Follicular NHL at age of 33

caregiver1829

rclaxb said:

RCHOP
Hi Monica,

I did RCHOP Nov. 2009-Feb. 2010. Just so you know, the Rituxam caused me no problems. Know that my symptoms of being tired and lost of teast got worse after each chemp cycle. Wed. I will have my last Rituxam maint. treatment after 2 years every three months. These sessions have not been bad. Only main issue is not being able to sleep the night of the treatments and being tired for about four days. Hang in there. My primary felt zololf would help me and it has made a big diffence in my attitude.

rchop
hi rchop/ my wife had rchop in 08 with success, but it was long lived,, 2010 follicular was back and it brought re-inforcements with it "big B" in dec 10 she did a auto stem cell blood transplant which kick Mr b's tail..now n Jan we something showing on scan, we re waiting on biopsy to find out what,, they re recommending treanda w/ rituxin as direction of action to take.. you re right rituxin is a mild chemo,, and what i read of treanda it too can be a mild to mid level chemo.. each person reacts diff to it.. but we just need to know the results of treanda so we can make a decision..
when the doc showed us that glow on the computer screen my heart dropped to my knees.. and our first trend of thinking was to just make the best of the time, but after seeing these blogs tonight it gives me new strength on this battle.. thanks to all caregiver..

caregiver1829

MammaDuck said:

Follicular NHL
Monica,
I also had NHL Follicular Bcell Stage 4. My bone marrow was 20% infected. I was diagnosed in May of 2007.I was in my late 40's. I am presently in remission! I had a lot of aches and pains after chemo and rituxan. I took L-Glutamine. I would just take a spoonful and mix it in bottled water in the morning with flavoring. It helped a lot.
I had 6 CHOP treatments w/Rituxan then a follow up of 8 treatments of rituxan over 2 years. The rituxan often left me feeling like I had the flu for a day or so.
There is life after Cancer. I ran in the Circle of Life 5K race a year after treatment. I went back to school to become a teacher. I have made a bucket List and have done several things. Some I never would have dreamed of doing before!
I wish you the best of luck with your treatment. Stay positive and take care of yourself.

I started looking on this site because the one longterm effect for me is my memory and attention span just don't seem to be what they once were. Anyone else have this problem?

memory loss
Mammaduck, memory loss must be one of the side effects,, my wife doesnt remember places and things we ve seen just a few years back,, and really has a problem with short term memory.. they say thats part of the chemo thing.. but for her the maint rituxin has not done its job, we waiting for biopsy to see what type and how much cancer is showing back up behind her intestines,, we know its lymphomia but what? and how bad? she too felt like she was sick at her tummy a day or two afterwards rituxin chemo..
the Jewish hospital published a book to prepare they re patients for transplants and one of the things i have found to be very true is that even though you appear to be better and in realistic you re still doing dr follow ups etc,, your family and friends think everything is hunky dory and you re all doing just fine and really you re still having a lot of problems that they just dont know about because they re not around that much and they only see the good moments when they stop in to visit.. caregiving is definately a 24/7 job.. I use careingbridge.org faithfully too, its a good means of communicating your patients progress or lack of progress to those that want to know.. thanks caregiver..

jjjorgen

Davis285 said:

News & Zevalin
Dear friends! Just want to give an update about me. Praise The Lord doctor told me the week before Thanksgiving that I was in remission. I had tears of joy when he said those words. The Lord made everything perfect and I was able to have a wonderful Christmas with my family and my kids. My body recovered very well and I felt with energy to do things and very happy that my body was going back to normal little by little. This week I have my next procedure which is the Zevalin. Dr gave me indications and side effects. I'd like to know if any of you had it and if you could share your experience with me.
I send you all big hugs and wishing you a Happy and Healthy New Year! We are all in the same boat and we are here to help each other with the Love, Support and Mercy of our Lord Jesus Christ who straighten us everyday!

Zevalin
I keep trying to research Zevalin. Please tell me how things went for you?
God Bless!!