Bone pain???

carolenk
carolenk Member Posts: 907 Member
in Ovarian Cancer #1
Just wondering if there is anyone who didn't/doesn't have bone pain after chemo? I'm wondering if having bone pain is preventable/treatable or just related to individual differences.

And if someone did AVOID having bone pain, was there anything that you may have done differently than the women who DID have bone pain? Or just got lucky?

thank you,

Carolen

Comments

  • Radioactive34
    Radioactive34 Member Posts: 391 Member
    #2
    How soon does the bone pain
    How soon does the bone pain set in? 3 treatments in and I have not had it. Though I am not sure what has prevented it. My eyes cross when I look at the med list for my IV drips. There are so many.
  • Susan777
    Susan777 Member Posts: 97 Member
    #3
    Bone pain
    Hi Carolen,

    I get really horrible bone pain. I would describe it as a cattle prod being poked into my feet, hips, ribs, elbows and knees and various times and intensities. For me they start about 3 to 4 days after chemo treatment and last for about 5 days to a week. They hurt so bad. I have to soak in the hot tub several times a day and take Advil and Norco. I was told by my chemo nurse to take L-Glutamine so neuropathy doesnt set it. I guess neuropathy is were the pain settles and doesnt go away and your feet and fingers can go numb. This is my experience.

    Thanks,

    Susan
  • joan60
    joan60 Member Posts: 89
    #4
    Susan777 said:

    Bone pain
    Hi Carolen,

    I get really horrible bone pain. I would describe it as a cattle prod being poked into my feet, hips, ribs, elbows and knees and various times and intensities. For me they start about 3 to 4 days after chemo treatment and last for about 5 days to a week. They hurt so bad. I have to soak in the hot tub several times a day and take Advil and Norco. I was told by my chemo nurse to take L-Glutamine so neuropathy doesnt set it. I guess neuropathy is were the pain settles and doesnt go away and your feet and fingers can go numb. This is my experience.

    Thanks,

    Susan

    Bone Pain
    My bone pain started about a month after treatment. I have neuropathy too. My feet and ankles hurt all the time, I take hot baths and tylenol with neurontin at night. Sometimes my whole body hurts, my husband said your nerves are waking up and that is why you hurt,(boy are they pissed). I look forward to the day that I can stand without pushing myself up and walking without waddling like a duck!!
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #5
    Bone Pain
    I don't just have bone pain my athritis has been ramped up by the chemo also, I did not take anything to avoid the side effects . Has anyone gotten any relief after the fact by taking any supplements ?
    Colleen
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #6
    Cafewoman53 said:

    Bone Pain
    I don't just have bone pain my athritis has been ramped up by the chemo also, I did not take anything to avoid the side effects . Has anyone gotten any relief after the fact by taking any supplements ?
    Colleen

    pain
    almost gone now post chemo. Once in awhile will get a sharp pain in my knees and then it goes away. I sill have numbness and tingling feet and sometimes in my hands. I have the dropseys once in awhile and I can't hold anything. Oh well just something I have learned to live with....val
  • MaxRudy
    MaxRudy Member Posts: 56
    #7
    Bone Pain
    I got the tingling feet after the 1st chemo dose but it wasn't too bad. The most aggravating was the increased "restless leg syndrom" which I had before cancer but a lot worse when you take the steroid prep before and after and during chemo. I then had to start neuprogen shots to increase my white blood count and this caused bone pain but not too bad until the 5th dose of chemo (which I'm now into). This caused a lot of bone pain in back and down left leg. I found relief in epsom salt soaks and oxycodone. It lasted about 4 or 5 days.
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #8
    MaxRudy said:

    Bone Pain
    I got the tingling feet after the 1st chemo dose but it wasn't too bad. The most aggravating was the increased "restless leg syndrom" which I had before cancer but a lot worse when you take the steroid prep before and after and during chemo. I then had to start neuprogen shots to increase my white blood count and this caused bone pain but not too bad until the 5th dose of chemo (which I'm now into). This caused a lot of bone pain in back and down left leg. I found relief in epsom salt soaks and oxycodone. It lasted about 4 or 5 days.

    no bone pain so far
    I had the 5the carboplatin treatment of the initial chemo done at the end of March. You know I was and still am taking a lot of nutritional supplements and also the IV ascorbic acid infusions twice/week. I didn't know about taking L-glutamine to prevent neuropathy until I was finished with chemo so I didn't take that.

    While I was on chemo, I was taking something called Biost from Standard Process because I read about it on the Moss Report. It is made from raw veal bone and it might have helped keep the bone pain away. I will say that it didn't help keep my white count up--I had to delay the final chemo 2 weeks while I waited for my neutrophils to get into a better range.

    I also took alpha lipoic acid (ALA) the entire time I was on chemo and still take it twice/day. I think it warded off the neuropathy--I started getting those symptoms but they went away after I took extra doses of ALA. I read that ALA has natural chelating effects so I am staying on it hoping that some of the residual platinum will leach out of my bone marrow and leave me.

    LQ

Discussion Boards