first post . . . . . stage IV, one year, 24 chemos and still going strong!!

yoga Member Posts: 87
Greetings Fellow CC Survivors!

Thought it was time I introduced myself as I have been 'lurking' for a while now.

My story:

On July 7, 2010 I went to the hospital first thing in the morning with a very sore shoulder - thought maybe some pain meds were in order - by 5:00pm they had finished doing more tests than I can remember and told me I had cancer somewhere in my abdomen (not sure exactly where) and that it had spread to my liver. The pain was referred pain. Over the next few weeks I was told it was colon cancer with so many mets in the liver I would never be able to have surgery and had about 2.2 years - the onc assured me they would be a good years?!? (WTF??? Do I have an expiry date stamped on my backside that I am not aware of?!)

I had a lot of diarrrea (gotta check spelling on that!) and blood loss about a week before chemo started and I could barely walk from one room to another I was so weak. When I called my onc nurse she said not to worry, I was just weak from the diarrea. Had my first chemo on Aug. 5 - big allergic reaction followed by huge amounts of steroids and benadryl. Ended up in Emrg for the night getting 3 units of blood. Registered a complaint against the onc nurse.

Shortly after this mess I decided I better take my healthcare into my own hands - my organizated, elementary teacher voice woke up. Started seeing an Onc Social Worker every two weeks, found a Naturopathic Doctor and started reading everything I could find. After my 10th chemo I fired my oncologist and worked with the hospital to find one that would support my alternative treatment ideas and one who was quite a bit more positive.

Since my diagnosis I have moved in with my boyfriend, gotten married and sold (with much heartache) my beautiful little home nestled in the woods on 2 acres of property. I am now well on my way to redecorating our place and have spent most of the spring and summer overseeing landscaping and working in our new gardens. I have also worked up to walking about 4-5 km a day on the treadmill with 3lb weights in my hands and started yoga, which I do twice a week. I have purchased a mini-trampoline to do rebounding every day.

I am on Irinotecan and 5-FU home infusion for 46 hrs - on a 2 week cycle (start each treatment with steroids and bendryl; was on Avastin for 10 rounds but taken off due to bleeding. I started taking Neulasta after chemo 12. So far, each CT scan shows shrinkage.

Other stuff I take: Venlafaxine (thank heavens for this little happy pill!!!); Vitamin D 3000IU; Salmon Oil 600mg; a multivitamin; B12 1000mcg; B6 100mg; milk thistle (not during chemo) 1500mg; probiotics; fractionated pectin powder and Ave Ultra.

Enough rambling for now . . . . promise I will try to be shorter in the future.


  • pepebcn
    pepebcn Member Posts: 6,331 Member
    Hi yoga, wellcome to the board glad you are doing so good!
    Hope for a continous shrinkage and even a possible surgery!
    Have a great weekend and here you got a gang ready for anything you can need!.
  • judman92
    judman92 Member Posts: 31
    I also have Stage 4 colon cancer that has spread to my liver. My doctor described it as covering my liver. I have heard a lot of success stories of those tumors shrinking and then being able to do surgery at a later time. I just started my chemo a week ago I have another session coming up this next Wednesday. I luckily have not had any reactions to any of the drugs. Good luck to you and I hope your spots on the liver shrink as well.
  • marqimark
    marqimark Member Posts: 242 Member
    It seems from your post that you have the tools needed to cope with your CRC: a fighting spirit and a positive attitude.

    Prayers and hugs to you.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Good job of looking out for yourself!

  • buckeye2
    buckeye2 Member Posts: 428 Member
    Congratulations on making
    Congratulations on making your first post and sharing your story. I find posting a little intimidating because you are sharing for the world things you don't share with your own family outside the electronic world. There's also the concern you will say something others may misconstrue or take offense because you don't have your nonverbals to accompany the words to convey meaning. With each post I make I am becoming more and more comfortable. Lisa
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    never enough rambling here
    great story, sorry you had to be the star, i am a bit alternative as well.
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    Welcome and You are a good Role Model
    Welcome to the club. You sound like you are in charge of your health and in "fighting spirit". I too like to do Tai Chi which is similar to the yoga I used to do. It helps with balance, physical and emotional. Also helps with the Nueropathy.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Welcome to the boards and thank you for sharing your story. Sounds like you have been very busy this last year with everything and you are handling it well. You can post as much as you want. Let us know how things continue to go.

  • yoga
    yoga Member Posts: 87

    Welcome to the boards and thank you for sharing your story. Sounds like you have been very busy this last year with everything and you are handling it well. You can post as much as you want. Let us know how things continue to go.


    Thanks! :)
    Thank you all for welcoming me to the board . . . . I have been doing this cancer thing for a year now and I felt it was time to reach out and find the support of others going through the same thing.

    I am staying very positive (those pretty little pills have really helped with this!!) and look to find something to smile and laugh about everyday. I am doing all that I can to keep myself mentally and physically strong - I know all of you are doing the same thing.

    Finally, I have to say that I am looking forward to getting to know you and to the sharing of thoughts and ideas that happen here.

    Hugs and smiles to all of you! :)