Treatment plans, Side Effects, you Kindreds know, the usual!!!

chenheart
chenheart Member Posts: 5,159 Member
edited August 2011 in Breast Cancer #1
I have had trouble being able to get onto the boards~ not sure why! No other site is so problematic and thus discouraging! Today I was able to, so I will let the Kindreds know what's happening with me on my journey.

A week ago I started Zometa infusions and Faslodex injections..and of course I had to get all of the listed side-effects! For those of you "fortunate" enough to get Neulasta shots, the SE's are similar . :-(

The latest and more disturbing is the knee edema~ OMG!!! I literally have not been able to walk for 4 days! Not so much pain, thankfully, but both of my knees look as if I had softballs shoved in them ( lovely visual, isn't it??) and I cannot bend my knees. I hope to live to be at least 90 something, and I mean no disrespect to anyone who is that age, but I am shuffling around as if I have a year to go before I hit 100! I have such a good caregiver in my sweet Reggie~ we have just about exhausted the nation's supply of frozen peas to use as ice packs, not to mention drinking water by the gallon ( which I do anyway)elevating my legs, taking anti-inflammatories and even getting foot massages. Not much has helped, sad to say.
I finally put a call into my oncologists office~ the chemo RN ( love, love, love her!!!) called me back almost immediately and said I was doing all of the right things and this side effect would "eventually" run its course. That was music to my ears! Lo and behold, I see a smidgen of improvement today...so happy about that!

I see as usual I have missed milestones~ hair coloring, birthdays, appointments, travelers, home-comers, joke tellers, bus riders, new ones and those checking in who we haven't seen in a while. I never thought I would be part of that group! So, hello my Kindred Spirits! Know that you are all in my ♥ as I know I am in yours.

I have 2 appointments yet this week, so if I am not able to check in, hopefully you will think good thoughts for me just as I do for every one of you.

Love you all...
Hugs,
Chen♥

Comments

  • pattimc
    pattimc Member Posts: 431
    #2
    Chen
    I have trouble, too, getting on the boards which is why one of the reasons I don't come over here too much anymore. It's too frustrating!

    I already responded (as you know :)) on FB re: your s/e's.

    Hope the knee gets better soon!
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    #3
    pattimc said:

    Chen
    I have trouble, too, getting on the boards which is why one of the reasons I don't come over here too much anymore. It's too frustrating!

    I already responded (as you know :)) on FB re: your s/e's.

    Hope the knee gets better soon!

    this site has gotten very
    this site has gotten very slow, also why I dont come by much!!!!
  • MAJW
    MAJW Member Posts: 2,510 Member
    #4
    pinkflutterby said:

    this site has gotten very
    this site has gotten very slow, also why I dont come by much!!!!

    Chen....
    It sucks.......side effect, side effects....I can imagine how miserable that must be...I know the frozen peas well....a huge gallon freezer bag full...with written on it with a red sharpie......DO NOT EAT ! Yuk!

    I'm hoping things get better for you....and aren't we blessed to have such good men in our lives.? And yes, this site sends me over the edge sometimes trying to get on....server down...unable to open....grrrrrrrrr. Keep us posted....we care

    As always, wishing you the best,
    Hugs, Nancy
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    #5
    MAJW said:

    Chen....
    It sucks.......side effect, side effects....I can imagine how miserable that must be...I know the frozen peas well....a huge gallon freezer bag full...with written on it with a red sharpie......DO NOT EAT ! Yuk!

    I'm hoping things get better for you....and aren't we blessed to have such good men in our lives.? And yes, this site sends me over the edge sometimes trying to get on....server down...unable to open....grrrrrrrrr. Keep us posted....we care

    As always, wishing you the best,
    Hugs, Nancy

    Save some peas for the rest of us, why don't you?!?
    Chen, it's just like you to be so focused on your OWN problems,...Trace and I drove to three stores yesterday and finally ended up in a back alley somewhere buying frozen peas on the black market, just so we could make dinner. Now I know why!

    Okay, seriously...I'm glad to hear that your "softball knees" are starting to feel a little better, and am hoping that the nation's frozen pea supply will be able to recover soon, because you won't need them anymore!

    Big hug to you,

    Traci
  • laurissa
    laurissa Member Posts: 773
    #6
    Hi Chen
    Prayers are with you too. Hope you feel better real soon. Chemo is horrible.
  • missrenee
    missrenee Member Posts: 2,136 Member
    #7
    laurissa said:

    Hi Chen
    Prayers are with you too. Hope you feel better real soon. Chemo is horrible.

    That great "Chen attitude" lives on!
    It stinks that you are having all the side effects you are, but I'm glad that your Reggie is right there for you (we knew he would be) and that your spirits (at least on here) are bright. I hope you can start moving around soon--not being able to makes everything worst.

    Even with the nasty side effects, your new treatments are kicking butt--I just know it. Hang in there, dear warrior. You are doing a fine job.

    Hugs, Renee
  • grams2jc
    grams2jc Member Posts: 756
    #8
    So glad you made it on today
    Sorry you have "elephant knees" but so glad your nurse got back to you promptly and you are seeing some improvement.

    If you aren't able to make it back on here before your appts....Good Luck, we will all be thinking of you and wishing you better days with less side effects,

    Jennifer
  • sbmly53
    sbmly53 Member Posts: 1,522
    #9
    Yikes!
    I'm so sorry that you are experiencing all those nasty SE's. I do hope the subside quickly.

