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I feel real moodiness ,fidgety , in very bad manners today , yesterday was my disconnection and havi

pepebcn
pepebcn CSN Member Posts: 6,331 Member
in Colorectal Cancer #1
Shouting every body, can't stay calm ,moving from one room to other! .
Did it happen to you some times?.
Need a bit of help!
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Comments

  • Lovekitties
    Lovekitties CSN Member Posts: 3,364 Member
    #2
    Dear Pepe
    It sounds like you are experiencing side effects from the Dex.

    You can't just stop taking it, so you need to contact your doc, tell him your side effects and see if there is something else you can take instead, or if there are some meds to help calm these side effects.

    In the mean time let your family know that it is the meds causing all this...am sure they will understand and still love ya!

    Hugs my dear friend. Praying that all this settles down for you soon.

    Marie
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  • ron50
    ron50 CSN Member Posts: 1,723 Member
    #3
    G'day Pepe
    I was on prednisone for arthritis and auto immune disease. Normal dose is usually 10-25 mg and only for a couple of weeks. I was on 75mg daily for nearly 18 mos. I am very very surprised that I and many others are still alive because or it. My personal space went from around 3ft to 30 metres. I was aggravated to the point of being irrational. I avoided friends and family,i did not want to know me. It took months to wean off it and if my life depended on it I will never knowingly take a steroid again as long as I live. Ron.
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  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #4
    i was worse
    dear pepe,

    its dex, chill out.

    my onc cut the dex to half dose, and dished out ativan to make me the
    mellowed out pete you have here.

    try and hop out of your body and look at your behaviour.
    when i look back i was not proud of my temper.

    hugs,
    pete
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  • dorookie
    dorookie CSN Member Posts: 1,731 Member
    #5
    QUestion
    What is the Dexametasone for? Do you have to take it? Hope you feel better soon.

    HUGS
    Beth
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  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #6
    dorookie said:

    QUestion
    What is the Dexametasone for? Do you have to take it? Hope you feel better soon.

    HUGS
    Beth

    Just for nausea Beth!
    Hugs!
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  • buckeye2
    buckeye2 CSN Member Posts: 428 Member
    #7
    Similar Reaction
    My husband has this same reaction the day after he is disconnected. I am going to see if there is something they can gives him for this anxiety as it is the worst side effect he has. His usual personality is very laid back so this reaction is so out of character. Those that love you understand it's not you but the chemo talking.
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  • KathiM
    KathiM CSN Member Posts: 8,028 Member
    #8
    Always slept thru the next day....
    But it sounds like you have some very good advice from others!

    It was grand meeting you, my dear, and I will never forget the 'Barcelona the traveling public doesn't see!'

    Hugs, Kathi
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  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #9
    KathiM said:

    Always slept thru the next day....
    But it sounds like you have some very good advice from others!

    It was grand meeting you, my dear, and I will never forget the 'Barcelona the traveling public doesn't see!'

    Hugs, Kathi

    ThNk you kathi i suppose you aré in rome isn't?
    Hugs to you both!
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  • pokismom
    pokismom CSN Member Posts: 153
    #10
    I had that too....
    I also had a bad reaction to the steroids, I was so sick after my first infusion they gave me the dex in my IV twice. I was bouncing off the walls after they disconnected me, cleaned the whole house, cooking up a storm and lots of anxiety. Not a good thing, so I asked to try Emend and I cut back on the Dex that I take with it to 4mg instead of 8. Also Ativan works wonders. I'm so sorry you have to go thru that too, it's an awful feeling. I try to take Ativan or Xanax for the first couple of days, after disconnecting, not a whole lot just half a pill to a whole one a day and that keeps it in check for me. Good luck. And talk to your Onc, it's a nasty feeling for those of us affected by it!
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  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #11
    pokismom said:

    I had that too....
    I also had a bad reaction to the steroids, I was so sick after my first infusion they gave me the dex in my IV twice. I was bouncing off the walls after they disconnected me, cleaned the whole house, cooking up a storm and lots of anxiety. Not a good thing, so I asked to try Emend and I cut back on the Dex that I take with it to 4mg instead of 8. Also Ativan works wonders. I'm so sorry you have to go thru that too, it's an awful feeling. I try to take Ativan or Xanax for the first couple of days, after disconnecting, not a whole lot just half a pill to a whole one a day and that keeps it in check for me. Good luck. And talk to your Onc, it's a nasty feeling for those of us affected by it!

    Thank you all not had it today , I stopped it and feel better
    Hugs to all !
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  • daBeachBum
    daBeachBum CSN Member Posts: 164
    #12
    Glad to hear that things calmed down :-)
    Pepe,

    Glad to hear that the nervousness and agitation have subsided for you! I'm sorry that you had to go through that. I am certain that your family understands that all these powerful drugs they have us on sometimes have adverse side effects.

    Take care,

    Ray
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  • Kenny H.
    Kenny H. CSN Member Posts: 502 Member
    #13
    daBeachBum said:

    Glad to hear that things calmed down :-)
    Pepe,

    Glad to hear that the nervousness and agitation have subsided for you! I'm sorry that you had to go through that. I am certain that your family understands that all these powerful drugs they have us on sometimes have adverse side effects.

    Take care,

    Ray

    Pepe,
    I went thru the same
    Pepe,
    I went thru the same situations. Did not want to be made mad for anything at that time.
    Roids powerfull stuff.
    You'll kick it with time.
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  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #14
    Yes
    The steroids bothered me too. Days after disconnect was the worst. Take a warm bath with some soothing music, or just go lay down with some soft music. Sometimes that anxiety can work itself out. Hope you feel better though.

    Hugs! Kim
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  • PhillieG
    PhillieG CSN Member Posts: 4,866 Member
    #15
    SHUT UP!!! ;-)
    I'd get that too. It goes away. Everyone who knows you, KNOWS you so I'm sure they understand. It doesn't really help feeling all jittery and it's a crummy feeling but it too shall pass...
    -phil
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  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #16
    Not you!
    I can't imagine you in a bad mood! I'm sure it must be medication, because it's certainly not your personality.

    *hugs*
    Gail
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  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #17
    tootsie1 said:

    Not you!
    I can't imagine you in a bad mood! I'm sure it must be medication, because it's certainly not your personality.

    *hugs*
    Gail

    Thank you all my friends! definitively it was Dexametasone!
    My doc already removed it since I have not any vomits or nausea!.
    Again thank you all of you for your caring!.
    Hugs my friends!
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