks.

It's called: L. Erickson USA free Good Wishes Scarves.

They have an amazing selection! It was hard to chose a print. Hugs to you dear one.

camul

Hi Kari
Yes, mine hurt too when it came out, and it had bumps. I started using cream rinse in the shower then putting dove moisturizer on it and it helped.

Now on this new chemo, my hair is coming back in. I was told also that I would be on chemo and sporting the bald look all the way through, but I have about a half inch of snow white hair growth now! No eyebrows or lashes, but little curly hairs all over my head!

Always thinking of you and hope you are having an easier time.

~Carol

mruczko

Hair hurts
Kari:
My scalp hurt so bad, the only way I could tolerate the shower was to hold the spray nozzle (barely a trickle) close to my scalp. Bought an expensive wig which I couldn't wear, it was too painful. I bought some chic headscarves from topsyturban.com, you can get them prefolded, just put them on, slip the ends through, tie the ends - voila! I liked the ones with the fabric in a little "waterfall" down the back. They have inexpensive sleep caps as well.
All the best to you and many hugs,
Marlene

pinkpalette

camul said:

Hi Kari
Yes, mine hurt too when it came out, and it had bumps. I started using cream rinse in the shower then putting dove moisturizer on it and it helped.

Now on this new chemo, my hair is coming back in. I was told also that I would be on chemo and sporting the bald look all the way through, but I have about a half inch of snow white hair growth now! No eyebrows or lashes, but little curly hairs all over my head!

Always thinking of you and hope you are having an easier time.

~Carol

Kari, I know!!!! It hurts. Who would figure hair hurts. I'm itchy and bumpy and sore there too. Just finished up treatment #3 - hair still hanging in a little in back - that shows under a hat. I'm trying to wash with super gentle baby shampoo. Good luck to you sister. I'm right with ya!

pp (Debbie)

Marsha Mulvey

mruczko said:

Hair hurts
Kari:
My scalp hurt so bad, the only way I could tolerate the shower was to hold the spray nozzle (barely a trickle) close to my scalp. Bought an expensive wig which I couldn't wear, it was too painful. I bought some chic headscarves from topsyturban.com, you can get them prefolded, just put them on, slip the ends through, tie the ends - voila! I liked the ones with the fabric in a little "waterfall" down the back. They have inexpensive sleep caps as well.
All the best to you and many hugs,
Marlene

it was extreme
My scalp hurt soooo bad, it was extreme! I had no bumps, but like some of the other ladies said, it was more like a bad sunburn...no, not any sunburn - the worst ever! The good news is, once the hair was gone, the relief was immediate. The pain was gone.

I too am a sister who is on chemo "forever", today was week #72. This includes 62 weeks of infusions and 10(and a half) weeks on 13 chemo pills daily.

Best wishes to you Kari. Marsha

epark

Marsha Mulvey said:

it was extreme
My scalp hurt soooo bad, it was extreme! I had no bumps, but like some of the other ladies said, it was more like a bad sunburn...no, not any sunburn - the worst ever! The good news is, once the hair was gone, the relief was immediate. The pain was gone.

I too am a sister who is on chemo "forever", today was week #72. This includes 62 weeks of infusions and 10(and a half) weeks on 13 chemo pills daily.

Best wishes to you Kari. Marsha

Yes
I'm going through that now...it feels very tender like i have a ponytail to tight or someone pulling my hair...last night i couldn't sleep because it hurt...this morning i woke up with my head shedding like a cat so i went and got it buzzed...its still tender but it gave me some relieve..hopefully, when it completely falls off the pain will go away.

Eva

CAchick

Me, too!
Hi Kari,
My head hurt at first during chemo, before the hair came out. Especially when I lay down at night and my head was on the pillow...Sorry you are having this experience again. Hugs to you...
Sybil

Annette 11

Kari
I'm so sorry that you must go through this again. My scalp didn't hurt as far as I can remember but I do remember reading how nice a satin pillow case feels on the scalp so I bought one. Maybe that is why mine didn't bother me when i lost my hair. My thoughts and prayers are with you Kari.
Hugs,
Annette

DianeBC

Bella Luna said:

Hugs
Kari... it's so wonderful to hear from you. Sorry to hear about your scalp hurting. Maybe the doc can prescribe an ointment that will help with the pain. I know when I lost my hair, I ordered this beautiful free silk scarf that had a Japanese print on it. I ordered it online and it came in several weeks.

It's called: L. Erickson USA free Good Wishes Scarves.

They have an amazing selection! It was hard to chose a print. Hugs to you dear one.

It's just so good to see you
It's just so good to see you posting Kari and I am very sorry what you are going thru. I am sending you lots of positive thoughts, hugs and prayers.


Hugs, Diane

laurissa

Kari
Its strange we're on the same stuff, but hair is not hurting yet, but it is coming out alot in the brush. I just had my 3rd round chemo last wednesday. I never did have bumps either, just the tight pony tail feeling. But, my wigs are waiting. Maybe another week or two. I wish you the best with your treatment. I'll be on mine for 6 mos to a year.

VickiSam

laurissa said:

Kari
Its strange we're on the same stuff, but hair is not hurting yet, but it is coming out alot in the brush. I just had my 3rd round chemo last wednesday. I never did have bumps either, just the tight pony tail feeling. But, my wigs are waiting. Maybe another week or two. I wish you the best with your treatment. I'll be on mine for 6 mos to a year.

Yes, tight pony tail feeling all over my entire scalp..
then come the burn, rash and pimple like cyst. My Oncologist suggested -- Neutrogena T-Gel shampoo .. which helped with rash and pimples.

So awful and painful -- like you and others need another thing to worry about!

Please take care -- and keep hands, fingers away from touching your scalp. I didn't and end up with infected follicles -- yep. Antibiotics then prescribed.

Vicki Sam

Ritzy

pinkpalette said:

Kari, I know!!!! It hurts. Who would figure hair hurts. I'm itchy and bumpy and sore there too. Just finished up treatment #3 - hair still hanging in a little in back - that shows under a hat. I'm trying to wash with super gentle baby shampoo. Good luck to you sister. I'm right with ya!

pp (Debbie)

Always praying for you
Always praying for you Kari!


Sue

survivorbc09

epark said:

Yes
I'm going through that now...it feels very tender like i have a ponytail to tight or someone pulling my hair...last night i couldn't sleep because it hurt...this morning i woke up with my head shedding like a cat so i went and got it buzzed...its still tender but it gave me some relieve..hopefully, when it completely falls off the pain will go away.

Eva

Hoping that your hair
Hoping that your hair hurting will stop for you Kari. Thanks for posting and updating us. Praying for you!


Hugs, Jan

mamolady

Kari,
Hopefully all the
Kari,
Hopefully all the advice from others will help with the issues now. For the future, not all chemos will make your hair fall out. It may still come back depending on the type of chemo.
For now, you may want to leave your head uncovered at home? It may help.

Cindy