    With your Grrr attitude, sense of humor and Reggie, I know you will shine through this.

    Sue
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #10
    sbmly53 said:

    Yikes!
    I'm so sorry that you are experiencing all those nasty SE's. I do hope the subside quickly.

    With your Grrr attitude, sense of humor and Reggie, I know you will shine through this.

    Sue

    Stupid .. side efforts ... Ugh! I am so sorry dear Chenheart
    I see from your post ... you're keeping your GRRRRR on. What a dear, and empathic husband you've found with Reggie -- he is a ROCK, no doubt!

    Such a positive and vibrant Kindred Spirit you have shown all of us. I am in awe of your Strength and Courage. Kick the snot out of that 'beast'.!!!!

    Positive thoughts, prayers and Hope coming your way.

    Bye the way, a 42 foot truck and trailer with 2 tons of frozen peas are on their way up to you .. Courtesy of the Green Giant.

    Gentle hugs coming in your direction.

    Vicki Sam
  • chenheart
    chenheart Member Posts: 5,159 Member
    #11
    VickiSam said:

    Stupid .. side efforts ... Ugh! I am so sorry dear Chenheart
    I see from your post ... you're keeping your GRRRRR on. What a dear, and empathic husband you've found with Reggie -- he is a ROCK, no doubt!

    Such a positive and vibrant Kindred Spirit you have shown all of us. I am in awe of your Strength and Courage. Kick the snot out of that 'beast'.!!!!

    Positive thoughts, prayers and Hope coming your way.

    Bye the way, a 42 foot truck and trailer with 2 tons of frozen peas are on their way up to you .. Courtesy of the Green Giant.

    Gentle hugs coming in your direction.

    Vicki Sam

    The Green Giant is my
    The Green Giant is my cousin~ being as I am the 50' woman, it takes a heckuva lot of veggies to cool down these legs! :-) I will call and ask GG ( as I call him) to stop by Traci's~ black market peas ...not such a good thing! Thanks, VickiSam and ALL of you who make such a huge difference in my life! Love you !
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #12
    chenheart said:

    The Green Giant is my
    The Green Giant is my cousin~ being as I am the 50' woman, it takes a heckuva lot of veggies to cool down these legs! :-) I will call and ask GG ( as I call him) to stop by Traci's~ black market peas ...not such a good thing! Thanks, VickiSam and ALL of you who make such a huge difference in my life! Love you !

    Stupid chemo!
    Been thinking about you lots, Chen. I don't like it when you don't post. So sorry about the edema and other nasty side effects. Good that you have a cousin "in the business" to keep you supplied with frozen peas!

    My very very bestest to you-
    Suzanne
  • Sunrae
    Sunrae Member Posts: 808
    #13
    chenheart said:

    The Green Giant is my
    The Green Giant is my cousin~ being as I am the 50' woman, it takes a heckuva lot of veggies to cool down these legs! :-) I will call and ask GG ( as I call him) to stop by Traci's~ black market peas ...not such a good thing! Thanks, VickiSam and ALL of you who make such a huge difference in my life! Love you !

    Chen, its so good to see
    Chen, its so good to see your post even tho you're having some terrible side effects. Looks like you still have your great sense of humor what with softball or elephant knees. Just remember frozen peas work for a lot of things, not that you will ever need them again. And you may never eat them again either. I keep them in the freezer just for such emergencies but I don't eat them either. You know how much you're loved and missed here so post when you can but take care of yourself now. Focus on what you need to do to get thru this and come here when you can. Sending you lots of love.
  • New Flower
    New Flower Member Posts: 4,294
    #14
    Sunrae said:

    Chen, its so good to see
    Chen, its so good to see your post even tho you're having some terrible side effects. Looks like you still have your great sense of humor what with softball or elephant knees. Just remember frozen peas work for a lot of things, not that you will ever need them again. And you may never eat them again either. I keep them in the freezer just for such emergencies but I don't eat them either. You know how much you're loved and missed here so post when you can but take care of yourself now. Focus on what you need to do to get thru this and come here when you can. Sending you lots of love.

    Claudia sending you a big hug
    Sorry for the side effects. Wishing you to feel better tomorrow
  • phoenixrising
    phoenixrising Member Posts: 1,508
    #15
    I really wish I could take
    I really wish I could take this crap off your plate...I really do. Know that you are in my thoughts and prayers and I am wishing you the best outcome.
    Many hugs
    jan
  • gami43
    gami43 Member Posts: 281
    #16
    New Flower said:

    Claudia sending you a big hug
    Sorry for the side effects. Wishing you to feel better tomorrow

    Chen - I am sending good
    Chen - I am sending good thoughts your way for both of
    your appts this week. Hope that swelling goes down soon.
    Sounds like you have a great sgnificant other (Reggie-husb?)
    Keep us posted as you have time. How much longer do you
    have on your meds? Just keep on keeping on and know you have
    prayers & support here.

    Teresa
  • cahjah75
    cahjah75 Member Posts: 2,631
    #17
    Chen
    so happy to hear from you and know that you are always in our thoughts too :D Sorry to hear about the side effects. I tend to get edema in the knees and my rheumatologist is always removing fluid from them and then injecting them with cortizone. Your spirits sound positive and Reggie sure is a keeper! Post when you can...... I too had problems several days either getting onto the website or not being able to post. Dang!
    {{hugs}} Char

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