Another new club member - radiation machine issue

lauragb
lauragb Member Posts: 370 Member
in Colorectal Cancer #1
Hi all, Thanks for your inspiration you didn't even know you were giving. I've been lurking for a couple of weeks.
I'm 3 1/2 weeks into this, stage III rectal cancer. Anyway, I'm in my second week of treatment, chemoradiotherapy five weeks. But today and yesterday, the radiation machine has been down. It is being fixed but I am anxious about missing these treatments and being out of standard protocol. Also, I've had port issues and have switched this week from continuous IV 5FU to Xeloda, which I have to say I like better so far. Wondered if anyone else has heard about others having days off from radiation due to a broken machine, not exactly a confidence booster. Thanks.

Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #2
    Hi
    We are always sorry to get new members, but happy that CSN exists for us all.

    I don't have any experience with your situation, but if you have concerns perhaps you could talk with your doctor or onc nurse. I have a feeling that a short delay won't compromise your treatments, but asking about anything which causes you concern is something you should do.

    Good luck with getting treatments back on track.

    Marie who loves kitties
  • dorookie
    dorookie Member Posts: 1,731 Member
    #3
    It happens
    it did to me, but just for a coulpe of days, no real long term stuff. Like Marie says, though if your concerned you should ask your doctors or nurses to ease your mind.

    Good Luck
    HUGS
    Beth
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #4
    When I had my
    When I had my radiation/chemo pump last summer the last 2 weeks got pretty hard on me and I was told I may need a delay to allow my body a rest. I didn't want any delays and was careful of what I did and said. But I know I had some days that were close to the tech wanting to check with the Dr and I said no don't. My last day was terribly hard and I knew I could not go another day and so did the Dr that saw me that day. Be careful and please listen to your body, not stubborn like me.

    So I know delays can happen and they just catch you up to the number of treatments you are supposed to have.

    peacelove&happiness to you, gail
  • lauragb
    lauragb Member Posts: 370 Member
    #5
    Lovekitties said:

    Hi
    We are always sorry to get new members, but happy that CSN exists for us all.

    I don't have any experience with your situation, but if you have concerns perhaps you could talk with your doctor or onc nurse. I have a feeling that a short delay won't compromise your treatments, but asking about anything which causes you concern is something you should do.

    Good luck with getting treatments back on track.

    Marie who loves kitties

    Well, I can tell I'm in good
    Well, I can tell I'm in good company, and appreciate the responses. It helps to allay
    fears and negative thinking. Laura
  • yoga
    yoga Member Posts: 87
    #6
    plh4gail said:

    When I had my
    When I had my radiation/chemo pump last summer the last 2 weeks got pretty hard on me and I was told I may need a delay to allow my body a rest. I didn't want any delays and was careful of what I did and said. But I know I had some days that were close to the tech wanting to check with the Dr and I said no don't. My last day was terribly hard and I knew I could not go another day and so did the Dr that saw me that day. Be careful and please listen to your body, not stubborn like me.

    So I know delays can happen and they just catch you up to the number of treatments you are supposed to have.

    peacelove&happiness to you, gail

    Welcome
    Welcome to the board . . . .and sorry that you have to be here. I am new to the board but was diagnosed a year ago with stage 4 CC. I have not had radiation but have gone through 24 chemos - all I can say is that I have found that they seemed to get easier to deal with as time went on. Warm hugs to you.
  • lauragb
    lauragb Member Posts: 370 Member
    #7
    yoga said:

    Welcome
    Welcome to the board . . . .and sorry that you have to be here. I am new to the board but was diagnosed a year ago with stage 4 CC. I have not had radiation but have gone through 24 chemos - all I can say is that I have found that they seemed to get easier to deal with as time went on. Warm hugs to you.

    Thanks for the welcome and
    Thanks for the welcome and I'm sorry you have to be here too, not that it isn't good company. Good news though, the radiation machine was operable today. I never dreamed I'd be so happy to be getting my @$$ burned with radiation, so is life as the new normal.
    Hugs back and all around.

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