The new plan...I flunked out of the clinical trial....lol
MAJW
Member Posts: 2,510 Member
Long story short....my CT scan on Monday showed this drug is not working...soooo....I start radiation next Tuesday..the two clavicle nodes have to be shrunk as they are pressing on a blood vessel and nerves....causing my hand and arm to swell and considerable pain in the arm and breast...Taking Cumadin....and...I will also take Zeloda while doing rads... A two for one? The Zeloda is to treat the other nodes....would like to hear from any of you pink sisters on this drug....
Needless to say we were so disappointed to get the news that the drug not working....We were so bummed....hopefully it will work for others....
I had my rads simulation yesterday..I was really worried that I would have to have the wire mask that is bolted to the table for head and neck rads...but nope! What a blessing and praise God! But My arms will be in a somewhat strange position....
Have no idea where this new journey will take me...as my Oncologist says..."triple negative bc is a nasty beast"....but I've had my pity party and between now and next Tuesday, I'm gonna rest, relax and get my game on! Let the games begin!
I'm exhausted so it's time for bed....
Hugs to all,
Nancy
Needless to say we were so disappointed to get the news that the drug not working....We were so bummed....hopefully it will work for others....
I had my rads simulation yesterday..I was really worried that I would have to have the wire mask that is bolted to the table for head and neck rads...but nope! What a blessing and praise God! But My arms will be in a somewhat strange position....
Have no idea where this new journey will take me...as my Oncologist says..."triple negative bc is a nasty beast"....but I've had my pity party and between now and next Tuesday, I'm gonna rest, relax and get my game on! Let the games begin!
I'm exhausted so it's time for bed....
Hugs to all,
Nancy
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Comments
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Nancy, I am so sorry that
Nancy, I am so sorry that you are going through this. You are so incredibly brave! I know that your participation, however brief, will help us all further down the road and I thank you for it. Praying that your new treatment plan will work and make you mor comfortable too.0 -
I think of you often, and am
I think of you often, and am sending all my positive energy!! I hope you sleep well and have peaceful dreams tonight.
Hugs,
Linda0 -
Ahem! YOU didn't flunk the
Ahem! YOU didn't flunk the clinical trial, it flunked you! Ok...on to radiation and shrinking the ugly buggars into oblivion! I know how disappointed you must be~ yet our hope springs eternal. I send you healing thoughts, good vibes and an extra bit of strength and courage on those days you just might feel you are running low. We have plenty to spare for all of us!!!.
Hugs,
Chen♥0 -
Thinking of you Nancy andfauxma said:Best thoughts and prayers
Best thoughts and prayers for this new treastment plan.
Stef
Thinking of you Nancy and sending prayers and love.0 -
You didn't flunk the drug did!camul said:Sending good thoughts and
Sending good thoughts and prayers that rads will get rid of them completely. You have had a ride but I love that you always come back embracing the next plan.
~Carol
Sending positive thoughts and prayers that the rads do the trick. We're all behind you!0 -
You didn't flunk
Trust me, I know, I nearly flunked rads due to burning and a bad attitude. You didn't do anything wrong, it just wasn't the right drug for you.
Relax until next week then kick those nodes in the behind!
Wishing you less pain and the strength to keep beating the "nasty beast",
Jennifer0 -
Hugs and Prayersgrams2jc said:You didn't flunk
Trust me, I know, I nearly flunked rads due to burning and a bad attitude. You didn't do anything wrong, it just wasn't the right drug for you.
Relax until next week then kick those nodes in the behind!
Wishing you less pain and the strength to keep beating the "nasty beast",
Jennifer
Lots of hugs and prayers headed your way. Love your positive attitude - my bets on you!
More Hugs and Prayers,
Debi0 -
Nancy, I'm putting my money
Nancy, I'm putting my money on the rads to do the trick. You have a great attitude and are so lucky to be surrounded by your loving husband, family and of course, all of us. Now, with that being said, go kick that cancer right in the arse! Sending love and (((hugs))).0 -
Nancy .. Options -- there are options, f o r g e t aboutMyTurnNow said:Nancy, I'm putting my money
Nancy, I'm putting my money on the rads to do the trick. You have a great attitude and are so lucky to be surrounded by your loving husband, family and of course, all of us. Now, with that being said, go kick that cancer right in the arse! Sending love and (((hugs))).
the clinical trial -- rad's should due the trick. High hope, encouragement and Love.
Keep up the the positive attitude -- it will get your thru this road block in your recovery.
Strength, Courage and Hope.
Vicki Sam0
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